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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 11 of 11. This is the beginning of the thread.
Posted by Jeroen on January 2, 2014, at 12:50:28
side effects
still tiredness
akathasia
worsening of moodshould i go to day 3, today was a hell? i think i cannot be cured from this illness
Posted by Emme_V2 on January 2, 2014, at 12:59:34
In reply to day 2: minocyline (48 hours) 50 mg, posted by Jeroen on January 2, 2014, at 12:50:28
> side effects
>
> still tiredness
> akathasia
> worsening of mood
>
> should i go to day 3, today was a hell? i think i cannot be cured from this illnessMaybe try 25 mg for a few days to let your body get used to it. It's easy to open the capsules and divide the contents. I took 25 mg for a while.
Posted by SLS on January 2, 2014, at 14:13:28
In reply to Re: day 2: minocyline (48 hours) 50 mg » Jeroen, posted by Emme_V2 on January 2, 2014, at 12:59:34
> > side effects
> >
> > still tiredness
> > akathasia
> > worsening of mood
> >
> > should i go to day 3, today was a hell? i think i cannot be cured from this illness
>
> Maybe try 25 mg for a few days to let your body get used to it. It's easy to open the capsules and divide the contents. I took 25 mg for a while.Yes, Jeroen. Starting at a lower dosage might make sense if you are overly sensitive to the startup side effects. You tend to be hypervigilant about how these drugs affect you. My advice to you is to let the doctors worry about the side effects, and that you commit yourself to continuing with minocyline for several months, if not longer, so long as nothing untoward occurs.
Keep going!
We want you to succeed!
Best wishes.
- Scott
Posted by Jeroen on January 2, 2014, at 14:34:23
In reply to day 2: minocyline (48 hours) 50 mg - Jeroen, posted by SLS on January 2, 2014, at 14:13:28
last 2 days were a hell and in 48 hours i am an involunteered commit patient again
Posted by SLS on January 2, 2014, at 16:18:23
In reply to i am quiting because, posted by Jeroen on January 2, 2014, at 14:34:23
> last 2 days were a hell and in 48 hours i am an involunteered commit patient again
What happened?
- Scott
Posted by Jeroen on January 2, 2014, at 16:40:04
In reply to Re: i am quiting because » Jeroen, posted by SLS on January 2, 2014, at 16:18:23
i am a forced patient for 4 years now, if they know i am taking minocycline i might get in trouble, i was only on it for 2 days, next time when i am free i am starting @ 25 mg thanks Emme V2
i was a little better yesterday, thanks for that
Posted by Phillipa on January 2, 2014, at 16:48:48
In reply to Re: i am quiting because » Jeroen, posted by SLS on January 2, 2014, at 16:18:23
Scott babble me PJ
Posted by bleauberry on January 6, 2014, at 12:17:44
In reply to day 2: minocyline (48 hours) 50 mg, posted by Jeroen on January 2, 2014, at 12:50:28
Perfectly consistent with successful treatment:
> side effects
>
> still tiredness
> akathasia
> worsening of mood
>
> should i go to day 3, today was a hell? i think i cannot be cured from this illnessWhat, did you think having millions of dead body parts floating around inside you was going to feel good?
The good comes when you kill more of those. Which means, yes, you have to feel that crap more. Months of it. I have described it like peeling layers of onions....take the med, Herx, back off, take it again, Herx, back off, repeat, repeat....and over time the Herx becomes much milder, bad days not as bad, good days actually happen and become more frequent. One layer at a time, because that is basically the way the bugs are being killed. With each new layer, you are a little bit better than you were before.
It's sort of like wanting to be on the other side of a mountain....are you going to take the steep trail right up and over it?....or are you going to take the long winding trail around it?....either way, it's a tough trip, and it is the only way to get to your desired destination. We want a helicopter, right? There isn't one, so forget it. We have to commit to getting to the other side no matter what. That is not going to happen with a short sprint of an antibiotic.
Those side effects can be lessened considerably. You don't need to suffer like that.
The absolute worst thing you could do at this point is give up on the med.
I noticed you were counting days. Lyme doctors use the first few days to help rule in or rule out their suspected diagnosis. A reaction like yours pretty much confirms the suspicion of hidden infection. Otherwise you wouldn't be feeling all that crap.
Anyway, back to the counting days thing.....you want to be counting months, not days and not weeks. Your enemy is fierce, deceptive, hiding, and cunning....unless you are in a long term war to win, loss is almost guaranteed. You can't count days anymore. Count months. 6 to 9 months would be realistic, but 12-24 months would not surprise me, considering how long you have been ill and how deeply entrenched it is.
The rules of the antibiotic treatment of psychiatry are very different than the rules of antidepressant treatment. Not comparable. Do not think in the terms of psych meds. Antibiotics is a whole different game. But it is one you can actually win! I cannot with a straight face say that with such conviction about psychiatry.
Posted by Jeroen on January 6, 2014, at 13:40:43
In reply to Re: day 2: minocyline (48 hours) 50 mg, posted by bleauberry on January 6, 2014, at 12:17:44
i f*ck*ng hate the seroquel! bleauberry i need legal help
Posted by Emme_V2 on January 6, 2014, at 17:47:56
In reply to Re: day 2: minocyline (48 hours) 50 mg, posted by bleauberry on January 6, 2014, at 12:17:44
Don't forget that minocycline is MUCH MUCH more than an antibiotic. SLS has posted before on the numerous properties of this drug, including its action on the glutamate system and its antioxidant and anti-inflammatory properties. So although it is possible that Jeroen is seeing some benefit from control of an infection, we really cannot conclude that that is definitely the case. But whichever mechanism is giving him some relief, it is really great. I hope there is a way for him to continue.
Posted by Phillipa on January 6, 2014, at 21:03:19
In reply to Re: day 2: minocyline (48 hours) 50 mg » bleauberry, posted by Emme_V2 on January 6, 2014, at 17:47:56
In all seriousness Jerone has no choice right now other then stopping this med. And he does need an attorney. He is working on this. Phillipa
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