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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 12 of 12. This is the beginning of the thread.
Posted by shellie on September 14, 2000, at 11:12:38
Scott, I can't remember exactly, but I know it was on a Friday in mid-September. Just wanted to wish you luck--I hope you connect with this pdoc and that he (she) has some great ideas for you--i.e., the one pill that helps everyone, has no side effects, and he has free samples of.
Seriously, I hope you learn a lot from the consultation and that it will turn out to help you. If I'm wrong on the week, forgive me. Good luck. Shellie
Posted by noa on September 14, 2000, at 15:28:09
In reply to Is Tommorrow Your Consultation in New York?-SLS, posted by shellie on September 14, 2000, at 11:12:38
I didn't know about this consult (have been offline, respiratory infection), but now that I do (thanks Shellie) I want to add my "good luck" wishes, too, Scott!
Posted by SLS on September 23, 2000, at 19:54:54
In reply to Is Tommorrow Your Consultation in New York?-SLS, posted by shellie on September 14, 2000, at 11:12:38
Hi Ladies.
I'm flattered that you guys were thinking of me.
Yes, I had my first appointment with the doctor in NYC a week ago Friday. I wish that I had made this change a few years ago. My old doctor had become focused on conducting clinical drug trials rather than investing his time and energy into treating his private patients. On the other hand, my new doctor seems committed to doing whatever is necessary to get me well. He said that my case was one of the worst he'd ever seen. (I'm so special). He also said that he will be consulting, formally and informally, with other doctors along the way. My case seems to be rather sophisticated (I'm so special).
This doctor is no stranger to difficult cases. He was the top recommendation of a Harvard research clinician specializing in TRD (treatment-resistant depression). He is on the staff at NYU (New York University Hospital). You can imagine how I felt when he described the severity of my condition as being "horrendous". That's a pretty horrendous word to hear used. I took it in stride, though. I cried.
He has a private office about a block away from the hospital. After my appointment, I met a drug rep in his waiting room who was looking to hawk some free samples of Celexa. Somehow, I managed to be discreet and asked him what he thought of the doctor. He replied that he was extremely intelligent. That don't mean crap to me. I'll take the passionate brilliance of an average Joe over the foolish indifference of a genius any day. When I pressed the rep for more information, he told me that the doctor's name always seems to come up at the professional meetings that he attends, and that he was considered the best in the area. I liked him. I think I have a good chance with him. It will be nice to feel confident enough to turn over control to the doctor for a change.
He wants to see how I react to Risperdal (risperidone) when added to the Parnate + desipramine + Lamictal combination I am currently taking. I had taken Risperdal once during a mixed-state mania, and wasn't too happy with the way I felt after a single dose. I remember becoming depressed. Perhaps this was simply an "unmasking" of the depressive aspect of the mixed-state. Along similar lines of thinking, I had previously been contemplating combining Nardil with Zyprexa. Another cool thing he said is that there were a lot of drug combinations that I haven't tried yet. Phew. So far, I've been on 41 different drugs in 59 combinations. 60 is a nice round number to stop at / begin at.
Your concern and support feels awfully nice. Thanks.
- Scott
Posted by noa on September 24, 2000, at 14:53:31
In reply to Re: Is Tommorrow Your Consultation in New York?-SLS, posted by SLS on September 23, 2000, at 19:54:54
Hey, Scott! Yes, you are special, but not just because of your "horrendous" case of TRD.
You sound hopeful, which is so great to see, as you had sounded so discouraged.
I am so proud of you for taking the step of consulting this new doc.
There are new combos, and it is possible that combos you tried in the past, could actually work better this time. I know that if I had gone by how I felt on serzone during the first 3-4 weeks, I wouldn't have stayed with it and would have assumed that it was not effective for me. But the initial effects went away and it did turn out to be a good ingredient in my recipe.
Most important, it sounds like this doc is listening to you and wants to put his mind and heart into the task of helping you to find a good combo that will work. How refreshing!!
Posted by noa on September 24, 2000, at 14:54:46
In reply to Re: Is Tommorrow Your Consultation in New York?-SLS, posted by SLS on September 23, 2000, at 19:54:54
PS--
I am beginning to feel like the motto of treating our illnesses is "leave no stone unturned".
