Psycho-Babble Medication Thread 12459

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Trying to quit

Posted by Markku on April 6, 2004, at 10:03:30

In reply to Re: Dr says no withdrawal - ha!, posted by ku4ns on April 6, 2004, at 9:05:43

I started taking Effexor XR about a year ago for panic disorder. At the time I thought it was a miracle because it worked so well. However, it seemed to sort of dull my thoughts, which was a reasonable trade-off at the time. But lately I've become more and more unmotivated about doing anything, and have just been feeling so disconnected from others. I've tried quitting the medication before, but mistook the withdrawal symptoms for signs that the panic disorder was returning. Since I found this message board a few days ago, I now know that those symptoms are not coming from my original problem, and that they will eventually go away. So I took my last dose on Saturday (I was only taking 75 mg. Plus, before giving me the tapering doses my doctor wants me to go through a number of sessions with a psychologist, which would take too long for someone as impatient as I am. And I don't want to feel the way I do any longer). If panic attacks do come back, I will start back on something, but I'll request something that doesn't work on norepinephrine.

I can't say that I know what others who were taking larger doses of Effexor go through, but the effects for me so far are large enough to keep me from driving. So far the most disconcerting thing are those "brain shivers", or whatever you want to call them. It's like your brain can only process a certain amount of motion, and anything over the limit catches you by surprise. The data just starts piling up until you slow down and let your brain catch up. Last night my body temperature seemed to be higher than normal, and I was sweating a lot (even towards the morning when my body temperature had dropped). I also was very thirsty and went to the bathroom more often than normal. I also had a very detailed dream. I woke up about 4:30 (really about 3:30 because of the time change) and felt fully alert. Normally I wake up at about 6:00-6:30 and have to drag myself out of bed. I finally went to bed about half an hour later, and strangely enough had a continuation of my previous dream. I only mention this because others on this board talk about having very detailed dreams as well. I have had some other symptoms (nausea, stomach cramping, erratic thoughts). But those aren't anything that would make me start back on Effexor. Some people mention having crying spells for no apparent reason. So far I've only had these while on Effexor, not when trying to quit. But I'm hoping the withdrawal doesn't get worse and make me want to give up.

Anyway, I'd just like to say thanks to everyone who's shared their experiences here because it's given me the determination to get off this stuff, even if it means going through some very troubling experiences.

 

Re: Dr says no withdrawal - ha! » scrawller

Posted by jiggitykid on April 6, 2004, at 12:19:26

In reply to Dr says no withdrawal - ha!, posted by scrawller on April 5, 2004, at 22:04:42

Good for you!! You'll probably have a stack that goes to the ceiling!!

If a doctor is unaware of the withdrawal effects *even from a tiny dose,* then it is our job to educate them. The "system" isn't going to.

Just know that you are not alone - that what you are expriencing is normal. Tell your doctor that she had better get educated FAST before this happens to anyone else. Search the archives for the petition here. I urge you to sign it. Maybe all of our voices combined can make someone listen and stop this abuse of patients. Take care of yourself and give yourself time to get this out of your system. It takes some time, so please be gentle with yourself, and know that we are all here in your corner!!


> i've been slowly tapering off effexor for the past few weeks. i've been totally off since thursday. have all the symptoms of withdrawal - naseau, crying fits, electric shocks, dizzy, headache, shallow breathing, etc.
> i called to check in with psych today, and told her i was having withdrawal. she told me it was impossible because i was on 37.5 mg for a week before dropping and that ensures i won't have withdrawal. am i crazy? i can't even function. i cried in my office for an hour after she told me this.
> she then said, "well, maybe you should start taking it again." i actually like my pscyh, i don't know if she was having a bad day or what, but the reason why i'm stopping is because it makes me manic. SSRIs are not my friend.
> i feel like im crazy. im happy i found this board though. i want to print out every message and leave it on her desk.

