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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 2 of 2. This is the beginning of the thread.
Posted by Ame Sans Vie on September 18, 2003, at 13:23:12
Okay, it's definitely time for me to go on the Xyrem to get rid of this fibromyalgia pain which is becoming worse every day. It's worked for that purpose before, but that was at a time I could afford to pay for it. I called the Xyrem Success Hotline, and they told me Medicaid doesn't cover it unless it's prescribed for narcolepsy. So I was hoping someone may have some clue has to whether my doctor could argue the necessity of this medication with Medicaid and have them, at the very least, *partially* pay for it? As for the necessity, that's certainly no lie... nothing works like GHB, and I'd surely be able to reduce my Ultram and Klonopin doses and most likely discontinue the DextroStat if I begin to take it.
So anyway, I'm going to see a pain specialist in East Houston on Monday to whom I was referred by my pdoc yesterday. I told him about the worsening of the fibromyalgia, and due to my family's history of chemical sensitivity, as well as the fact that in retrospect all serotonergic drugs made my muscles ache, he thinks it may be the Ultram. He wants me to try Subutex, but he's not licensed to prescribe it. And I really would like to bring up the Xyrem idea to the pain doc, so any information would be greatly appreciated. Ugh... we're moving *again* this month (we just moved here in November). My near-bed-ridden, achey, burning, stinging body can't take it without some kind of help. I went to the minor care center at the hospital today, and the doctor told me that because it wasn't an emergent problem, he couldn't give me anything even just to hold me over till Monday. What a prick. :-(
Posted by utopizen on September 20, 2003, at 14:22:36
In reply to Could my doc sway Medicaid to pay for Xyrem?, posted by Ame Sans Vie on September 18, 2003, at 13:23:12
You may want to know that Orphan Mediclal is starting to enlist patients in a study of their fibro trials.
Maybe if you searched to see if there's any in Texas? You'd get free medicine, the only med they allow you to take is a stim I think, so be cautious of that... it is a study. Then they give you free medicine for a certain period after the study, ussually 6 months, enough to at least make an appeal.
This is the end of the thread.
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