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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 10 of 10. This is the beginning of the thread.
Posted by lostforwards on December 15, 2004, at 21:07:10
It's been very near 3 months. I think it's time to conclude that the doctor was in fact negligent and had no other good intentions. He wasn't trying to push my dopamine way way down for any reason in particular. He just didn't know what he was doing and gave me too much AP which has left me with what seems to be permanent parkinsonian, dystonia and dyskinesia, to varrying degrees. The physiological stress of the AP may have revealed what might be a pre-existing condition, but that's all it did. It might've even caused some of those symptoms.
I told him about the stiffness in my legs, and shallow breathing on the medication. He dismissed my complaints very casually. On top of rigidity, dry mouth, lack of arm swing in my left arm, and weakness in my left knee, and an arched right eyebrow in the morning, I have a subjective feeling of a change in how I precieve things. These changes I know are drug induced. The others - odd mannerisms - could either be due to a pre-existing neurological condition or drug-induced.
I have the dry mouth and rigidity even when I'm not taking any meds. It's worst in the mornings. My left arm doesn't swing, and my left leg is weak at the knee.
I don't know what happened. In fact I'd rather not bother trying to figure it out any more. I know that I'm messed up in ways unrelated to bipolar after being carelessly given Risperdal.
The worst thing is having all of this denied when it is the truth. I walk with my hands in my pockets or with my left hand holding something whenever I'm out now. If I'm walking casually, and I don't have my hands in my pocket, the lack of swing in my left arm can be seen, especially when my right arm swings so much more.
Maybe some of you can think for yourselves about this. It's pretty obvious something is wrong. I won't believe the lies I've been told.
Posted by cybercafe on December 15, 2004, at 21:17:53
In reply to Is it time to get compensation?, posted by lostforwards on December 15, 2004, at 21:07:10
> It's been very near 3 months. I think it's time to conclude that the doctor was in fact negligent and had no other good intentions. He wasn't trying to push my dopamine way way down for any reason in particular. He just didn't know what he was doing and gave me too much AP which has left me with what seems to be permanent parkinsonian, dystonia and dyskinesia, to varrying degrees. The physiological stress of the AP may have revealed what might be a pre-existing condition, but that's all it did. It might've even caused some of those symptoms.
>
> I told him about the stiffness in my legs, and shallow breathing on the medication. He dismissed my complaints very casually. On top of rigidity, dry mouth, lack of arm swing in my left arm, and weakness in my left knee, and an arched right eyebrow in the morning, I have a subjective feeling of a change in how I precieve things. These changes I know are drug induced. The others - odd mannerisms - could either be due to a pre-existing neurological condition or drug-induced.
>
> I have the dry mouth and rigidity even when I'm not taking any meds. It's worst in the mornings. My left arm doesn't swing, and my left leg is weak at the knee.
>
> I don't know what happened. In fact I'd rather not bother trying to figure it out any more. I know that I'm messed up in ways unrelated to bipolar after being carelessly given Risperdal.
>
> The worst thing is having all of this denied when it is the truth. I walk with my hands in my pockets or with my left hand holding something whenever I'm out now. If I'm walking casually, and I don't have my hands in my pocket, the lack of swing in my left arm can be seen, especially when my right arm swings so much more.
>
> Maybe some of you can think for yourselves about this. It's pretty obvious something is wrong. I won't believe the lies I've been told.
>
>how long have you been off the med for? i hear it can take 2 months for most of the symptoms to disappear (not sure)
Posted by JACJ on December 15, 2004, at 22:40:38
In reply to Is it time to get compensation?, posted by lostforwards on December 15, 2004, at 21:07:10
Hi Lost,
I am so sorry you are suffering and I get so upset when I hear that doctor's do this but unfortunately this is common. I absolutely think you should see a lawyer. How long were you on the AP's? Parkinson's like movement usually go away but can take up a 18 months. I ahve read this. When did you develop this? My heart goes out to you. Are you on any meds now?
Posted by ed_uk on December 16, 2004, at 7:04:09
In reply to Re: Is it time to get compensation?, posted by JACJ on December 15, 2004, at 22:40:38
Hello,
Perhaps it could be helpful for you to see a neurologist, or maybe a psychopharmacologist who has a particular interest in the toxicity of antipsychotics. They might be able to give you more information about your symptoms. Parkinsonism can take a long time to go away, longer than three months in some cases.
Best Wishes,
Ed.
Posted by lostforwards on December 16, 2004, at 11:36:10
In reply to Re: Is it time to get compensation?, posted by cybercafe on December 15, 2004, at 21:17:53
it's not just parkinsonian that bothers me. It's been over 2 months that I've been off the AP.