 

Re: OFF after taper.......still sick..... » anxiety66me

Posted by jiggitykid on April 6, 2004, at 12:21:53

In reply to Re: OFF after taper.......still sick....., posted by anxiety66me on April 5, 2004, at 19:50:13

I understand your frustration!! I could barely finish a sentence without bursting into tears. Hang in there - it does get better! Just give yourself permission to be weepy for a while. Take care of yourself.

> I cried at work and looked like an idiot. I was only on the stuf for a month or so.

 

Re: Trying to quit » Markku

Posted by jiggitykid on April 6, 2004, at 12:31:45

In reply to Trying to quit, posted by Markku on April 6, 2004, at 10:03:30

Bless you. Thanks for sharing. Your "dream thing" happened to me while withdrawing. I felt like I was having two lives - one when I was awake and one when I was asleep, because the dreams would pick up right where they left off. It was disconcerting, to say the least.

The disconnection and lack of motivation nearly ended my marriage. I couldn't do anything about it. I thought it was me, until I found this site and saw that it was this hell-pill that was making things worse, instead of better.

I can't imagine the lack of conscience that those who are suppressing this information must have.

The "zaps," or brain-shivers, will go away, but it takes time. I've not been taking the effexor since before Thanksgiving, and the rare one will sneak up and surprise me.

Take care, and thanks again for your story. I know that all of us here sharing our stories will be of invaluable help to those who are just finding out about this horrible drug.

Have you signed the petition?
http://www.PetitionOnline.com/effexor/petition.html
So far, there are 4528 signatures. That says that we are NOT alone, and that we are not a "noisy minority."

 

Re: Trying to quit

Posted by ku4ns on April 6, 2004, at 13:09:20

In reply to Trying to quit, posted by Markku on April 6, 2004, at 10:03:30

My last dose of effexor was also Saturday, but I do have prozac(20mg) onboard for this attempt. I did, however, drop to the 37.5mg level before trying to quit. Stopping at the 75mg level, the problems became unbearable so I would take a another effexor and the problems would go away. I have not made mention of dreams, but I have been having them much more often than before. Good luck.

 

Re: Dr says no withdrawal - ha! » ku4ns

Posted by spoc on April 8, 2004, at 19:50:08

In reply to Re: Dr says no withdrawal - ha!, posted by ku4ns on April 6, 2004, at 9:05:43

I just jumped in here, and I see that you weren't on Effexor for long. But I'm sure you've heard what the withdrawal can be like for some people after time.

When I told my former pdoc that I thought Ritalin was making me feel crummy, and that I'd like somewhat more of an AD effect too, the only thing he wanted to consider was Effexor. Even though there are many things I haven't yet tried that would have had less implications if they did prove suitable. I had already read before he suggested it that realistically, a lot of people do have considerable problems of various natures with Effexor. So I mentioned that I'd heard that for many, getting off it is a hellacious and sometimes unachievable task. He looked at me as if he had never heard this in his entire life, and said merely, "Uh, no, not at all. You just have to come off it slowly."

That was it. I would have been more likely to try it if a doc was straight with me about the very real and not unusual problems that a med can cause. In general I research, evaluate and then make decisions -- and I know plenty well that nothing will be perfect. He should have known that omitting facts to get me to do what he wanted wouldn't be an effective way to approach me.

Anyway! Glad you're coming along well, and as always, want to add that I don't mean to ever discourage anyone. I'm commenting on the doc, not the med really. I know Effexor is indeed worth it to -- and valued by -- many.

