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Dr. Bob is Robert Hsiung, MD,
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Posted by accent on January 25, 2005, at 19:20:20
In reply to Re: Effexor withdrawal - very bad news, posted by dancingstar on January 21, 2005, at 17:28:00
Hello, thanks for the encouragement. Right now I have decided to stay on the medication and try to get off of it during the summer. I teach and so the withdrawls are too much to take while trying to continue teaching. I become worse than the middle-schoolers I teach. Unable to focus and such. Anyhow I'll keep reading and keep on posting till then. By the way I found a site where a class action suit is being brought up against the Wythe company. If your interested here it is...and thank you for the last paragraph bebe. I am now in "action" mode. Others need to be educated. I think this site helps and I hope that you all continue to "fight" back! <withdrawl and all> accent
Posted by sp on January 25, 2005, at 21:23:41
In reply to Re: Effexor withdrawal - very bad news, posted by kathyba on January 25, 2005, at 17:36:47
> I faxed my doctor a memo telling him what I was going through (although I took 37.5mg of Effexor with my wellbutrin on Sat and Sun). He said that he hadn't had any problem with patients having bad withdrawal symptoms (what do have patients have that I don't to handle this) but that he was sorry. He read some of the articles I faxed him (the FDA notice about Effexor from 2000) and he said he would let me have the 25mg of Effexor tablets so I can wean off more slowly.
>
> So I am now going to take my 150mg Wellbutrin with 12.5mg of Effexor in the am and 12.5 in the pm. I'll try that for a week and then maybe try to cut out another 1/4 of a pill. We'll see. -KathyHi Kathy- perhaps other Dr.s would be informed if they read some of our postings as well. I don't know if anyone would object though. This is anonymous, right? Anyone know more about this? S
Posted by sp on January 25, 2005, at 21:25:59
In reply to Thank you, posted by accent on January 25, 2005, at 19:20:20
> Hello, thanks for the encouragement. Right now I have decided to stay on the medication and try to get off of it during the summer. I teach and so the withdrawls are too much to take while trying to continue teaching. I become worse than the middle-schoolers I teach. Unable to focus and such. Anyhow I'll keep reading and keep on posting till then. By the way I found a site where a class action suit is being brought up against the Wythe company. If your interested here it is...and thank you for the last paragraph bebe. I am now in "action" mode. Others need to be educated. I think this site helps and I hope that you all continue to "fight" back! <withdrawl and all> accent
Hi accent- Thanks for the info- I'm not computer savvy- what is the site? S
Posted by Kathyba on January 26, 2005, at 5:21:12
In reply to Re: Effexor withdrawal - very bad news, posted by sp on January 25, 2005, at 21:23:41
> Hi Kathy- perhaps other Dr.s would be informed if they read some of our postings as well. I don't know if anyone would object though. This is anonymous, right? Anyone know more about this? SI agree. I didn't give him our posts because the last time I did that, they didn't see them as "authoritative". Pissed me off but they want to read stuff from studies. He told me that it is only a small percentage that have problems and the ones that DON'T have problems don't post on the internet. grrrrrr.
Posted by dancingstar on January 26, 2005, at 11:19:05
In reply to Re: Effexor withdrawal - very bad news, posted by Kathyba on January 26, 2005, at 5:21:12
Why don't you print one of the links that I posted where the pdocs are talking to each other?
Maybe that would have more have more influence.
Posted by whosthat on January 27, 2005, at 1:16:17
In reply to Re: Effexor withdrawal - very bad news » oeps7, posted by spiciestcrashbean on September 8, 2003, at 18:40:40
hang in there! i had been on effexor xr 300mg for the past three years and am now completely off. the taper was the worst experience of my life, but it's over now and things are looking up. you can do this!
> please could someone tell me this?I take effexor for my panic attacks. I have been taking it for 2 years. I tried to get off of it once but I just couldn't do it. I ended up in the emergency room because I couldn't stand up and would get a really bad head rush with every 2 steps that I would take. Then my panic attacks started to come back. please do they ever stop?
