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Dr. Bob is Robert Hsiung, MD,
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Posted by Lou Pilder on June 20, 2013, at 13:09:59
In reply to Re: Simplifying my med regimen » Phillipa, posted by vbs on June 20, 2013, at 12:04:07
> I feel that I have nothing to lose by simplifying my drug regimen. I am med compliant. We chose Invega Sustenna injection b/c my oral meds weren't working. My pdoc planned to taper me off of Zyprexa & Saphris over the next few months anyway. I'm just doing it ahead of schedule. If my condition deteriorates then I can always restart one or both drugs. I received my fourth injection earlier this morning and I'm not hearing voices now. I feel confident that I'll be okay. I'll keep ya'll updated on how I'm doing. Peace. :-)
vbs,
You wrote,[...I have nothing to lose by simplifying the drug regimen...].
Be advised, that it may be unbeknownst to your prescriber and yourself the great danger that you could be in now. You see, I have information concerning what could happen when one stops Invega sustenna in particular but not limited to just that drug.
The danger mainly revolves around that you could have Tardive Dyskinesia induced into you from stopping the Invega. This could be with you until you die and present hideous disfigurement along with a life-ruining condition.
Lou
Posted by vbs on June 20, 2013, at 13:56:06
In reply to Lou's response- » vbs, posted by Lou Pilder on June 20, 2013, at 13:09:59
Lou, I appreciate your concern. I'm staying on the Cymbalta, trazodone & Invega Sustenna.
Peace.
Posted by Lou Pilder on June 20, 2013, at 19:02:55
In reply to Re: Unfounded alarmism » Lou Pilder, posted by vbs on June 20, 2013, at 13:56:06
> Lou, I appreciate your concern. I'm staying on the Cymbalta, trazodone & Invega Sustenna.
>
> Peace.Friends,
The alarm is to all readers, so I do not think that it is unfounded. And in particular, the stopping of the drugs mentioned could cause a child that stopped the drug to have tardive dyskinesia. So parents, before you drug your child with Invega, take heed that you know what can happen if the drug is stopped. And if you know that, for what purpose would you allow a psychiatrist/doctor to drug your child with your collaboration?
Lou
http://www.yoiutube.com/watch?v=WlVxv5ag0pg
Lou
Posted by Lou Pilder on June 20, 2013, at 19:06:00
In reply to Lou's reply- » vbs, posted by Lou Pilder on June 20, 2013, at 19:02:55
> > Lou, I appreciate your concern. I'm staying on the Cymbalta, trazodone & Invega Sustenna.
> >
> > Peace.
>
> Friends,
> The alarm is to all readers, so I do not think that it is unfounded. And in particular, the stopping of the drugs mentioned could cause a child that stopped the drug to have tardive dyskinesia. So parents, before you drug your child with Invega, take heed that you know what can happen if the drug is stopped. And if you know that, for what purpose would you allow a psychiatrist/doctor to drug your child with your collaboration?
> Lou
> http://www.yoiutube.com/watch?v=WlVxv5ag0pg
> Loucorrection:
http://www.youtube.com/watch?v=WlVxv5ag0pG
Posted by Lou Pilder on June 20, 2013, at 19:09:52
In reply to correction: Lou's reply-, posted by Lou Pilder on June 20, 2013, at 19:06:00
> > > Lou, I appreciate your concern. I'm staying on the Cymbalta, trazodone & Invega Sustenna.
> > >
> > > Peace.
> >
> > Friends,
> > The alarm is to all readers, so I do not think that it is unfounded. And in particular, the stopping of the drugs mentioned could cause a child that stopped the drug to have tardive dyskinesia. So parents, before you drug your child with Invega, take heed that you know what can happen if the drug is stopped. And if you know that, for what purpose would you allow a psychiatrist/doctor to drug your child with your collaboration?
> > Lou
> > http://www.yoiutube.com/watch?v=WlVxv5ag0pg
> > Lou
>
> correction:
> http://www.youtube.com/watch?v=WlVxv5ag0pG(2) correction:
http://www.youtube.com/watch?v=WlVxv5ag0pQ
Posted by SLS on June 20, 2013, at 20:03:23
In reply to Re: Simplifying my med regimen » Phillipa, posted by vbs on June 20, 2013, at 12:04:07
> I received my fourth injection earlier this morning and I'm not hearing voices now.