 

Re: that was 4 all, didn't see rest of thread : ) (nm)

Posted by spoc on April 8, 2004, at 19:54:43

In reply to Dr says no withdrawal - ha!, posted by scrawller on April 5, 2004, at 22:04:42

 

Discontinuation Syndrome

Posted by Markku on April 9, 2004, at 14:22:28

In reply to Re: Effexor withdrawal symptoms!, posted by Dr...Not! on October 14, 2003, at 14:37:42

I'm on the 6th day of going cold turkey off of Effexor XR 75mg. So far the withdrawal symptoms haven't gone away, but they don't seem so bad in the morning, or after a nap. In doing some more internet research on this topic I found the following article that discusses 'SSRI Discontinuation Syndrome' :

http://bipolar.about.com/cs/antidep/a/0207_ssridisc1.htm


The article mentions that at least some of the symptoms may be due to reduced levels of the neurotransmitter acetylcholine. It recommends taking choline, lecithin, and B complex vitamins to help increase acetylcholine levels. I have not tried this yet, but plan to do so tonight. I'll let everyone know if it makes any difference. I know Effexor isn't an SSRI, but an SNRI. But I'm hoping it's just the acetylcholine levels which are out of whack.


 

Re: Discontinuation Syndrome » Markku

Posted by feverhawk on April 10, 2004, at 14:08:56

In reply to Discontinuation Syndrome, posted by Markku on April 9, 2004, at 14:22:28

Can't tell you how much I appreciate that link :O) I've been in the hospital for two weeks and went from 225 mg of Effexor to NONE over a five day span. The nurses and the psych didn't seem to appreciate the fact that I'd have withdrawal symptoms. I kept hearing about how stress can do that kind of thing to you... or maybe I did "have a flu."

I finally got to talk to my GP who hadn't been around for a few days and he was the only one who seemed to get it. I got out on an afternoon pass the other day and went and bought some Gravol (Kinda like Dramamine, but Canadian, eh?) ;O)

It's helped a lot and some of the symptoms seem to be lessening. But most are still there.

It's good to know I'm not the only one to be feeling this and the link was very helpful.

Thanks again :O)
It's back to the hospital for me, but armed with a printout.

 

Re: Discontinuation Syndrome

Posted by Markku on April 13, 2004, at 1:14:52

In reply to Re: Discontinuation Syndrome » Markku, posted by feverhawk on April 10, 2004, at 14:08:56

> Can't tell you how much I appreciate that link :O) I've been in the hospital for two weeks and went from 225 mg of Effexor to NONE over a five day span.


Glad it helped. I hope you're feeling better soon. It's been a little over a week since I quit now. I'm feeling a lot better now. I have been taking choline and lecithin twice a day, but don't know if it has any effect because improvements are gradual. If you get to the point where moving around doesn't make you ill, I really recommend mild exercise (if possible), or just doing something outside to keep your mind off things (for me it was planting vegetables in my garden). Anything to keep you from dwelling on the depressing thought of how long the symptoms will last.

I have an appointment with my doctor tomorrow to get a prescription for something else, in case my panic attacks come back. But I don't like the side effects of any of the drugs I'm reading about. Starting with the worst one first though, I think I'll do my own research before taking the next one I'm prescribed.

 

Re: Discontinuation Syndrome

Posted by jpmjcem on April 13, 2004, at 8:00:37

In reply to Re: Discontinuation Syndrome, posted by Markku on April 13, 2004, at 1:14:52

> > Can't tell you how much I appreciate that link :O) I've been in the hospital for two weeks and went from 225 mg of Effexor to NONE over a five day span.
>
>
> Glad it helped. I hope you're feeling better soon. It's been a little over a week since I quit now. I'm feeling a lot better now. I have been taking choline and lecithin twice a day, but don't know if it has any effect because improvements are gradual. If you get to the point where moving around doesn't make you ill, I really recommend mild exercise (if possible), or just doing something outside to keep your mind off things (for me it was planting vegetables in my garden). Anything to keep you from dwelling on the depressing thought of how long the symptoms will last.
>
> I have an appointment with my doctor tomorrow to get a prescription for something else, in case my panic attacks come back. But I don't like the side effects of any of the drugs I'm reading about. Starting with the worst one first though, I think I'll do my own research before taking the next one I'm prescribed.
>
> I've been off for a week as well..and the emotions are unbelievably bad. I have gotten in two verbal fights within the last few days at the grocery store and then walmart. Anyways... the physcial side effects have finally went away and what helped me was taking BUspar and Klonopin. This has been a godsend and others the emotional side I realize will just take time to gradually go away. This Effexor stuff is a NIGHTMARE- but at least we all have each other to relate to and have support.

