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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 9 of 9. This is the beginning of the thread.
Posted by sabre on January 25, 2005, at 8:40:53
In reply to Re: Anyone else with fibromialgia? » Guy, posted by Cairo on January 23, 2005, at 17:01:20
Guy, you could also try reading the posts on magnesium in Alternative Babble.
I have found magnesium reduces the incidence of trigger irritation and makes the muscle feel pliable and loose.sabre
Posted by dancingstar on January 25, 2005, at 8:40:53
In reply to Re: Anyone else with fibromialgia?, posted by sabre on January 22, 2005, at 20:52:15
I am positive that over the three years that I took Effexor, it caused me to feel the pain of fibromyalgia and to have chronic fatigue. It became worse and more debilitating as time went on, and I watch this now happening to one of my closest friends.
It didn't start out that way. At first it gave me energy and made me feel better. After a while, I became very sick, in pain, and tired. I also caught really strange infections.
I quit, and now I just have the original back and hip pain that I started with and my energy level returned to normal. My neck is very sore and I definitely have some nerve damage from having taken Effexor. I always forget to add the tingling thing that I get whenever I feel stressed that doesn't want to go away.
Magnesium is supposed to be very good for fibromyalgia; so is a restful night's sleep. I know that isn't a very satisfactory answer...at all. I am just posting my experience for your reference. As has been said here so perfectly before me, "your actual mileage may vary."
Posted by Cairo on January 26, 2005, at 21:40:47
In reply to Re: Anyone else with fibromialgia?, posted by sabre on January 23, 2005, at 20:13:42
Actually, I have found that I need periodic magnesium breaks as tolerance develops. My doctor pointed this out to me, but I already knew from experience. The same for Neurontin as a muscle relaxant. Zinc depletion, B12 or folic acid deficiency and hypothyroidism can also cause trigger point irritability. There is a great chapter on perpetuating factors in relation to myofascial pain/dysfunction in "Myofascial Pain and Dysfunction: The Trigger Point Manual" by Janet Travell, MD and David Simons, MD.
Cairo
> Guy, you could also try reading the posts on magnesium in Alternative Babble.
> I have found magnesium reduces the incidence of trigger irritation and makes the muscle feel pliable and loose.
>
> sabre
Posted by Optimist on January 27, 2005, at 11:31:13
In reply to Re: Anyone else with fibromialgia?, posted by sabre on January 23, 2005, at 20:13:42
A supplement company named Biotest just came out with a new fibromyalgia supplement that seems to be very promising.
Here's an excerpt from the website:
"However, one physician, Dr. Mike Leahy of Colorado Springs, has had impressive results by treating fibromyalgia as a metabolic disorder. He believes that fibromyalgia is a disease characterized by the body's inability (or diminished ability) to turn one type of thyroid hormone (T4) into another (T3). (This conversion of T4 into T3 is one of the driving factors behind human metabolism.)
By improving the body's ability to manufacture this vital thyroid hormone through the use of a dietary supplement called Myalgistat, Dr. Leahy has found that 100% of his patients have experienced anywhere from a 50 to 80% improvement in fibromyalgia symptoms.
The main ingredient in Myalgistat is a patent-pending compound called A7-E.™ It's best described as a "metabolism activator." A7-E, along with another patent-pending compound in Myalgistat, GZ™ 100, increases the conversion of T4 to T3 not only in the thyroid, but also throughout the body (much of this desired hormone conversion occurs in muscle tissue, at least in non-fibromyalgia sufferers).
These compounds are completely new to fibromyalgia treatment. Their effects are sustained over 24 hours; they have patents filed on them; they're so effective in their effects on metabolism that there are no other compounds that compare; and they're only found in Myalgistat."
Here's the website:
Brian
Posted by laurie_lu on January 27, 2005, at 15:20:07
In reply to Re: New Fibromyalgia supplement, posted by Optimist on January 27, 2005, at 11:31:13
Magnesium supplements did absolutely nothing to help my fibromyalgia pain. I did eliminate whole wheat out of my diet and it has made a dramatic improvement.
Posted by sabre on January 27, 2005, at 16:26:43
In reply to Re: Anyone else with fibromialgia? » sabre, posted by Cairo on January 26, 2005, at 20:44:40
> Actually, I have found that I need periodic magnesium breaks as tolerance develops. My doctor pointed this out to me, but I already knew from experience. The same for Neurontin as a muscle relaxant. Zinc depletion, B12 or folic acid deficiency and hypothyroidism can also cause trigger point irritability. There is a great chapter on perpetuating factors in relation to myofascial pain/dysfunction in "Myofascial Pain and Dysfunction: The Trigger Point Manual" by Janet Travell, MD and David Simons, MD.
>
> Cairo
>
> > Guy, you could also try reading the posts on magnesium in Alternative Babble.
> > I have found magnesium reduces the incidence of trigger irritation and makes the muscle feel pliable and loose.
> >
> > sabre
>Hello Cairo,
I have had the same experience with Magnesium. Initially I was taking it daily but after a few weeks I began to experience palpitations and eyelid twitches. By dropping the dosage back to every second or third day it seemed okay. I have since found a nifty way of detecting whether I need it. If I flex my foot hard, I experience spasms in the arch but only when the Mg gets too low. I check it a couple of times a day and take Mg when it starts to niggle. It works very quickly to alleviate the spasm.I also found a similar situation with the tyrosine. After taking it daily for about 5 weeks I felt it wasn't working. I went off it for a fortnight and ended feeling awful...depressed, amotivated, struggling with exercise. After going back on the tyrosine I felt an instant reversal of this state. I'm not sure what the optimal dosage and interval between doses should be but I will keep experimenting.
