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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 6 of 6. This is the beginning of the thread.
Posted by Lucy's Little Sister on July 15, 2007, at 9:30:42
We are going through an awful experience with NMS. My sister was "off"->5/15 psychiatrist said to hospitalize->local hospital recently closed Mental Health unit->local hospital had me transport to Brown County Mental Health (BCMH)because Manitowoc County has contract with them and other hospitals are very selective (have come to read "selective" to mean it depends what insurance you have)->2wks & 2days at BCMH saw her spiral down to not even being able to walk, stand or get up (5/14 she was driving, going to work, communicating--fully self-sufficient!)->transferred to St.Vincent ER->Spinal Tap ruled out meningitis->Diagnosed NMS->19 days in ICU->on ventilator/breathing tube, tube-feeding, PIC line thru neck to heart for meds & taking blood, catheter->catatonic->ceased Seroquel and Abilify->gave Dantrolene & Bromocriptine (not sure of spelling)->moved to Intermediate ICU for one day then regular room on medical floor for two weeks->Weaned off Dantrolene & Bromocriptine->Only med Activan(sp?)->7/4 removed trache tube->7/5 removed feeding tube->7/6 discharged to Manitowoc County Health Care Center (MCHCC)nursing home for short-term rehab as they are only place in county that provides "specialized care" & "active-treatment" as required by state PASARR test review because they have psychiatric care->Psychiatrist doing care at MCHCC who is local (Holy Family) Hospital doctor and happens to be my sister's psychiatrist, is leaving 7/25 and told my sister she will no longer be his patient & she can never be on any anti-psychotic meds again->He hasn't called me as requested->MCHCC doesn't know who will be providing psych care->To my knowledge no bi-polar meds have been started but I was told by St.Vincent doctor that Lithium is an option->She was on that for almost 20 years but didn't like side affects/tremors->General Practioner at one point several years ago put her on water pills which conflicted with Lithium too->2003 or so Psych had changed her from Lithium to Seroquel as they said Lithium was too dangerous but the Seroquel almost killed her->WHAT ARE HER OPTIONS FOR MEDS?->HOW CAN I GET HER THE CARE SHE NEEDS SO SHE CAN HAVE A BETTER QUALITY OF LIFE? (I am her Power of Attorney which has been activated)->Please provide any information that may help. Thank you.
Posted by Phillipa on July 15, 2007, at 11:32:36
In reply to Neuroleptic Malignant Syndrome (NMS) from Seroquel, posted by Lucy's Little Sister on July 15, 2007, at 9:30:42
Her pdoc can't just drop her he has to get her a replacement if he is unqualified. And the hospital can't sent her home without follow-up care. What state is this? Is there a hospital advocate? Love Phillipa
Posted by saturn on July 15, 2007, at 12:18:22
In reply to Neuroleptic Malignant Syndrome (NMS) from Seroquel, posted by Lucy's Little Sister on July 15, 2007, at 9:30:42
What is her psychiatric diagnosis?
Posted by Zyprexa on July 15, 2007, at 12:55:19
In reply to Neuroleptic Malignant Syndrome (NMS) from Seroquel, posted by Lucy's Little Sister on July 15, 2007, at 9:30:42
Have you tried zyprexa? This is basicly the only AP that worked for me.
Posted by linkadge on July 15, 2007, at 14:09:56
In reply to Re: Neuroleptic Malignant Syndrome (NMS) from Seroquel, posted by Zyprexa on July 15, 2007, at 12:55:19
If she is bipolar, then tegretol or depakote might be options. They are mood stabilizers like lithium. They have side effects, but side effects are generally different from those of lithium.
Linkadge
Posted by OzLand on July 15, 2007, at 16:46:18
In reply to Re: Neuroleptic Malignant Syndrome (NMS) from Seroquel, posted by Zyprexa on July 15, 2007, at 12:55:19
I developed NMS last year when a small dose of Risperdal was added to my Parnate. My husband first started noting some symptoms, and when the stiffness and fever started to set in, I stopped the Risperdal and got better fairly quickly. We were in Southampton, Ontario at the time, and I could not get a hold of my doctor. I had been on Risperdal for around two weeks, and I went from .25 mg to .5 mg, and boom within days. Not fun--confused, disoriented, etc.
This is the end of the thread.
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