 

How long on FXR before withdrawal?

Posted by Seagull_25920 on April 13, 2004, at 9:49:02

In reply to Re: Discontinuation Syndrome, posted by jpmjcem on April 13, 2004, at 8:00:37

Wondering how long people here were on Effexor before going off the meds and experiencing withdrawals and/or brain shivers? I have only been on the med for three or four months, but coming off (tapered from 300mg to 75mg, then cold turkey) has still resulted in symptoms bad enough to keep me from working effectively.

I hear people saying they're still experiencing symptoms years out from quitting, and wondered if these are long-term users or short-term? (amazing how much it sounds like an illegal drug forum / 12-step forum at this point...)

 

Re: How long on FXR before withdrawal? » Seagull_25920

Posted by scrawller on April 13, 2004, at 15:11:15

In reply to How long on FXR before withdrawal?, posted by Seagull_25920 on April 13, 2004, at 9:49:02

i was only on effexor for a few months as well. 300 mgs max then to 150 then to 75 then to 37.5 for a week then cold turkey. withdrawal was horrible for a week then slowly got better. i feel okay now. not perfect. not myself. but okay. i can function, i can go to work, and i feel like there's hope.
i still have bouts of crying, i still get angry for no reason, but the brian jolts have subsided dramatically, and i feel a bit more in control. it's been 12 days now since i've completely stopped.

 

Re: Dr says no withdrawal - ha!

Posted by scrawller on April 13, 2004, at 15:20:46

In reply to Re: Dr says no withdrawal - ha! » scrawller, posted by jiggitykid on April 6, 2004, at 12:19:26

thanks.
i'm at day 12 now. feeling more myself. not quite yet, but more. have a new psych. ended up at my regular doctor's office with the confirmation that it was most likely withdrawal and that i was coming off it way too soon. ended up upping clonapin in the evenings so that i could sit still, but basically fumbling and crying my way through a week.
in the end, i don't think effexor (or any type of seratonin effecting drug is best for me). that's why i went off of it. i'm bipolar, not depressed, and at this point, don't really need an antidepressent in my mix; a mood stabilizer alone should work. coming off of effexor has been horrible for me, especially after being told by my psych that what i was feeling was not withdrawal. i felt like i really was losing my mind for no reason. more than once i thought i was going to end up in the hospital.
but, 12 days later (i feel like an alcoholic!) i feel okay. i understand that effexor works for some people, it just didn't for me. and it angers me more that i wasn't warned how difficult it would be to discontinue use. my primary care physician said that coming off of effexor can be as hard as coming off of paxil for a lot of patients, and that really just scares me.
anyway, i think i'm over the hump. for those of you in the midst of it. hang in there. for those of you who effexor is working for, i'm glad you've been lucky enough to find something. for those of you still looking, just be sure to ask all the questions that you need answered before starting a new med, and evaluate what's important to you. remember that all our bodies work different - and just because something didn't work for someone else doesn't mean it won't work for you.