> spiciestcrashbean
Posted by gadman on January 27, 2005, at 18:58:39
In reply to Re: Effexor withdrawal - very bad news, posted by TrinityX1 on October 30, 2004, at 19:26:06
For those on Effexor reading this thread, I need to interject and say that I was on Effexor for 3 years and the medicine did good by me....
It releaved my anxiety and helped with my depression. I have recently switched to Cymbalta and the transition was not bad at all... The only withdrawal symptom I had from Effexor was depression. And to be honest I can't say that this is exactly withdrawal, because it wasn't any worse than when before I started Effexor.
Gadman
Posted by Fathe on January 29, 2005, at 10:55:58
In reply to Re: Effexor withdrawal - very bad news, posted by gadman on January 27, 2005, at 18:58:39
> For those on Effexor reading this thread, I need to interject and say that I was on Effexor for 3 years and the medicine did good by me....
>
> It releaved my anxiety and helped with my depression. I have recently switched to Cymbalta and the transition was not bad at all... The only withdrawal symptom I had from Effexor was depression. And to be honest I can't say that this is exactly withdrawal, because it wasn't any worse than when before I started Effexor.
>
> GadmanYou are quite lucky to have had virtually little negative side effects from stopping Effexor. I am sure Effexor can be stopped relatively easily for many people and therefore they are not familiar with the experiences many of us DO have.
Effexor also worked wonders for me as well when I was on it. But my therapy was never considered a long term event and I knew I evenutally would be of the position that I would be stopping it. And that is where the real issue here for most of us is....not what it can and does do for users while they are on it, but when they want to stop taking it, for what ever reason, the withdrawal effects can be anywhere from mildly distracting to downright disruptive.
If everyone here posted different side effects that did not match someone else's, I would have to almost say that we are all a bunch of hypochondriacs. But the fact that almost each and every one of the effects posted was identical to others being reported, I would have to say that that fact is now important enough to make it well conveyed in Effexor's literature. The potential withdrawal effects must be conveyed to every patient being prescribed the drug for the first time so they can make an informed choice.
My withdrawal this time around was tolerable but only because of the helpful hints and support others here have posted. I am 4 weeks now without Effexor and I feel pretty darn good finally. Minor symptoms still remain but I have finally been able to stop the dramamine and the Benadryl regimens I adhered to the past few weeks. To say I feel I have a sense of victory and accomplishment is an understatement because last year, when I tried to stop, the symptoms were so disruptive that I convinced myself I will take Effexor for the rest of my life to avoid the withdrawal. Terrible reason to continue a drug.
So again, I do not think many here would say that the period they are on Effexor was Hell on Earth; a few have but mostly Effexor can be taken without incident or after a few days of the body getting used to it. The withdrawal, on the other hand, is a whole separate "animal" and that is why we are trying to get the word out to Wyeth and doctors.
Posted by gadman on January 29, 2005, at 11:36:44
In reply to Re: Effexor withdrawal - very bad news » gadman, posted by Fathe on January 29, 2005, at 10:55:58
Thanks Fathe... This is day 8 of completely being off of Effexor. I continue to suffer depression....
My question is... How do you know if it is an Effexor withdrawal (the depression) or just a symptom of my original problems (Anxiety with depression)
Posted by Fathe on January 29, 2005, at 12:13:34
In reply to Re: Effexor withdrawal - very bad news » Fathe, posted by gadman on January 29, 2005, at 11:36:44
> Thanks Fathe... This is day 8 of completely being off of Effexor. I continue to suffer depression....