I developed involuntary ticks, including crossing my legs, etc. Right over left when I sit down. All of these seemed like tardive stereotypies. They can be suppressed somewhat, but otherwise they're involuntary and very frustrating. No doctor has acknowledged these symptoms. In fact I think It's being written off as being in my head which simply isn't true. ( although I guess that's convinient )
Posted by lostforwards on December 16, 2004, at 11:44:17
In reply to Re: Is it time to get compensation?, posted by JACJ on December 15, 2004, at 22:40:38
The parkinsonian seems like it wanes in an out. A better term is muscular rigidity. It's not just the parkinsonian. I devloped tics and mannerisms that all seemed like tardive stereotypies while on the medication. I know that these are uncommon side-effects but I did develop them. I didn't know before hand they were going to develop or how they would present. In fact I knew nothing about TD sterotypies or anything like it.
I also started gurgling and cheeck puffing. I still do the cheeck puffing thing sometimes. It was never a mannerism of mine before. It is a tardive dyskinesia symptom.
For a while these symptoms disappeared on a realatively high ( for me ) dose of Risperdal.
When I withdrew from the medication the motor tics
and a tugging feelings in my arms appeared again. They felt like they wanted to move in to different positions. Again, I did not know about this before. All of these could be supressed somewhat.On top of that I've been having sporadic dystonia, and dyskinesia.
Ahhh, who am I kidding. You'll probably just not believe me and write it all off as something else.
This is sick you know. I hate that doctor and anyone like him.
Posted by lostforwards on December 16, 2004, at 11:54:27
In reply to Re: Is it time to get compensation?, posted by ed_uk on December 16, 2004, at 7:04:09
Despite my left arm not swinging and sometimes feeling like it wanted to be curled up against my shoulder, the neurologist told me everything would go away with time. No other explanation other than that. IN FACT, he said if I developed dyskinesia or any symptoms like it, that it wouldn't be due to the drug which I find very suspicious. What would it be due to then? Is he saying I knew about these movements before hand and started doing them? That's just sick. Of course he didn't say that. So then what is it? There was nothing wrong with me movement-wise before. Why would my brain just decide to get messed up? It doesn't make sense but I know if the symptoms are around say May 2005, then I'm defintely doing something, or at least going to try, because these side-effects are possibly life long and very real and very likely due to the drug as unlikely as that sounds.
A lot of these symptoms cause me a considerable amount of discomfort throughout the day, they are also very real, and seem a lot like various AP related side-effects. Things like gurgling and cheek puffing for example, crossing my left leg under my right leg everytime I sit down, and motor tics - scrathing my face or my head - or feeling like my left arm must move upwards, are all very unsual. I can try to supress them, but it's not possible to consciously do that all the time.
Posted by ed_uk on December 16, 2004, at 12:17:46
In reply to Re: Is it time to get compensation? » ed_uk, posted by lostforwards on December 16, 2004, at 11:54:27
Hello lostforwards,
I'm sure everyone on babble believes what you say. I do not doubt what you say.
I agree that your symptoms are most likely due to the antipsychotic. It would be difficult to classify your symptoms into a single category (eg. tardive tics, tardive stereotypies) because you have symptoms from both these categories. I would say that you have an AP-induced 'tardive syndrome.'
Dcotors are reluctant to accept the damage caused by the drugs they prescribe. They are also reluctant to accept the damage caused by other doctors. They don't want to fall out with their colleagues.
Ed.
Posted by JACJ on December 16, 2004, at 18:57:05
In reply to Re: I believe you, posted by ed_uk on December 16, 2004, at 12:17:46
> Hello lostforwards,
>
> I'm sure everyone on babble believes what you say. I do not doubt what you say.
>
> I agree that your symptoms are most likely due to the antipsychotic. It would be difficult to classify your symptoms into a single category (eg. tardive tics, tardive stereotypies) because you have symptoms from both these categories. I would say that you have an AP-induced 'tardive syndrome.'
>
> Dcotors are reluctant to accept the damage caused by the drugs they prescribe. They are also reluctant to accept the damage caused by other doctors. They don't want to fall out with their colleagues.
>
> Ed.
>
>
Hi LF,
I agree with Ed too. Doctor's won't admit anything and I believe you have a tardive syndrome. Are u still on AP's? My heart breaks for you b/c I know how hard TD hits people since I know 4 people personally who have it and I see them suffer but they have faith which gets them thru. I believe you with my whole heart. Please come here for support and any advice. Take care!!
Posted by lostforwards on December 16, 2004, at 20:16:43
In reply to Re: I believe you too, posted by JACJ on December 16, 2004, at 18:57:05
thank you.
This is the end of the thread.
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