 

effexor withdrawal

Posted by BitchChick on April 15, 2004, at 8:52:49

In reply to effexor withdrawal, posted by djsarah on February 20, 2004, at 10:15:03

Hey, I have a few questions for you guys, I'm hoping to get some opinions. A few years ago I was diagnosed with Agoraphobia/Mild Social Anxiety/Mild depression and was put on Prozac for 2 years at 80mg. Everything was good during that time with no side affects but the Prozac started losing effectiveness so I tapered myself off of it. I was put on Effexor XR at 35mg I think it was. This was about 6 months ago. I started getting depressed and I knew it was from the Effexor so I went to see my doctor and he told me I just need my dosage upped. At 75mg I was getting more depressed, my anxiety was gone but I couldn't handle the depression so I stopped taking it. I got worse, so I went to see another dr. and she told me that I shouldn't have stopped taking it that I just needed my dosage upped more. I'm currently at 225mg and I went to see her again because of the bad side affects I have. Severe depression, suidical thoughts (just thoughts, i would never act on it cuz I have a son) My fingers are always falling asleep on me, body jerks, nightmares (my r/m says i scream in my sleep often), confusion, and what some of you have described as "brain shivers", but it's the moods that bother me the most. I cry for no reason, I can be watching a tv show (and laugh at the funny parts), and I will cry during the commercials. I freak out with anger outbursts often as well. So, I went back to my dr. and told her that I want off of this medication that I am way too depressed, I even cried to her that I need something else cuz when I tapered off it before things were worse, and I need something to help me through that. She told me that she doesn't think it's the effexor and thinks it's best for me to see a psychiatrist and he will handle it, and to keep taking it until the 26th when I see him. I know a lot of you had bad withdrawal from this med, but has anyone experienced this when taking it? Also, I would like to hear about other drugs that have had possitive effects when switching from effexor. I think I need to do some research on my own and hear some opinions from ppl who have taken certain drugs so I know what to ask for and know what I'm getting into before I accept anything a dr. gives me again. I also realize that drugs affect ppl differently but personal experiences would be greatly appreciated. Feel free to email me at bchick22@hotmail.com I'm also glad I found this site cuz for a while I was thinking it was just me going crazy, now I know for sure this is just a bad medication.
Opinions greatly appreciated
bchick22@hotmail.com

 

Re: effexor withdrawal » BitchChick

Posted by jiggitykid on April 15, 2004, at 8:58:54

In reply to effexor withdrawal, posted by BitchChick on April 15, 2004, at 8:52:49

Sounds to me like you need a new doctor, and that this doc needs educating FAST. She needs to be referred to this site and given stacks of the testimonies here of how Effexor really works. You aren't crazy and you aren't alone. Look for a better doc, 'cause this one isn't up to speed on this drug. Hang in there. I suggest you do a lot of reading through the archives here about this drug so you can decide your best move. Again, you need a doctor who knows Effexor and understands it.


> Hey, I have a few questions for you guys, I'm hoping to get some opinions. A few years ago I was diagnosed with Agoraphobia/Mild Social Anxiety/Mild depression and was put on Prozac for 2 years at 80mg. Everything was good during that time with no side affects but the Prozac started losing effectiveness so I tapered myself off of it. I was put on Effexor XR at 35mg I think it was. This was about 6 months ago. I started getting depressed and I knew it was from the Effexor so I went to see my doctor and he told me I just need my dosage upped. At 75mg I was getting more depressed, my anxiety was gone but I couldn't handle the depression so I stopped taking it. I got worse, so I went to see another dr. and she told me that I shouldn't have stopped taking it that I just needed my dosage upped more. I'm currently at 225mg and I went to see her again because of the bad side affects I have. Severe depression, suidical thoughts (just thoughts, i would never act on it cuz I have a son) My fingers are always falling asleep on me, body jerks, nightmares (my r/m says i scream in my sleep often), confusion, and what some of you have described as "brain shivers", but it's the moods that bother me the most. I cry for no reason, I can be watching a tv show (and laugh at the funny parts), and I will cry during the commercials. I freak out with anger outbursts often as well. So, I went back to my dr. and told her that I want off of this medication that I am way too depressed, I even cried to her that I need something else cuz when I tapered off it before things were worse, and I need something to help me through that. She told me that she doesn't think it's the effexor and thinks it's best for me to see a psychiatrist and he will handle it, and to keep taking it until the 26th when I see him. I know a lot of you had bad withdrawal from this med, but has anyone experienced this when taking it? Also, I would like to hear about other drugs that have had possitive effects when switching from effexor. I think I need to do some research on my own and hear some opinions from ppl who have taken certain drugs so I know what to ask for and know what I'm getting into before I accept anything a dr. gives me again. I also realize that drugs affect ppl differently but personal experiences would be greatly appreciated. Feel free to email me at bchick22@hotmail.com I'm also glad I found this site cuz for a while I was thinking it was just me going crazy, now I know for sure this is just a bad medication.
> Opinions greatly appreciated
> bchick22@hotmail.com