>
> My question is... How do you know if it is an Effexor withdrawal (the depression) or just a symptom of my original problems (Anxiety with depression)
>
>Hi Gadman
Unfortunately (or fortunately !) anxiety and depression were not part of my withdrawal symptoms. The only "emotional" type symptom I experienced was a marked reduction in my tolerance level of situations which most times I have no control over...but even those are leveling off now. My symptoms were physical (the "volts", nausea, sweating, eye movement sensations, fatigue, leg heaviness and nightmares). It could be that your new drug is not the right medication for your type of anxiety and depression and possibly Effexor IS the better choice for you. Each person's body is different. But that is the point this forum is not trying to make; that Effexor is a bad drug while you take it and should be taken off the market. It is really a wonder drug, for many and me included. We just want to make sure that those who follow in our footsteps who are prescribed Effexor, know that the possibility of severe withdrawl symptoms can occur once you try to taper down your dose. With so many other SSRI's out there, why not have the information available so you can make an informed choice to pick Effexor?Maybe others here on this site can tell you that if they had the anxiety and/or depression as part of their withdrawal, they can help you by posting how they dealt with it and how long it lasts.
Just hang in there though. Whether you love Effexor of hate it, I have found that everyone here is very supportive and typically can relate to one thing or another of what you are experiencing. For me, that was golden.
We are all thinking of you...keep us posted of how you are doing.
Posted by gadman on January 29, 2005, at 15:57:19
In reply to Re: Effexor withdrawal - very bad news » gadman, posted by Fathe on January 29, 2005, at 12:13:34
Thanks again Fathe... Your words are encouraging. The new Med I am on is Cymbalta and I am not sure what to do... I hate to go back to Effexor, especially after reading all of the horror stories.
I have only been off the Effexor for 8 days and on the Cymbalta for nearly 3 weeks. I am still trying to adjust my Cymbalta dose and get back to the way I was before I went off the Effexor (I hope that comes soon)
Gadman
Posted by roobie on January 29, 2005, at 17:38:14
In reply to Re: Effexor withdrawal - very bad news » Fathe, posted by gadman on January 29, 2005, at 15:57:19
Hi, Gadman. I wondered the same thing too when I thought 'hey, maybe I don't need this anymore'... and I am sorta mixed about what I want to do.
When I tried to quit, I had the side affects, but infrequent as I could still function just fine, but knew the 'dizzies' were there. It was the uncontrollable hostility, which I think was brought on by the anxiety which is why I started taking these things in the first place (Paxil first).
I do feel that the Effexor is 'good' for me, but am totally greatful that folks on this site confirmed the side-effects, as well as the 'danger' of coming off that the drug companies and docs don't really acknowledge. I would have REALLY thought I had some unexplainable issues.
I would consider something else and may even ask about that Cymbalta(?) you mentioned.
roobie
Posted by Fathe on January 29, 2005, at 17:38:46
In reply to Re: Effexor withdrawal - very bad news » Fathe, posted by gadman on January 29, 2005, at 15:57:19
Gadman, I would definitely speak to your health care professonal who prescribed the new drug. I am sure there was a good reason to be taken off Effexor and put on this new medicine but it could be that Effexor is more effective for you. That would be something you and your doctor should weigh in on.
I do know, however, that if you need a sounding board while on Effexor or if you continue to stay off and feel you need support for that as well, this forum is the place for it. I would not have been able to face my witrhdrawal without "picking the brains" of others here.
You will find comfort in that others here have been through the same thing as you are experiencing.
Take care and keep us posted of your progress.
Posted by gadman on January 29, 2005, at 17:54:03
In reply to Re: Effexor withdrawal - very bad news » gadman, posted by roobie on January 29, 2005, at 17:38:14
Roobie... Effexor and I had a good relationship over that last 3 years but the Doc thought I might do better on Cymbalta.
It was a rocky start with Effexor if I remember it right, and it took several months (probably 6 or so) before I felt good again. I was going through what I could only describe as a break down and Effexor coupled with Xanax at night go me through it.
Now it is 3 years later and although Effexor is still working, my BP is up and I have gained alot of weight. (And I was also feeling sluggish)
So Enters Cymbalta... And here I am... The verdict is still out.
Gadman
Posted by gadman on January 29, 2005, at 17:56:23
In reply to Re: Effexor withdrawal - very bad news » gadman, posted by Fathe on January 29, 2005, at 17:38:46
Thanks once again...
