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Dr. Bob is Robert Hsiung, MD,
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Posted by Karalyn on November 20, 2003, at 2:11:13
In reply to Re: Effexor Withdrawl - crashed and burned » Dr...Not!, posted by Jasper on November 19, 2003, at 14:57:19
one way I got off after two tries of not making it was taking one prozac to help alleviate the withdrawls. this seemed to stay in my system, as the doc put it, and withdrawls werent as bad. I too do not want to go back on cause of the withdrawls even though my pdoc says he would rather me go back. I'm trying Lexapro now. if anyone is on that let me know.
Posted by pixygoth on November 20, 2003, at 14:03:10
In reply to Re: effexor withdrawal, posted by Jiggitykid on November 17, 2003, at 16:24:07
Mmm... the eyeball squeezing, I think it's like when you start peeling an orange and it squirts you in the eye... but for minutes at a time. Right?
S
Posted by KimberlyDi on November 20, 2003, at 15:16:48
In reply to Re: effexor withdrawal » Jiggitykid, posted by pixygoth on November 20, 2003, at 14:03:10
After having my therapist implore me to up my Effexor dosage back to 150mg at least until the holidays are over with... I did. But you know, going up from 75mg to 150mg a day is worse than the decrease. After each dosage, my hands tingle and my mind tingles. This feels like giving up land that I won in a bloody battle, but I'm falling apart. I can taper off from 150mg to 75mg to eventually zero in Jan of 2004. Hopefully, 150mg of Effexor and 50mg of Imipramine will be enough to stop my frequent crying jags for now. I want to beg my pdoc to give me something to make me stop hurting so bad.I keep telling myself "do not self-medicate, do not self-medicate". My newest mantra. Climbing the walls at my home, I'm desperate enough to think about trying aroma-therapy and relaxation CD's.
Posted by Stavros on November 20, 2003, at 16:28:42
In reply to Effexor Rollar Coaster-wanna ride w/me?, posted by KimberlyDi on November 20, 2003, at 15:16:48
Kimberly, I am climbing the walls at my house as well. Not working and cannot get away from this thing in my head I can barely use every ounce of energy to not think of hurting myself. I feel for you and I have no answers. One day at a time and that is too much for me today. IF Strattera doesn't do something rapidly i am going to lose it? Keep on keepin' on.
s
> After having my therapist implore me to up my Effexor dosage back to 150mg at least until the holidays are over with... I did. But you know, going up from 75mg to 150mg a day is worse than the decrease. After each dosage, my hands tingle and my mind tingles. This feels like giving up land that I won in a bloody battle, but I'm falling apart. I can taper off from 150mg to 75mg to eventually zero in Jan of 2004. Hopefully, 150mg of Effexor and 50mg of Imipramine will be enough to stop my frequent crying jags for now. I want to beg my pdoc to give me something to make me stop hurting so bad.
>
> I keep telling myself "do not self-medicate, do not self-medicate". My newest mantra. Climbing the walls at my home, I'm desperate enough to think about trying aroma-therapy and relaxation CD's.
Posted by mellinn on November 20, 2003, at 17:41:20
In reply to Re: Effexor Withdrawl - crashed and burned, posted by responsiblek9 on November 19, 2003, at 14:17:17
Just realized my "crashing" and the feeling of losing my mind could actually be from forgetting to take my Effexor for two days now. My doctor has put me on 225mg - have been on it since last January. Several times this year I have had the same occurrences. What usually happens is that I just forget to take it while I'm sick (flu, cold, etc.) Pretty soon I feel like I've gotten sick all over again, but worse. (uncontrollable crying, naseau, headache, blurred vision - the works) This is the first time I've ever "googled" effexor to find out for myself just what I've been doing to my body. Boy, do I feel stupid. Here I thought I losing my mind gradually and having mini-nervous breakdowns. I am really not sure what to do. I know that I probably won't be able to wean off easily - two small children at home and a husband who travels does not make for an ideal situation right now. Thank you to all who have submitted their experiences - it truly does make me feel better -maybe I'm not going insane and it's just the medicine.