 

Post-w/d psych symptoms.....pls help!

Posted by Laurajean on April 15, 2004, at 21:31:14

In reply to effexor withdrawal, posted by BitchChick on April 15, 2004, at 8:52:49

Hi everyone,
First, thanks for that link, whoever posted it. : ) This turned out long....please hang in there til the end of it!

I am on probably the second or third week since stopping Effexor XR (300mg) after a two month taper. The physical symptoms are lessening--not gone, but better....thank goodness.

However, I would say I am experiencing some pretty intense depressive symptoms....I have crying jags frequently, irritability, and yes, self-harming and suicidal thoughts (nothing I would act on), hopelessness, etc. I was on effexor xr for probably four years, and on other meds before that for ten years. When I made the decision to taper off, it was because I have been absolutely symptom free for at least three years....and I saw no reason to stay on psychotropic meds w/o at least trying to go it alone. Keep in mind I've been on some form of meds since I was fourteen (i'm 28 now). I have largely recovered from anything diagnosable, and had no symptoms of depression, OCD, PTSD, etc. for years.

I am freaking out that I am relapsing into those disorders again ("going crazy"), although to be honest, I don't know what it would feel like, as it's been years since I've had any symptoms like that. I was only ON meds b/c I never bothered to come off and had no pdoc who wanted to try it w/me.

Is there an expected period of depression or other symptoms post-AD that isn't a true depressive episode? I know obviously I need to go back to the psychiatrist, but to be honest, if I list the symptoms I've been having, he's going to write out a script (or two or three) for other drugs, and I was doing SO well for years...I'm not convinced it's NOT just w/d, but I've definitely been caught off guard by all of this. I had no idea I would feel like this emotionally from coming off, and at teh same time, I figure my system has been medicated for some fourteen years, many of which I was heavily drugged, and so there may be a period of adjustment.

I have worked so hard in therapy to overcome the root of my disorders (trauma), and I have been doing well for so long, I just really thought I would be fine w/o meds. It's debatable according to my current therapists that I ever really needed them when I was 14, 15, etc. I never experienced any significant help from being on them, but when you're in a hospital system for years it's just what they do.

Anyone else who had psych symptoms as a result of w/d who didn't go back on meds? Or did? I'm not opposed to going back on something if I truly need it, but I would hate to do that too soon. I would feel very much reassured to know this may be a result of withdrawal rather than a true relapse into depression.

thanks for making it to the end of this!

laura

 

Re: Post-w/d psych symptoms.....pls help! » Laurajean

Posted by jiggitykid on April 16, 2004, at 7:50:18

In reply to Post-w/d psych symptoms.....pls help!, posted by Laurajean on April 15, 2004, at 21:31:14

>>>Anyone else who had psych symptoms as a result of w/d who didn't go back on meds? Or did? I'm not opposed to going back on something if I truly need it, but I would hate to do that too soon. I would feel very much reassured to know this may be a result of withdrawal rather than a true relapse into depression.<<<