I will continue monitoring my progress over the next couple of weeks... I at least want to give the Cymbalta a full fighting chance to kick in.
Gadman
Posted by roobie on January 29, 2005, at 17:59:18
In reply to Re: Effexor withdrawal - very bad news » Fathe, posted by gadman on January 29, 2005, at 17:56:23
I stopped the Paxil and started Effexor in a hopes to LOSE the weight I gained on Paxil. I acutally felt MORE energy on Effexor.
Not sure what CYMBALTA is... (SSRI...?) but good luck and keep us posted; I'm very curious to hear how it all goes.
roobie
Posted by gadman on January 29, 2005, at 20:33:16
In reply to Re: Effexor withdrawal - very bad news, posted by roobie on January 29, 2005, at 17:59:18
Roobie,
Cymbalta is an SSNRI just like Effexor. They both inhibit reuptake of Serotonin and Nor-Epinehrine. My research tells me that Cymbalta works on Nor-Epinehrine at lower dosages than Effexor, which makes sense for me since I was only on a 75 mg dose of Effexor.
Cymbalta was suppose to be everything Effexor is but without the side-effects. I know some on the forum have found this to be true while others did not have luck with Cymbalta.
Right now I am still in the trial stage. I do know if it can produce the same results without the dangerous withdrawal effects I will be happy.
I also know I went this far with it, so I am going to stick it out a bit longer...
Gadman
Posted by Fathe on January 29, 2005, at 22:58:32
In reply to Re: Effexor withdrawal - very bad news » roobie, posted by gadman on January 29, 2005, at 20:33:16
Gadman,
I think you have a good plan. Good luck.
Posted by not2late4u on January 30, 2005, at 14:34:27
In reply to Re: Effexor withdrawal - very bad news » gadman, posted by Fathe on January 29, 2005, at 22:58:32
feel free to visit my thread. "renee tapering off effexor".
Posted by gadman on January 31, 2005, at 9:50:58
In reply to Re: another thread to help withdraw, posted by not2late4u on January 30, 2005, at 14:34:27
Thanks Renee for the post... I read thru your thread and still have to ask the same question I have had all along... How can you differentiate between Effexor withdrawal and Re-appearing symptoms of why you were taking Effexor in the first place? (Besides the Brain Zaps and nausea)
Your explanation of what put you on Effexor (Extreme Anxiety, Panic Attacks, Etc... ) could be me... It is exactly the reason I started Effexor to begin with.
gadman
Posted by Dkscully on January 31, 2005, at 17:28:32
In reply to Effexor withdrawal - very bad news, posted by janey on November 1, 1998, at 16:30:34
Hi all! I'm new here, and have read most of the posts in this thread. In one sense, they've provided me with some assurance that I'm not "crazy"--for which, I am more grateful than you all could possibly know.
I notice that some of you have an easy time going off Effexor. I honestly thought that would be me. Truthfully, it did nothing for me, and when I previously stopped Zoloft, I suffered few to no withdrawal symptoms, so I thought, "Yay! I can't wait to get this out of my system and try Wellbutrin!" There were several hitches in this plan.
First, I was prescribed Effexor by my family doctor. A wonderful fellow, but in retrospect, I don't believe he knew enough about these meds. When we decided that I would switch to Wellbutrin, I had to ASK him if I should wean off the Effexor. He told me, "Sure, take your 150 mg of Effexor every other day, instead of everyday, for a week. Then stop."
Apparently, this was not wise. But, I survived. I had a horrible first couple weeks, in terms of "brain zaps," dizziness, nausea, and my emotional state was just terrible. There were a few days during those couple weeks when I couldn't leave my house, I was just such a mess.
Along with going off Effexor way too quickly, I learned that switching to Wellbutrin is worse than switching to an SSRI when going off Effexor, due to the fact that Wellbutrin doesn't impact seratonin levels at all, so basically, I think it's pretty much as bad as not switching to anything, in terms of withdrawal? Or at least that's my understanding?