This is a good thing. In your previous post, I thought you meant that nothing was helping, including the Invega. I hope that you can discontinue the other two neuroleptics. I know that you are anxious to get rid of them, but it is logical to d/c one drug at a time. Otherwise, you are gambling that you don't require either one to feel well. If you win the gamble, you take the least amount of time to attain the goal. If you lose the gamble and need one or both drugs, it will take longer for you to establish the optimal treatment regime.
> I feel confident that I'll be okay. I'll keep ya'll updated on how I'm doing. Peace. :-)
Good luck.
- Scott
Posted by SLS on June 20, 2013, at 20:11:00
In reply to Re: Unfounded alarmism » Lou Pilder, posted by vbs on June 20, 2013, at 13:56:06
> I'm staying on the Cymbalta, trazodone & Invega Sustenna.
How does Cymbalta affect you? Do you have schizoaffective disorder? Is the trazodone for insomnia produced by the Cymbalta? I'm wondering if Cymbalta makes the hallucinations worse.
- Scott
Posted by Phillipa on June 20, 2013, at 20:13:25
In reply to Re: Simplifying my med regimen » Phillipa, posted by vbs on June 20, 2013, at 12:04:07
Vbs you know you have my support. I now understand. Sounds like a good plan. So glad the voices are gone. Please do update Phillipa
Posted by Phillipa on June 20, 2013, at 20:18:41
In reply to Lou's reply- » vbs, posted by Lou Pilder on June 20, 2013, at 19:02:55
Lou trust me I know for a fact the vbs is not a child. He's an adult and capable of making his own decisions with the help of his doctor. Who has told him of all possible side effects. And the leaflet that comes with the med has the FDA list of warnings and side effects. Did you ever get a prescription med at a pharmacy? If so did you receive a leaflet with side effects and warnings? Phillipa
Posted by poser938 on June 20, 2013, at 20:59:32
In reply to (2): correction: Lou's reply-, posted by Lou Pilder on June 20, 2013, at 19:09:52
Lou, you do come across as just an alarmist. People aren't going to listen to a thing you say if you keep yelling "fire!".
But to be honest I wish I would have had a legitimate seeming source back in 2005 warning me if the dangers of these meds. If I had that id probably be in a much better place in my life today. And you in no way appear to be a legit source of info, mainly because of your alarmist attitude.I've experienced some of the horrors that these meds can cause. It took over year to realize it was the medicine that was ruining my brain, probably permanently, because my mood stayed low months after stopping the medicine. And now 8 years later my emotional processing is quite a bit deformed.
But what people like to see is a ligitimate source of info. You'renot making yourself appear as one because of your alarmist attitude. Though I do believe using your information would be much better than from 98% of psychiatrist, even though you present it in a flawed way. But the average Joe isn't going to think that.
Posted by vbs on June 20, 2013, at 21:24:38
In reply to Re: Unfounded alarmism » vbs, posted by SLS on June 20, 2013, at 20:11:00
SLS, you're right on - I have schizoaffective disorder. I often wonder if the Cymbalta is aggravating my underlying psychosis. I would think not since it doesn't affect dopamine. I just don't understand why I continue to hear voices despite taking three APs. I opted for the Invega Sustenna injection b/c Saphris & Zyprexa wasn't helping me manage my symptoms. I'm eager to feel better. I may discontinue Cymbalta if I don't feel better in about a week. What anti-depressant would you recommend?
Posted by vbs on June 20, 2013, at 22:31:07
In reply to Re: Lou's reply- » Lou Pilder, posted by Phillipa on June 20, 2013, at 20:18:41
Posted by Phillipa on June 20, 2013, at 23:05:43
In reply to Re: (2): correction: Lou's reply-, posted by poser938 on June 20, 2013, at 20:59:32
Not to Hijack thread but poser what would you have done differently back in 05? Phillipa
Posted by SLS on June 20, 2013, at 23:29:48
In reply to Re: (2): correction: Lou's reply- » poser938, posted by Phillipa on June 20, 2013, at 23:05:43
Posted by SLS on June 21, 2013, at 0:10:35
In reply to Re: (2): correction: Lou's reply- » poser938, posted by Phillipa on June 20, 2013, at 23:05:43
> > But to be honest I wish I would have had a legitimate seeming source back in 2005 warning me if the dangers of these meds. If I had that id probably be in a much better place in my life today.