Posted by jbc on November 20, 2003, at 18:21:39
In reply to Re: Effexor Withdrawl -, posted by mellinn on November 20, 2003, at 17:41:20
You are definitely NOT insane. Definitely come off slowly. I had only taken up to 75 mg, went to 37.5 mg for a week & then off completely. I really should have gone off slower than that. I ended up being off work for 3 total days (2 & then another one) because of how beat down my body was from the withdrawals. Come down as slowly as you are able! Get your doctor to work with you! Force him if you have to!
Posted by jiggitykid on November 20, 2003, at 19:43:22
In reply to Re: effexor withdrawal » Jiggitykid, posted by pixygoth on November 20, 2003, at 14:03:10
>>> I think it's like when you start peeling an orange and it squirts you in the eye... but for minutes at a time. Right?<<<
No, not really. It feels more like the membrane surrounding my eyeball is too small and is smushing each eyeball. I know it's gross, but that's the best I can do :-).
Posted by jiggitykid on November 20, 2003, at 19:48:23
In reply to Re: Effexor Rollar Coaster-wanna ride w/me?, posted by Stavros on November 20, 2003, at 16:28:42
I am so sorry - your therapist has clearly never taken Effexor XR and he/she has no clue what your poor body is going through. I stopped cold turkey - not necessarily what works for everyone, but I knew I could not take the tapering. For a little over a week, I have been crazy and sick, but every day the severity of the symptoms decreases. Today, frankly, was the closest to "normal" I have felt since beginning the Effexor XR. The swings are still here, but they are at least expected - I know what is causing all of this, so I just have to hold on for the ride.
I want the medication off the market. Those of you who are having luck with it, I am happy, but I don't think the rest of the depressed world should be asked to "test" the drug for one more minute.
Posted by jiggitykid on November 20, 2003, at 19:50:29
In reply to Re: Effexor Withdrawl -, posted by mellinn on November 20, 2003, at 17:41:20
You are not losing your mind. The Effexor is taking your mind, and it's after your body. It tried to take my health, my marriage and my sanity. You really need to make some serious decisions about what to do, and make sure, sure, that you have support when you do it. I don't think you need to change anything until after the holidays. I am praying for as well as for Effexor XR to disappear.
Posted by jiggitykid on November 20, 2003, at 19:53:25
In reply to Re: Effexor Withdrawl -, posted by jbc on November 20, 2003, at 18:21:39
>>> Come down as slowly as you are able! Get your doctor to work with you! Force him if you have to!
<<<Do what works best for you. Weaning is what some folks here have found is the only way for them. Others have found that cold turkey is the only way. I am one of the latter. Do research, read and listen to what people who HAVE BEEN THERE have to say, not what studies and doctors who have read the pamphlets have to say. Don't even listen to those who say that you should continue the Effexor XR if it is working - who knows what kind of long-term harm this drug may cause. My eyes were not bad before I took it, now, I am having trouble focusing. Could stick with me. Take care of yourself!
Posted by mellinn on November 20, 2003, at 19:54:25
In reply to Re: Effexor Withdrawl -, posted by jbc on November 20, 2003, at 18:21:39
Thanks - after the holidays I might think about getting off this stuff. Before I had written my last post, I took my 225mg. dose and now am feeling somewhat better. It's absolutely amazing to me how I feel so dependent on this stuff. Sometimes I feel like just staying on it the rest of my life so as not to have to put myself or my kids, for that matter, through these awful withdrawals. Writing my last post, I was crying, could barely see straight, and felt like my head was going to burst - any research on the long term effects of Effexor - is it better to just live my life taking this drug? Seems to me some of us just might have to be on it forever. I'm hoping not.