Posted by Phil on September 24, 2000, at 15:46:27
In reply to Re: Is Tommorrow Your Consultation in New York?-PS, posted by noa on September 24, 2000, at 14:54:46
Good luck Scott. I hope the best for you.
I know what you mean about having a doc that makes some decisions for a change.Phil
Posted by shar on September 24, 2000, at 16:41:38
In reply to Re: Is Tommorrow Your Consultation in New York?-SLS, posted by SLS on September 23, 2000, at 19:54:54
Scott: This is such good and wonderful news! I am encouraged by anyone who can find a good pdoc. It sounds like your chances of success have increased a hundred fold.
Will you please keep us updated on how things go?
Also, how did you find this great doc?
Thanks,
Shar> Hi Ladies.
>
> I'm flattered that you guys were thinking of me.
>
> Yes, I had my first appointment with the doctor in NYC a week ago Friday. I wish that I had made this change a few years ago. My old doctor had become focused on conducting clinical drug trials rather than investing his time and energy into treating his private patients. On the other hand, my new doctor seems committed to doing whatever is necessary to get me well. He said that my case was one of the worst he'd ever seen. (I'm so special). He also said that he will be consulting, formally and informally, with other doctors along the way. My case seems to be rather sophisticated (I'm so special).
>
> This doctor is no stranger to difficult cases. He was the top recommendation of a Harvard research clinician specializing in TRD (treatment-resistant depression). He is on the staff at NYU (New York University Hospital). You can imagine how I felt when he described the severity of my condition as being "horrendous". That's a pretty horrendous word to hear used. I took it in stride, though. I cried.
>
> He has a private office about a block away from the hospital. After my appointment, I met a drug rep in his waiting room who was looking to hawk some free samples of Celexa. Somehow, I managed to be discreet and asked him what he thought of the doctor. He replied that he was extremely intelligent. That don't mean crap to me. I'll take the passionate brilliance of an average Joe over the foolish indifference of a genius any day. When I pressed the rep for more information, he told me that the doctor's name always seems to come up at the professional meetings that he attends, and that he was considered the best in the area. I liked him. I think I have a good chance with him. It will be nice to feel confident enough to turn over control to the doctor for a change.
>
> He wants to see how I react to Risperdal (risperidone) when added to the Parnate + desipramine + Lamictal combination I am currently taking. I had taken Risperdal once during a mixed-state mania, and wasn't too happy with the way I felt after a single dose. I remember becoming depressed. Perhaps this was simply an "unmasking" of the depressive aspect of the mixed-state. Along similar lines of thinking, I had previously been contemplating combining Nardil with Zyprexa. Another cool thing he said is that there were a lot of drug combinations that I haven't tried yet. Phew. So far, I've been on 41 different drugs in 59 combinations. 60 is a nice round number to stop at / begin at.
>
> Your concern and support feels awfully nice. Thanks.
>
>
> - Scott
Posted by Kath on September 25, 2000, at 9:18:26
In reply to Re: Is Tommorrow Your Consultation in New York?-SLS, posted by SLS on September 23, 2000, at 19:54:54
Hi Phil
Sounds like great news about your new doc. Are you going to be having counselling or therapy as well as the medications?
I commend you on your perseverence and let's hope that 60 is the number!!!
Thinking of you.
Kath
> Hi Ladies.
>
> I'm flattered that you guys were thinking of me.
>
> Yes, I had my first appointment with the doctor in NYC a week ago Friday. I wish that I had made this change a few years ago. My old doctor had become focused on conducting clinical drug trials rather than investing his time and energy into treating his private patients. On the other hand, my new doctor seems committed to doing whatever is necessary to get me well. He said that my case was one of the worst he'd ever seen. (I'm so special). He also said that he will be consulting, formally and informally, with other doctors along the way. My case seems to be rather sophisticated (I'm so special).
>
> This doctor is no stranger to difficult cases. He was the top recommendation of a Harvard research clinician specializing in TRD (treatment-resistant depression). He is on the staff at NYU (New York University Hospital). You can imagine how I felt when he described the severity of my condition as being "horrendous". That's a pretty horrendous word to hear used. I took it in stride, though. I cried.