I understand how you feel. First, congrats on making it this long!!!! All of us who have made it through this withdrawal should be congratulated. Next, I felt the same way you did. My doctor "strongly encouraged" me to take Lexapro during the first two months of my Effexor cessation. I couldn't. For me, I needed to know if my symptoms were withdrawal-related or were my depression, and I figured that if I took something else, then I'd not know. For me, it worked out that Effexor was the problem, and after about two months (after my last capsule), my personality began to heal and my "mood" stabilized. Now, each person is different and what worked for me might not be what you need. What helped me keep focused was reminding myself each time I cried or felt really "crazy," that this wasn't me. I had to be inordinately patient with myself (which is unusual for me :-D ). I would encourage you to journal and to keep very close contact with your doctor. I would also encourage you to seek support from family or friends. If you haven't already, you should direct them to this forum, have them read some of the testimonies from the archives, and help them understand that, right now, this is bigger than you. They need to know that you are surviving right now, and that they need to help you monitor your state of mind. Having the support and understanding of my family (especially my husband) made it easier to endure, and then to make the right decision once I had gotten to a place where I felt that the majority of the mood-altering or thought-affecting symptoms had gone. Please, take care of yourself. Your stress, tears, crankiness, etc., are all a "normal" part of this withdrawal. Again, journaling is a good way of keeping tabs on your thoughts. Be careful and be patient. There is a light at the end of this withdrawal tunnel.

 

Questions but no answers

Posted by kananee on April 19, 2004, at 1:15:20

In reply to Re: Post-w/d psych symptoms.....pls help! » Laurajean, posted by jiggitykid on April 16, 2004, at 7:50:18

Thanks to each of you for posting your personal experiences with Effexor w/d. I've spent the past few hours reading through the posts, starting with '99, and I'm really grateful for all the info.

This is my second time coming off Effexor -- didn't make it last time. It's a relief to know that the physical and emotional problems I'm experiencing are from the withdrawal. Last time -- less than a year ago -- I figured the emotional problems were because I was "unprotected" (MDD diagnosis). For some reason the physical problems weren't as bad then, and I didn't make the connection with withdrawal

A few of you mentioned IBS-type problems while on Effexor and as part of withdrawal. The main reason I am getting off -- this time for good!! -- is severe gastro-intestinal problems (chronic dysentary, stomach craps, nausea, etc.). But my psydoc is adamant that it can't be the Effexor (based, I guess, on the literature provided by the manufacturer).

My questions are:

(1) Does anybody have an idea how common the severe gastro-intestinal problems are as a side effect?

(2) Any opinions about if this particular problem is attributable to SSRIs/SNRIs (as some of the posts seem to suggest) or to something in the extended release aspect?

(3) My "IBS" problems haven't improved as I've gone down from 300 to 225 to 150 to 75 to 37.5 to 0. I've been at 0 for only 4 days, but still no improvement. I'm wondering now if this could be a permanent side effect from using the drug for 3-4 years.

I welcome any thoughts about or experiences with this particular problem.

 

Re: Questions but no answers

Posted by Laurajean on April 19, 2004, at 10:47:32

In reply to Questions but no answers, posted by kananee on April 19, 2004, at 1:15:20

Hi there,
I'm sorry to hear about your IBS symptoms and the Effexor w/d....good job for making it this far, though!

I am not sure about GI symptoms. I definitely had them coming off, and now thinking of it, I have been pretty messed up since I've been off (three weeks), but I have other chronic illness and so I assumed it was that. Ah, the joy of unspecific physical symptoms. Did the GI symptoms develop on effexor?

I am not sure about permanency, either. (sorry I'm not much help w/any of this, I guess!)..but I would think it might take a while for things to calm down. I have been off three weeks or so and I am still experiencing w/d symptoms, some severe.

It might also be important to rule out another cause for your symptoms....have you seen a GI specialist?

I hope it does improve or that you are able to find the source. I've been literally on every other SSRI out there (aside from newest) and never had GI complications with anything like I have Effexor. I also worry about permanent chnages in my sytem from the Efexor, and frankly, I doubt there is any reseearch at this point to show lasting side-effects.

Hope this helps...at least you know you're not alone!