> Not to Hijack thread but poser what would you have done differently back in 05? Phillipa
Sorry for the interruption, but I wanted to reset the subject line so as to reflect issues related to the thread. I chose the subject line of the first post by default as a replacement. I guess thread drift is to be expected along with changes made to subject lines as a thread evolves. I am more concerned that threads not devolve.
Phillipa, this is in no way a reflection on you. Personally, I would have preferred that you prevent the propagation of the hijacked subject line by changing its verbiage to one that is relevant to the thread. It is a good habit to get into when someone on the board is intent on repeatedly injecting his name prominently and exclusively in every thread he involves himself in. Such subject lines appear to me as litter. I'm sure it does to lurkers and prospective members, too. It looks like the entire board is devoted to one person. This appearance can be changed with the investment of an extra 5 - 10 seconds in restoring the subject line.
- Scott
Posted by vbs on June 21, 2013, at 7:16:15
In reply to Simplifying my med regimen (nm), posted by SLS on June 20, 2013, at 23:29:48
Well I feel weird this morning. Slept for about four hours. I'm *not* hearing voices. I'm drinking a lot of milk, vegetable juice and water.
Peace.
Posted by polarbear206 on June 21, 2013, at 8:51:55
In reply to Re: Unfounded alarmism » vbs, posted by SLS on June 20, 2013, at 20:11:00
Lou, How many times have other posters asked you to stop changing the origional title post?????? I find this very rude of you. Please show some respect for others. I know how hard it is for you...after all you have an agenda!!!
Posted by polarbear206 on June 21, 2013, at 10:57:52
In reply to Simplifying my med regimen (nm), posted by SLS on June 20, 2013, at 23:29:48
Posted by vbs on June 21, 2013, at 13:38:47
In reply to Re: Simplifying my med regimen (nm), posted by polarbear206 on June 21, 2013, at 10:57:52
I just woke up from a long nap. I went grocery shopping earlier. I bought more milk and vegetable juice, among other items. The weirdness that I felt this morning has mosly passed. I feel pretty good now; refreshed.
The good news is that the Invega Sustenna seems to be keeping the voices at bay. Knock on wood.
Peace. :-)
Posted by SLS on June 21, 2013, at 13:59:05
In reply to Re: Simplifying my med regimen, posted by vbs on June 21, 2013, at 13:38:47
> I just woke up from a long nap. I went grocery shopping earlier. I bought more milk and vegetable juice, among other items. The weirdness that I felt this morning has mosly passed. I feel pretty good now; refreshed.
>
> The good news is that the Invega Sustenna seems to be keeping the voices at bay. Knock on wood.I did what you said. Now my head hurts.
- Scott
Posted by poser938 on June 21, 2013, at 19:00:00
In reply to Re: (2): correction: Lou's reply- » poser938, posted by Phillipa on June 20, 2013, at 23:05:43
What I'd have done different is only do therapy instead of therapy and meds from the very beginning. The therapy was helping, but after like 2 months the medicine ruined me.
So, ONLY therapy and zero medicine.
Posted by poser938 on June 21, 2013, at 19:32:44
In reply to Re: Simplifying med regimen: Phillipa, posted by poser938 on June 21, 2013, at 19:00:00
And I'm positive there are many, many other situations where someones mood was made much worse by a psychiatric Med, and that this mood/brain chemistry is often permanent or very long-term after stopping the Med. And that the patient never realizes it. I've read too many situations where someone says "My antidepressant stopped working and now my depression is worse than it ever was"
Posted by Phillipa on June 21, 2013, at 20:28:31
In reply to Re: Simplifying med regimen: Phillipa, posted by poser938 on June 21, 2013, at 19:32:44
Poser I also have. Thanks for the response. Phillipa
Posted by vbs on June 21, 2013, at 22:22:51
In reply to Re: Simplifying my med regimen » vbs, posted by SLS on June 21, 2013, at 13:59:05
I started hearing voices earlier so I restarted the Zyprexa.
Posted by vbs on June 22, 2013, at 8:08:56
In reply to Re: Unfounded alarmism » vbs, posted by SLS on June 20, 2013, at 20:11:00
I'm going to try discontinuing Cymbalta. I didn't take it this morning. Let's hope I hear fewer voices or none at all. I'm worried about discontinuation syndrome like brain zaps. I'm also worried that I'll start feeling depressed. Time will tell. Wish me luck, again.
Peace. :-)
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Dr. Bob is Robert Hsiung, MD,
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