Posted by mellinn on November 20, 2003, at 20:15:46
In reply to Re: Effexor Withdrawl -, posted by mellinn on November 20, 2003, at 19:54:25
Is anyone on 225mg.? I take it right before bed - all at once. My doctor said whatever works. Makes me somewhat tired in the middle of the day, but maybe taking it at different times of the day may be better. The information I'm getting from these posts is great. I really thought I was in this alone, it's easier to read and inform myself through these posts than it is even talking with my doctor. When he asks me, I say "everything's great, no problems here" - all he pretty much does is prescribe my Effexor -haven't gotten into any detailed sessions. I'm on this because I was having trouble with depression, which I've had for years and the Prozac seemed to stop working for me. I told my Ob/Gyne and he referred me to this psychiatrist, so here I am.
Posted by Scared Stiff on November 20, 2003, at 22:09:42
In reply to Re: Effexor Rollar Coaster-wanna ride w/me? KimD, posted by jiggitykid on November 20, 2003, at 19:48:23
I'm considering going off this stuff based on this message board and the fact that I haven't felt like 'ME' since being put on it. I needed something after my second and third child when the panic attacks started and the Psych DR prescribed 37.5 mg. It took about 6 weeks of panic attacks, my hubby thinking I was completely insane and driving around with my new children for hours until it was time to go home. My last child is now 3 and I am feeling like maybe I want to fell like "ME' again without the constant haze I get daily on Effexor and am completely terrified of even one panic attack.
I know my family doctor will just tell me 'Do what you think is best' and based on this message board I am terrified. I don't want to be one of those statistics. My family needs me too much! But I need ME back too!
Not meaning to beg, but any help or suggestions on this? What 'kind' of doctor is the right kind to go to to help wean off this stuff to make sure someone doesn't need it anymore?
Posted by byron on November 21, 2003, at 0:14:33
In reply to Wits END!, posted by KimberlyDi on November 18, 2003, at 7:36:14
> I've gone down from 300mg to 75mg so far and may have to go cold turkey next. My soon-to-be-ex hubby stole all my medications (including for my cold!) along with my drivers license, visa/debit card, and my jewelry. None of my meds were anything he would enjoy. I can only guess he took them because he wants me to fall apart.
>
> He's doing a pretty good job of it. It's too early for refills. I don't know what to do.
>Couple of thoughts:
1) Quitting meds in the middle of high stress isn't very wise unless they're causing problems - and if that is the case, a change in meds might be better than quitting. Also if you Doc changes meds, then the too early rule to refill does not apply.
2) You may be able to get samples from your Doc.
3) If you are in crisis, you can go to your local MHMR crisis center, psychiatric emergency room and they'll probably help you if you can't afford to just buy it yourself.
4) Change your locks if your about to be ex is bugging you. If he comes around, call 911 and let the police sort it out, don't you try to do it.
5) Having a good therapist can be very helpful at times like these.Hope this helps,
Byron
Posted by jiggitykid on November 21, 2003, at 8:17:14
In reply to Re: Effexor Withdrawl -, posted by mellinn on November 20, 2003, at 20:15:46
That's the dosage - 225, that I just quit. Read this board carefully and do some research. Effexor XR seems to be the flavor of the month with so many medical professionals. There are loads others out there, so make sure that you are taking the right one for you. I cannot stress enough that the patient is really the one in charge of her healing, not the doctors or the mental health pros. They are parts of the solution, but the true responsibility for healing lies with the patient in making informed choices and not going along with everything just because "the doctor says."
I am going through a nasty withdrawal from 225. This drug gets into your system and does not want to let go - ever. So, please, do your research, because the pharmacists won't tell you, the doctors won't tell you and the mental health pros won't tell you everything you need to know, no matter how caring and good they are. I wish you much success with defeating this horrible monster of depression.