That's interesting about Neurontin. I don't know how they ever arrive at correct dosages and spacing of doses for medications with ailments and individual physiologies being so variable.
I know the Travell and Simons' Trigger Manuals well. They have been my bible at work. I think the books are brilliant. Ahead of their time!sabre
Posted by Cairo on January 28, 2005, at 11:21:10
In reply to Re: Anyone else with fibromialgia?, posted by sabre on January 27, 2005, at 16:26:43
Here's a quote about magnesium/Neurontin, but I've not been able to find any other info on this:
-------------------------------------------------
http://home.tampabay.rr.com/lymecfs/nfaq.htmMAGNESIUM
"Dr. Seastrunk says that magnesium should not be taken with Neurontin at all because it competes for the receptors in the brain that Neurontin is attempting to reach.However, Parke-Davis and CFS specialists prescribing Neurontin suggest only that the two drugs be separated by two hours.
Since magnesium does have antacid properties, taking the two together may immediately interfere with Neurontin being correctly absorbed in the stomach. This also applies to prescription medication that lessens gastric motility and acidity as well as all other antacids.
Because magnesium levels are often low in people with CFS and FMS, many of us feel that it is very important to continue taking magnesium. By scheduling the magnesium between doses of Neurontin (preferably once a day and as far apart as possible), hopefully there will be minimum interference with Neurontin."
----------------------------------------------
This might explain similar tolerance effects.
Cairo
> That's interesting about Neurontin. I don't know how they ever arrive at correct dosages and spacing of doses for medications with ailments and individual physiologies being so variable.
>
> I know the Travell and Simons' Trigger Manuals well. They have been my bible at work. I think the books are brilliant. Ahead of their time!
>
> sabre
>
Posted by world citizen on February 6, 2005, at 3:02:59
In reply to Re: Anyone else with fibromialgia? » sabre, posted by Cairo on January 28, 2005, at 11:21:10
>Hey you guys! Be very careful of the Neurontin, it's very hepatoxic-bad for the liver. I used to take it and found it was the MOST unpredictable med. I'd EVER come across.
Back to the lead story: Yes, I also have Fibro. I've found that aerobic walking about three miles EVERY day is extremely beneficial. Additionally, I take a very effective supplement (for me, anyway) from Sourse Naturals called Fibro-Response. I've found the least expensive (it doesn't cost THAT much anyway) place to buy it
is vitaminshoppe.oom. It DOES contain 300mgs. of magnesium so keep that in mind if you persist in taking the Neurontin.
W.C.
Here's a quote about magnesium/Neurontin, but I've not been able to find any other info on this:
> -------------------------------------------------
> http://home.tampabay.rr.com/lymecfs/nfaq.htm
>
> MAGNESIUM
> "Dr. Seastrunk says that magnesium should not be taken with Neurontin at all because it competes for the receptors in the brain that Neurontin is attempting to reach.
>
> However, Parke-Davis and CFS specialists prescribing Neurontin suggest only that the two drugs be separated by two hours.
>
> Since magnesium does have antacid properties, taking the two together may immediately interfere with Neurontin being correctly absorbed in the stomach. This also applies to prescription medication that lessens gastric motility and acidity as well as all other antacids.
>
> Because magnesium levels are often low in people with CFS and FMS, many of us feel that it is very important to continue taking magnesium. By scheduling the magnesium between doses of Neurontin (preferably once a day and as far apart as possible), hopefully there will be minimum interference with Neurontin."
>
> ----------------------------------------------
>
> This might explain similar tolerance effects.
>
> Cairo
>
>
>
> > That's interesting about Neurontin. I don't know how they ever arrive at correct dosages and spacing of doses for medications with ailments and individual physiologies being so variable.
> >
> > I know the Travell and Simons' Trigger Manuals well. They have been my bible at work. I think the books are brilliant. Ahead of their time!
> >
> > sabre
> >
>
>
Posted by chris777 on February 16, 2005, at 0:56:21
In reply to Re: Anyone else with fibromialgia? ? sabre, posted by dancingstar on January 23, 2005, at 23:59:17
> I am positive that over the three years that I took Effexor, it caused me to feel the pain of fibromyalgia and to have chronic fatigue. It became worse and more debilitating as time went on, and I watch this now happening to one of my closest friends.
>
> It didn't start out that way. At first it gave me energy and made me feel better. After a while, I became very sick, in pain, and tired. I also caught really strange infections.
>
> I quit, and now I just have the original back and hip pain that I started with and my energy level returned to normal. My neck is very sore and I definitely have some nerve damage from having taken Effexor. I always forget to add the tingling thing that I get whenever I feel stressed that doesn't want to go away.Both your, and Guy's post caught my eye.
I apparently had topomax trigger my fibro back in 2000, the doctor kept going up on the dosage, the higher the dose the more I hurt. until I came off, only my pain level stayed the same until recently, It was amplified again, from either methadone whithdrawal, or a reaction to duragesic patches.
I know you said your fibro went away, but have you ever heard of any other people having problems like ours that appear to be medication induced?
This is the end of the thread.
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