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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 3 of 3. This is the beginning of the thread.
Posted by kerry B on June 30, 2000, at 6:50:15
Hi Abby,
Thanks for your post. You asked me for info on my history, well here goes as far as I know.
My symptoms appeard in 1995 when I was deeply depressed but didn't know it and the anger I felt was scarey. At that time I went to the G.P and she gave me some prothiedine anti-depressants (sorry, not to good on the med spelling) and about two months after that I over-dosed on them aiming to kill myself but alas, I'm still here.
I was in intensive care for a few days then came home after refusing to go into a psych hospital even though I was hearing voices etc.
I came home and things got worse. I developed psychosis and heard voices, had demons entering my body, answered the door when nobody was there and invited them in to chat and it goes on and gets worse.
My husband called the acute care team and they took me away and locked me up where they gave me valium and melerill? but I had side effects, so they put me on stelazine and aropax. I stayed on these and then had another episode, I was in and out of the hospital as many as four times (where once again I overdosed on valium, I had taken a supply in with me) then they put me on neulactil and tegratol which I stayed on for quite a while until I developed side effects from those (some mouth contortion problem). After that, they tried lithium and risperidal but again I developed muscle side effects then they put me on zyprexa and the same thing happened.
There is so much in between and other meds that I don't recall, it's not funny anymore.
My G.P. tried me on zoloft (I think it was called) but I got really sick on that and then I just stayed on the lithium for the last year and now I am as bad as what I was in the beginning, so I am back to the start with stelazine. Sometimes I wonder if they know what they are doing with me. I know things are not right but nobody has the time or nobody will listen and my family is going through hell with me!!!!!
I was diagnosed as schizoaffective but they don't seem to understand all that is involved with it. Is it some mysterious illness that they are at a loss with?
I have written a daily journal on how I feel but the psych disregarded it which totally destroyed my hope.
Sorry, I am rattling on but it is good to write. I like to write, it seems to be my only communication at the moment as I can't communicate with other people.
I hope I have explained enough, I can't really remember exactly how long I was on each med but over 5 years, it might give you some idea. I was horrified to see how many I have tried but to no avail really.
Well thanks Abby for taking the time out to listen.
Oh, the side effects from the stelazine are pacing, iritability in the legs and staring.
Thanks again, I'll get there. This is the best support I have at the moment!!!
Bye for now,
Kerry.
Posted by Johnturner77 on June 30, 2000, at 12:30:03
In reply to Phsychopharm team-Abby, posted by kerry B on June 30, 2000, at 6:50:15
.....I have written a daily journal on how I feel but the psych disregarded it which totally destroyed my hope......
>
He doubtless thinks its just "psychotic ravings" and not worth spending his time on. He probably doesn't have the insight anyway. Keep looking and hoping. The writing itself will help keep you keep going. Sometime someday someone will listen and symathize. Maybe even understand.Richard Bandler tells a story of a woman who was treated for twelve years with many relapses. She told him she couldn't tell what she thought and imagined from what actually took place. Richard said put a border around what you think then you can tell them apart in the future. She tried it and it worked for her. Its such a simple idea, but it made a big difference for her. Just the fear can be your worst enemy. Sometimes little strategies that help you stay grounded and connected can go a long way toward making life bearable.
You might look for R.D. Laing's books. He is an English Psychiatrist who has quite a different perspective on problems of your type.
Hang in there...Keep looking... Some say the real mark of insanity is to keep doing the same thing over and over, hoping for a different result.
Posted by paul on July 1, 2000, at 0:20:34
In reply to Re: Phsychopharm team-Abby, posted by Johnturner77 on June 30, 2000, at 12:30:03
sounds like you have another "dr. butthead" to deal with. his insensitivity is appalling. can you find another doc? my heart goes out to you-i wish there was more i could do. makes my journey look like a hayride!
pcl
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