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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 4 of 4. This is the beginning of the thread.
Posted by bleauberry on April 11, 2010, at 7:38:37
In reply to Re: Start AD's at lower than FDA starting Dose, posted by Katgirl on April 10, 2010, at 9:43:09
> Very interesting Bleauberry. (Although it doesn't surprise me that this wasn't a pdoc!) I have been tested for Lyme's disease, and it came up negative. I was almost relieved, because I don't know how I would have made it through treatment with doxycycline (or whatever big gun antibiotic they use). And YES I have sensitivities to vitamins. I actually haven't been able to take them even before paxil withdrawal, mainly due to stomach upset. Now that I am gluten free, I am hoping my GI improves enough to try different things again.
Hi Kat,
I hate to spoil the party. It pains me. But it has to be said. Your negative test for Lyme means NOTHING. Absolutely nothing. It doesn't mean you don't have lyme and it doesn't mean you do. It is a worthless indicator. Long story. Trust me. Lyme disease is a clinical diagnosis...history, symptoms, and presentation. It is not a lab diagnosis because there are no lab tests that are accurate. The lab tests we use were designed by the CDC for regional surveillance (where error will not hurt the overall picture very much), not for individual diagnosis (where error will impact your life like a nuclear bomb.)
No way to know at this point. The symptom profile and history seems to fit. In my humble opinion, the chapter on Lyme disease in your life is still open.
I can't tell you how many thousands of people went on to suffer grueling lives of MS, arthritis, depression, ill health of all kinds, because one single lab test said "Lyme-negative".
It reminds me of a judge sentencing an innocent prisoner to a life of solitairy confinement based on one piece of disputable evidence that is falsely assumed to be authentic fact.
Those same people went on to recover amazingly when for one reason or another (usually a different doctor) they were put on antibiotics or herbs.
Just throwin it out there. People should know, regardless of what they do with the knowledge. Awareness is key.
Posted by Katgirl on April 11, 2010, at 7:38:37
In reply to Re: Start AD's at lower than FDA starting Dose, posted by bleauberry on April 10, 2010, at 14:39:39
Oh boy. Wow, OK not sure where to go with that. I would hate to dose my poor sensitive body with a ton of antibiotics I might not need. So, how in the world is Lyme's dx'd. Through exclusion of all else?
To be clear, not at all disagreeing with you here, just a little overwhelmed with that bit of information.
Right now just struggling to keep body and soul together after 4 weeks of some kind of horrible virus/influenza turned infection that has kept me barely functional the last four weeks.
I WOULD like to get more information on Lyme's once this latest health crises has past.
Thanks for the heads up,
Kat
Posted by Phillipa on April 11, 2010, at 7:38:38
In reply to Re: Start AD's at lower than FDA starting Dose, posted by Katgirl on April 10, 2010, at 16:24:07
Kat lots of googles out there on the disease. Any arthritis?, heart problems, Neurological. The three biggies. Not everyone has lymes and some one l0 day course of doxycycline rids them of the illness. As long as not an old infection. Phillipa
Posted by manic666 on May 19, 2010, at 3:49:29
In reply to Re: Start AD's at lower than FDA starting Dose » Katgirl, posted by Phillipa on April 11, 2010, at 7:38:38
well that sure messed her day//how do you sleep at night
This is the end of the thread.
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