Hang in there,
Laura

 

Re: Questions but no answers

Posted by Markku on April 20, 2004, at 11:51:28

In reply to Questions but no answers, posted by kananee on April 19, 2004, at 1:15:20

I only had stomach problems for a few days, but maybe that's because I quit cold turkey. Eating pasta and bread seemed to help. But if the symptoms don't go away soon after dropping to 0, you should probably keep seeing the doctor about it.

 

Re: Questions but no answers

Posted by kananee on April 20, 2004, at 21:17:48

In reply to Re: Questions but no answers, posted by Markku on April 20, 2004, at 11:51:28

Thanks, Laura and markku. I'm noticing too that carbs help, and coffee, coca cola and chocolate make it a lot worse -- bad things I love that now just the thought of makes me nauseous!

Has anybody heard about a potential new AD -- perhaps being tested in U.K. -- that's neither an SSRI nor a SNRI but may rely on something called an SP Antagonist? (I have no clue what an SP Antagonist is.)

While searching for info on Effexor side effects and withdrawal symptoms, I saw an abstract for a medical research paper that I couldn't access since I'm not a doc. What interested me was a statement about its (SP Antagonist drug) being used to treat both MDD and IBS.

Laura, a special thanks to you for being such a caring and nurturing person. I had noticed that as I read through the posts, and I am glad to have been a beneficiary of your kindness. I really needed it.

 

Re: Questions but no answers » kananee

Posted by jiggitykid on April 21, 2004, at 18:13:27

In reply to Re: Questions but no answers, posted by kananee on April 20, 2004, at 21:17:48

>>> and coffee, coca cola and chocolate make it a lot worse -- bad things I love that now just the thought of makes me nauseous!<<<

For me, it's the caffeine. Decaf coke, etc., doesn't bother me at all. Give me caff, and I'm running to the potty!!

I don't suppose they make decaf chocolate, though, huh ;-(?

 

Re: Questions but no answers

Posted by Keith Talent on April 21, 2004, at 20:21:28

In reply to Re: Questions but no answers » kananee, posted by jiggitykid on April 21, 2004, at 18:13:27

I've read here and elsewhere that Effexor is almost identical in structure to tramadol (Ultram), an opioid painkiller. I know that opioids cause constipation, and when opioid-dependent people withdraw (e.g. heroin) they get diarrhoea. Maybe there's something in that?

 

Re: Questions but no answers » Keith Talent

Posted by jiggitykid on April 21, 2004, at 21:47:38

In reply to Re: Questions but no answers, posted by Keith Talent on April 21, 2004, at 20:21:28

>>>I've read here and elsewhere that Effexor is almost identical in structure to tramadol (Ultram), an opioid painkiller.<<<

That's interesting. I have a pain disorder (IA and FM) and was prescribed ultram while I was taking effexor. My doctor didn't catch the "do not use if you're taking. . ." warning. Thank goodness I'm my best medical watchdog. I always check out what I'm being given before it ever touches my lips. Now that I'm E-free, I occasionally use Ultram if I am having trouble staying asleep (the pain wakes me up). It's not an outstanding pain killer, but it at least can take the edge off of the pain enough for me to be able to go back to sleep.

I envy my spouse who takes the occasional Ibuprofen for muscle soreness. How wonderful would that be, to not need medications. But, how wonderful it is that there are medications that really do help and make a decent life possible now. At my age, my mother battled the same things that I have (says a lot for heredity!) and didn't have nearly the arsenal that I have to combat the illnesses with. I'm grateful for the meds that work. When one comes along in this day and age where "pop a pill" is the common solution that is as destructive as Effexor was for me and many others (reported and unreported), it is frustrating. My heart aches for the people who don't know about this board and are dealing with the hell of the Effexor problems alone. I can't tell you how relieved I was to discover that what I was experiencing was not unique and that I wasn't "crazy."

Thanks, Dr. Bob.


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