Posted by jiggitykid on November 21, 2003, at 8:27:40
In reply to Advice for the weary?, posted by Scared Stiff on November 20, 2003, at 22:09:42
>>>I want to fell like "ME' again without the constant haze I get daily on Effexor and am completely terrified of even one panic attack.<<<
First, know that you are not alone. My suggestion would be that you see a mental health professional - not a GP. This is a major deal. Effexor robbed me of my personality, and has nearly destroyed my family. My husband was walking out last week. We have a 5 year old. He agreed to counselling, and I threw the Effexor in the toilet. Withdrawal has been horrible. Some here say that withdrawing slowly is the best way. That wouldn't work for me, so I went cold turkey. That is something you need to decide after you read the posts here and do some real research on your own. Talk with your husband and your family. Ask them if you have been "MIA" for a while. Were I to be you, I would do some serious asking and searching for a good mental health pro (for me, being a Christian is a must). Psychiatrists deal with the medical as well as the emotional. You really need more information to make your decision. For me, Effexor lifted the basic depression, but it fogged me up, made me sleepy, made me not give a damn about things that had been important to me, etc. Effexor is, in my opinion, a very dangerous, misused and misunderstood drug that needs serious re-evaluation by the FDA. I am looking for a class-action lawsuit to either join or start, because I don't think this should happen to anyone else. Someone here said that I am misguided and making generalizations, but I know what I know.
Take care and hang in there. You are in my prayers.
Posted by Stavros on November 21, 2003, at 13:38:15
In reply to Re: Effexor Withdrawl -, posted by jiggitykid on November 21, 2003, at 8:17:14
My great Pdoc told me that if the withdrawl gets too bad that one pill of prozac can offset the effect significantly. You should inquire. I think others have posted about this as well.
s
> That's the dosage - 225, that I just quit. Read this board carefully and do some research. Effexor XR seems to be the flavor of the month with so many medical professionals. There are loads others out there, so make sure that you are taking the right one for you. I cannot stress enough that the patient is really the one in charge of her healing, not the doctors or the mental health pros. They are parts of the solution, but the true responsibility for healing lies with the patient in making informed choices and not going along with everything just because "the doctor says."
>
> I am going through a nasty withdrawal from 225. This drug gets into your system and does not want to let go - ever. So, please, do your research, because the pharmacists won't tell you, the doctors won't tell you and the mental health pros won't tell you everything you need to know, no matter how caring and good they are. I wish you much success with defeating this horrible monster of depression.
Posted by John2222 on November 21, 2003, at 21:47:31
In reply to Re: Effexor Withdrawl -, posted by Stavros on November 21, 2003, at 13:38:15
I went to the health food store and bought a bag of empty gel caps (about several hundred for $5 as I remember).
I used that to make 50 mg capsules from 2 75 mg Effexor XR capsules. It's not a perfect division but it works.
Im now at 1/2 of 37.5 which is about 18 or 19 mg per day.
I got this suggestion from this or maybe a different forum and it has helped minimize adjustments downward.
Posted by mellinn on November 21, 2003, at 23:04:50
In reply to Re: Effexor Withdrawl -, posted by jiggitykid on November 21, 2003, at 8:17:14
How long were you on the 225mg? I've been on it for about a year now - I am going to begin my inquiries regarding the long-term effects, as well as the weaning off of this. - My next psych appointment is first of January. If I cannot even function after a couple of days of missed dosage, I surely do not see how I will be able to function going cold turkey. Kudos to you for being brave enough to do that. I don't think I have the strength yet to do that. The Prozac supplement might be my best alternative. I will definately discuss this with my doctor during my next appointment. He may be quite suprised to hear how much I am learning about this; instead of just agreeing and saying "yes, things are great...never better...may I please have my prescription now." Not to imply he's a bad person, I just think that sometimes it gets too easy for some of these doctors to prescribe these amazingly powerful drugs and not really know the adverse affects it will have on some people. I'll be interested to see if he, in fact, has done his research and knows of the difficulty so many are having getting off this drug. Good luck with your journey - it surely doesn't sound easy, but if you have strong support, you can get through anything.
Posted by Dr...Not! on November 22, 2003, at 11:05:44
In reply to Re: Effexor Withdrawl -jiggitykid, posted by mellinn on November 21, 2003, at 23:04:50
What size (mg) Prozac is being prescribed to offset the Effexor withdrawal symptoms?
