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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 5 of 5. This is the beginning of the thread.
Posted by socialdeviantjeff on December 10, 2003, at 1:07:12
My pdoc just added Trilafon to my cocktail to help with mild hallucenations. I hear constant music, sounds that aren't there, see stuff moving in my peripheral vision, rarely I feel creepy-crawlies. Not major, but enough to make my pdoc look worried and that's hard to do. Most of this stuff has been going on for years. I never mentioned it before for 2 reasons; one, it's been going on for years and I'm kinda used to it, albeit annoyed sometimes. Two, it's embarrassing to talk about.
Sooo... any thoughts on this new situation are welcome. Any Trilafon stories out there, good or bad?
Current cocktail:
150 mg Effexor
300 mg Tegretol
2 mg Trilafon
Posted by Camille Dumont on December 10, 2003, at 12:50:17
In reply to Just got Trilafon (Perphenazine) am I going nuts? , posted by socialdeviantjeff on December 10, 2003, at 1:07:12
Hi there, I can't help you with the medication although I can totally relate to your symptoms. I sometimes see things that aren't there or misinterpret what I see. For example, from afar, the reflection of the light on a car will look like a person ... a discarded bag will appear as a moving cat and instead of reading "Think of your children ... recycle" ... I'll see "Recycle your children". Sometimes its funny but sometimes its scary.
Pdoc says they aren't real hallucinations because I know they are not real but its disturbing nontheless and makes me afraid that people will find out.
Unfortunately as of yet, the things that they prescribed didn't work out well for me. Doc suggested Zyprexa but after Seroquel and Trazodone, I'm sort of afraid to try it. I'm also on Effexor xr.
Posted by socialdeviantjeff on December 11, 2003, at 1:16:11
In reply to Re: Just got Trilafon (Perphenazine) am I going nuts? , posted by Camille Dumont on December 10, 2003, at 12:50:17
Yeah... "Recycle your children" That's an interesting one. What I see and hear can be pretty disturbing. For instance, shadows moving when they should not, black silouettes of people and cats running, sometimes things seem to float. I hear old conversations, like when you walk into a room, it's dark, nothing making noise, no people, I'll hear the TV or hear people talking. Then there's the radio in my head. Always tuned the the most annoying station and turned all the way up. I can rationalize that the hallucenations aren't what's really happening. Anyway, it had my pdoc pretty concerned.
So how does the Effexor work for you? After 6 weeks, I think I'm just more irritable.
Posted by Camille Dumont on December 11, 2003, at 11:33:55
In reply to Well.... » Camille Dumont, posted by socialdeviantjeff on December 11, 2003, at 1:16:11
Well ... my reaction to Effexor has been both good and bad. The side effects from starting it were not that bad ... but now at 225 ... it just seems to have stopped working. It did nothing for the visions but I guess for a while it alleviated the depression. I only wish he would have told me how addictive it is and how hard it is to get off from.
I went to see my doc and he suggested to go up to 300 and take Zyprexa instead of Seroquel ... but I dunno ... I'm seriously considering just stopping meds altogether. I mean I still have suicidal thoughts ... I still cry ... I still have ups and downs so I'm not quite sure that I' feel any different ... aside from being a bit more nervous. And those anti-psychotics just scare me. They turned me into a zombie when I took them so I prefer my strange visions.
I get the repetitive music sometimes as well. Like if I'm in a store and there is some song and then it stops, I'll keep hearing some parts of it repeating itself over and over again in my head ... usually only a sentence or two. Its majorly annoying ... same with conversations from the past taht pop up for no reason ... I hear them over and over like a broken record.
I say my therapist and she is going to call the psychiatrist ... I'm lucky she's a very nice one ... unlike my doctor who doesn't seem to know what he's doing...
Posted by socialdeviantjeff on December 12, 2003, at 23:43:12
In reply to Re: Well...., posted by Camille Dumont on December 11, 2003, at 11:33:55
That seems to be my effexor story so far... Lots of ups and downs with a raise in overall anxiety. A lot of times I'm just crawling off the wall! And it is addictive. My pdoc didn't want to use it, but I've tried a long list of stuff and my options are thinning rapidly. So far the only thing not tried are Buspar, MAOI's and Benzoes.
As far as antipsychotics, this is the first one. There is no difference with my hostility or hallucenations as of yet. I haven't cried in a long time. I just don't have the energy for it. I also have suicidal ideation and my imminent threat level is quite high. For me, it's better to be a zombie than off meds. I hate it, but whadayagonnado?
Good luck with your pdoc. Doctors are like thrift store merchandise. There are definite buried treasures, but sometimes you have to wade through a lot of garbage.
Good luck. If you want to talk, socialdeviantjeff@yahoo.com
This is the end of the thread.
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