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Dr. Bob is Robert Hsiung, MD,
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Posted by surfergirl on June 3, 2009, at 23:47:54
Hi all,
I have been sick with a a variety of problems--lupus, thyroid cancer, migraines for over 10 years. I had a lot of trauma in my childhood & feel like this may have contributed to me being sick. Until the last 3 years, I pretty much tried to avoid all doctors, and only saw my chiropractor & a naturopath, but I got too sick. I gave in & now have a bunch of doctor's managing my problems. I luckily found some good doctors & decided to add in a PD to the mix.It has been an interesting 5 months. I have been diagnosed with adult ADD & narcolepsy. I am currently on Adderal XR 10 mg twice a day. I have been on Xyrem for a month. My mild cataplexy is already gone, but I am not sure I like how I feel on it--spacey & disconnected at times. I am taking break from it for a little while, maybe a week & will then re-evaluate.
My PD says that the Xyrem will give me restorative sleep, which I probably have not had in 30 plus years (I am 46) & might help with my immune system and pain issues. I do know that I no longer need to take Lasix 40 mg a day as a diuretic. This is pretty amazing since if I skipped one day, I would totally swell up.
I am not sure if my kidneys are functioning better or if the dopamine increase from the Xyrem & the Adderal is giving them a boost. Does anyone have any insight into this.
I am professional (a RN), have a great job working with people with rare diseases, have a husband & 3 teenage children. I think it is kinda crazy that I am taking these meds. It has been hard for me to wrap my head around the diagnosis & treatment. But I feel relaxed & focused on Adderal. I know I need it. Its the Xyrem I have some doubts about.
thanks for all replies,
Surfergirl
This is the end of the thread.
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