Posted by Cetacea on November 22, 2003, at 22:25:42
In reply to Re: Effexor withdrawal symptoms!, posted by iluvdaisys on October 15, 2003, at 4:52:36
I've just found this website also, and am in the throes of getting off of Effexor 75mgs. It has been really helpful to see that my SE's from taking it are same as everyone else's, more or less, and my w/drawal symptoms are also. I'm on day #3 of cold turkey. After reading about the horror stories of staying on this, I couldn't make myself take one more pill: I've GOT to get off this. If I found out that a doctor had hooked me onto cocaine or heroin, I wouldn't wait one more day before quitting the stuff, NO MATTER WHAT the side-effects were going to be, and I wouldn't (I keep telling myself!) give one thought to whether or not the w/drawal was gonna do me in. Maybe I'm just that untrusting and scared of being hooked into something, but it really undoes me emotionally to think of being addicted to a substance. [alot of alcoholism in my family-of-origin] Bad enough to have a problem w/food (which I do). I have to eat. I don't have to continue taking anything that's going to make me more sick than I was to start with. Maybe when the depression and anxiety come roaring back, I'll be whistling another tune. Meanwhile, my one thought is, "I'm outta here" re Effexor XL, or Effexor-anything. I'm really surprised that my doctor would put a human being on this drug, and I think the drs just DO NOT KNOW the miseries Effexor's causing. I'm hoping that I'm going to be "lucky" and not have 3 weeks (or more: 3 DAYS is too much!) of illness from getting off this drug. I cannot IMAGINE having w/drawal miseries that last a year. Even tho' that quack-site was definitely preying on our wanting an "out" from the SE's and w/drawals we've brought on by taking Effexor, the quack's info about Effexor appeared right on target, and I'll betcha few-to-no doctors (esp the pcp's) know about those *consequences* of taking Effexor.
Now, I would like to thank the person who wrote in that stopping Effexor does not always bring on the nightmare scenario that has been so widely reported by others on this site. [wishing I could get lucky on this!] I would also like to thank whoever it was who told us that taking even *one* prozac pill (in the middle of bad withdrawals) could make a huge difference. I haven't done that yet, but I have some prozac pills, and I like knowing that there IS a cushion out there for me if the world comes apart worse than it has already in the withdrawal dept. I also didn't know that the itching I've had today was caused by w/drawing. Since insomnia was one of my problems pre-effexor, I'd worried that stopping it would bring that right back, and I didn't realize that sleeping MORE was (or could be) a w/drawal symptom. As you may imagine, that part has not been so bad for me. The zaps and cardiac arrhythmias are worrisome, and I seem to have moments when I "lose it" in a way that makes me think I should not drive for a few more days. I would like not to be queasy in the stomach for a change, and losing the weight I've gained (that's what caused me to look for this group) on Effexor would be really nice. I told my doctor that the only thing for me worse than depression was depression PLUS weight gain from meds. Sorry to be rambling! I'm just so grateful to've found people who have had an experience like mine. Sorry we're all in this boat, but if each of us had no knowledge of the others, it would be even worse --so I'm grateful for you all! Hope we all make it out of this cauldron, and SOON!
*********************
> Hi, I just found this site, after waking up so itchy that I thought I'd research my problem. I'm on effexor right now, and want off. I've been on it since about April of this year, and it has been a nightmare ever since. I cry so easy now. I take trazadone to cope with the effexor. And god help me if I miss a dose of effexor!!!!! I've embarrassed myself at work a number of times now, with my crying. Now, I'm itching all over, especially my hands, feet and scalp. I don't know if it is from the effexor or not. I want my doctor to ween me off, but after forgetting a dose twice in a row, and the nightmare that came with that...I'm frightened of withdrawl. I just felt the need to post here. I have what my doc thinks is manic depression, and I have severe panic attacks and PTSD. I'm afraid to try another med...I don't want to be trapped in another nightmare like this :( My family needs me, and I'm just not really here. Any input is appreciated. I don't have a clue what I'm hoping to hear, but I hope to hear something.
Posted by Cetacea on November 22, 2003, at 22:48:46
In reply to Re: Effexor Withdrawl - I did it, so can you, posted by soshie on November 2, 2003, at 8:54:01
THANK YOU SO MUCH!