At any rate, it's been five weeks since I stopped Effexor totally and went up to my full dose (300 mg) of Wellbutrin XL. The brain zaps have almost gone away, but I'm feeling insane...
When I get up in the morning, I'm generally OK. I take the Wellbutrin, and I feel energized and ready to go. At approximately 3 p.m., however, I sort of crash--I get a headache, nausea, generally feel like crap. My new psychiatrist (yes, I left the clueless doctor) says it's more than likely the Effexor withdrawal, rather than the Wellbutrin, but I'm not sure if I should believe this, at five weeks Effexor-free...
Along with this afternoon/evening "crappy-feelingness," I'm still INCREDIBLY emotionally volatile. I cry about everything. I freak out when my boyfriend doesn't call me by 1 p.m. or so.
I'm in my last semester of my master's degree program, I have an assistantship, I need to start looking for post-graduate employment, and my brain, which (I swear) really used to work, doesn't seem functional anymore. I can't afford to "lose it."
So, anyone, is there hope? Have I destroyed my brain? Is there anyone who had these symptoms last 5 weeks, but eventually felt normal again?
I really apologize if I've repeated other people's questions... I'm sure I have. But, I would just really appreciate some reassurance, or at least some realistic expectations.
Thanks so much!
Posted by gadman on January 31, 2005, at 17:38:09
In reply to Re: Effexor withdrawal - very bad news, posted by Dkscully on January 31, 2005, at 17:28:32
I have been off of Effexor now for 9 Days and know where you are coming from.
I have to repeat though I can never tell what is Effexor Withdrawal and what is my original illness because they seem so similar.
Everything I read suggests that yes, 5 weeks is NOT uncommon for the withdrawal symptoms and YES everything well go back to normal. When you might ask? It depends on the individual sorry to say... But be assured everything will be fine!
Gadman
Posted by Dkscully on January 31, 2005, at 18:20:32
In reply to Re: Effexor withdrawal - very bad news » Dkscully, posted by gadman on January 31, 2005, at 17:38:09
> I have been off of Effexor now for 9 Days and know where you are coming from.
>
> I have to repeat though I can never tell what is Effexor Withdrawal and what is my original illness because they seem so similar.
>
> Everything I read suggests that yes, 5 weeks is NOT uncommon for the withdrawal symptoms and YES everything well go back to normal. When you might ask? It depends on the individual sorry to say... But be assured everything will be fine!
>
> Gadman
Thanks, I need that right now! I think I'm definitely worse than I was before all this fun with meds, which is scary. I used to sort of be the type of person who could "suffer silently," meaning that I always seemed to be together and got everything done that I needed to, no matter how much time I spent crying alone in my room or having panic attacks that very few people knew about. Now, I almost have to disclose my situation to people, because I just feel so bad and am so unproductive, particularly later in the day...I just picked up some Claritin, since some people say that relieves the symptoms, but I really don't want to be taking anything else on a regular basis--for those of you who used that, how long/often did you take those to relieve your symptoms?
I guess I should be proud of going 5 weeks, Effexor-free, but really I'm just scared.
Again, thanks... I'm so glad I found this place.
Posted by Raggy on January 31, 2005, at 18:37:04
In reply to Re: Effexor withdrawal - very bad news, posted by Dkscully on January 31, 2005, at 18:20:32
Please, please, please, whether you have had sucess on effexor or not, please let the FDA know how this drug affected you, whether when taking or getting off it. It will help maybe hundreds of others.
They won't know if people like us don't tell them.
Thank you.
Posted by gadman on January 31, 2005, at 20:49:00
In reply to Re: Effexor withdrawal - very bad news, posted by Dkscully on January 31, 2005, at 18:20:32
Hang in there.... I am sure it gets better as soon as your brain adjusts.
I wonder if part of your problem might be the lack of Seratonin. You went a while with a boost and now you are not getting that boost.
I'm getting my boost with Cymbalta and still having bad days... But slowly and surely the bad ones become fewer and fewer....
Gadman
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