>
> He has a private office about a block away from the hospital. After my appointment, I met a drug rep in his waiting room who was looking to hawk some free samples of Celexa. Somehow, I managed to be discreet and asked him what he thought of the doctor. He replied that he was extremely intelligent. That don't mean crap to me. I'll take the passionate brilliance of an average Joe over the foolish indifference of a genius any day. When I pressed the rep for more information, he told me that the doctor's name always seems to come up at the professional meetings that he attends, and that he was considered the best in the area. I liked him. I think I have a good chance with him. It will be nice to feel confident enough to turn over control to the doctor for a change.
>
> He wants to see how I react to Risperdal (risperidone) when added to the Parnate + desipramine + Lamictal combination I am currently taking. I had taken Risperdal once during a mixed-state mania, and wasn't too happy with the way I felt after a single dose. I remember becoming depressed. Perhaps this was simply an "unmasking" of the depressive aspect of the mixed-state. Along similar lines of thinking, I had previously been contemplating combining Nardil with Zyprexa. Another cool thing he said is that there were a lot of drug combinations that I haven't tried yet. Phew. So far, I've been on 41 different drugs in 59 combinations. 60 is a nice round number to stop at / begin at.
>
> Your concern and support feels awfully nice. Thanks.
>
>
> - Scott
Posted by Anna P. on September 25, 2000, at 11:58:44
In reply to SLS: I knew you were special!, posted by shar on September 24, 2000, at 16:41:38
> Scott, best luck to you!
Do you mind asking about your Pdoc name?
The reason of question is that I also travel to N. York to see my Pdoc.
My case also seems very difficult, and my options are shrinking quickly.
It has to do with developing quick tolerance to meds.
I was wandering if you'll find your Pdoc helpful in the extremely difficult case?
Thanks,Anna P.
>
>
>
>
> >
Posted by SLS on September 25, 2000, at 14:40:56
In reply to Re: SLS: I knew you were special!, posted by Anna P. on September 25, 2000, at 11:58:44
> > Scott, best luck to you!
> Do you mind asking about your Pdoc name?
> The reason of question is that I also travel to N. York to see my Pdoc.
> My case also seems very difficult, and my options are shrinking quickly.
> It has to do with developing quick tolerance to meds.
> I was wandering if you'll find your Pdoc helpful in the extremely difficult case?
> Thanks,
>
> Anna P.
> >
> >
> >
> >
> > >
Hi Anna.I'd be happy to discuss things with you. Unfortunately, your description of quickly developing a "tolerance" to medication is all too familiar to me.
You can email me if you'd like. I'd be interested in knowing what doctor you are currently seeing and who you have seen in the past.
- Scott
Posted by ksvt on September 25, 2000, at 18:35:49
In reply to Re: SLS: I knew you were special! » Anna P., posted by SLS on September 25, 2000, at 14:40:56
> > > Scott, best luck to you!
> > Do you mind asking about your Pdoc name?
> > The reason of question is that I also travel to N. York to see my Pdoc.
> > My case also seems very difficult, and my options are shrinking quickly.
> > It has to do with developing quick tolerance to meds.
> > I was wandering if you'll find your Pdoc helpful in the extremely difficult case?
> > Thanks,
> >
> > Anna P.
> > >
> > >Scott - every time I get down about feeling that I haven't found a drug combo that can help me towards a more lasting remission, I think about some of the people on this site. It's humbling to watch such perseverance in action. I hope this guy is as committed to his job as you are to your health. Congrats ksvt
> > >
> > >
> > > >
>
>
> Hi Anna.
>
> I'd be happy to discuss things with you. Unfortunately, your description of quickly developing a "tolerance" to medication is all too familiar to me.
>
> You can email me if you'd like. I'd be interested in knowing what doctor you are currently seeing and who you have seen in the past.
>
>
> - Scott
>
> sl.schofield@att.net
Posted by shar on September 25, 2000, at 20:46:34
In reply to SLS: I knew you were special!, posted by shar on September 24, 2000, at 16:41:38
Scott,
I do not want in any way to diminish the horrible experiences you've had, but there were points in your post about the NY visit that really made me laugh. I appreciate droll humor the most. And, the description of the visit was so vivid, you are really a good writer.Hope you don't mind I had nice laughs--but never lost sight of the primary importance of your successful visit. I loved the "I took it in stride" comment, because it reminded me of me at times when something just comes right out of the blue. Whatcha gonna do.....
Tres special, SLS, Tres droll,
Shar
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