I've been having 'brain shivers' and just thought I was "losing it", my term for the feeling! I had thought I was "lucky" not to have them. Oh well: Live and learn!
***********> Here is a series of articles on Brain Shivers that taught me a lot....
>
> http://depression.about.com/cs/venlafaxine/a/brainshivers.htm
>
>
Posted by Stavros on November 22, 2003, at 22:57:55
In reply to How many mg Prozac?, posted by Dr...Not! on November 22, 2003, at 11:05:44
I suffered the withdrawls of Effexor the first time I went off it after several months on a typical therapeutic dosages. I don't fully rememember but I did know that withdrawls would and did take place. I hated it all but compared to the hopelessness that I felt I could bear it. The second time (recently)i went on Effexor was at the lowest dose 37.5 and my experience was better as well as withdrawls too. That is when my excellent Pdoc recommend i take a cap of prozac to offset of any withdrawls but i again didn't care about the zaps, flu like stuff etc. Don't get me wrong it was terrible but with the lower dose it only lasted a few days? All to say that I do not know what dose of Prozac to take the ills away from Effexor withdrawls. I would imagine someone over the last few years posted it somewhere on this site? While Effexor has caused some of us ill I know there are probably just as many people who have gained a new life from it. Every Rx written has the potential to be a death certificate. Matters of the chemical mind are very difficult to know. I have no idea why any MD would chose psychiatry? The stress would be way too much for me. Zoloft made me so suicidal and for my girlfriend it helps hold her life together???There are no panaceas out there for any of us other than hope. I need you all to represent both the pros and cons. I am considering going on Effexor, very los doses for a 3rd time among other things. These are trying times for all of us babblers.
Take it lite,
S
PS placebo effect can be as high as 50% and I need every little bit to get me over this hump/mountian and out of my own prison.
Posted by Cetacea on November 22, 2003, at 23:06:15
In reply to Re: Effexor Withdrawl - crashed and burned, posted by karen t bag on November 8, 2003, at 8:06:37
I'm on day 3, I'm 55, and your story could be mine, but I sure hope not! I hope you're doing better now (maybe you've posted farther down; I'm working my way there), and I hope my own DAY 4 doesn't go like yours did. I do NOT want to crash and burn my way back to Effexor. Before I would take another of those pills, I would take a prozac. Someone asked what dosage (mg) to take, and I would like to know that also. However, I'm guessing that taking *any* amount of prozac (if it helps at all the way 'they say' it does) would sustain me thru the rough spots that may be ahead. Let me tell you all: I'm plenty scared and respectful of the problems that getting off of Effexor can deal out to me or to anyone. It appears to be a crap-shot as to who, how bad, and from what dose. Hanging in here...thanks to you ALL!
************************
> > Well, that went well (NOT)! I'm back on Effexor XR after 4 days off! The withdrawal was too awful, so we're going to keep me at 75 mg for a month, then cut down by 15mg for a month, and then another 15, and then 7 and 7.
> >
> > As it was, Sunday am (5 days ago) was supposed to be my last dose, but by Fri I couldn't stand the nausea, crying, nightmares and sweating any more.
>
> dont worry you did your best - i cant beleive doctors put us on this in the first place - im sure it should be banned - but keep going - we are all out here for you
> xxx
Posted by Karalyn on November 22, 2003, at 23:19:38
In reply to How many mg Prozac?, posted by Dr...Not! on November 22, 2003, at 11:05:44
hey I talked about using one prozac to get off of Effexor. so it may have been my post you saw...as I recall it was a low dose...uhm..i dont remember what the amount was for sure, but I can find out for you. my warning to you is that i experience high suicidal thoughts after taking that prozac and I thought it was just from going off of meds(effexor) and being depressed in general. however i read on this site that prozac can cause you to be more depressed and have more suicidal thoughts. i didnt really have them before as bad or frequent. email me at karalyjoyelise@hotmail.com and if you have more questions. sometimes its hard to make sure someone gets your post or whatever.
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