Shown: posts 1 to 3 of 3. This is the beginning of the thread.
Posted by judy1 on January 12, 2001, at 11:04:05
I hope you don't mind sharing your experiences. My nephew was recently born cyanotic- when they rushed him to ICU, they discovered bones? in his nose were fused and they placed tubes in his nose so he could breathe. He is at home now (2 months old) and the tubes have to be suctioned hourly and he is on a monitor. Apparently he is doing well and they anticipate taking the tubes out but he still will have to stay on this monitor that alarms when his breathing stops. Are you still hooked up to a monitor, or was that just used for the testing? Would you mind sharing your prognosis and posssible medications you take for this? I worry a lot about the little guy. Thank you so much- Judy
Posted by Noa on January 12, 2001, at 13:08:02
In reply to Noa- questions on your sleep apnea?, posted by judy1 on January 12, 2001, at 11:04:05
There are different kinds of apnea, so I don't think I can comment on your nephew's condition.
I don't have any monitors. They did use all kinds of monitoring devices during the testing, but I don't need one now.
As long as I use the CPAP (Continuous Positive Airway Pressure) machine, I am fine. In fact, I have become so accustomed to using it and being able to breath well while sleeping, that if the electricity goes off, or if my mask falls off, I wake up immediately.
The type of apnea I have is called obstructive sleep apnea. My airway is obstructed when I lie down, because of a combination of small airway, low muscle tone, and lots of fat around the neck.
I don't take medicine for the apnea--just use the CPAP.
I am sorry your nephew has this condition, but am glad there is the technology to monitor him and prevent cessation of breathing. Do they anticipate that as he grows, the problem will lessen? Will they do surgery at some point?
Posted by judy1 on January 12, 2001, at 18:45:55
In reply to Re: Noa- questions on your sleep apnea?, posted by Noa on January 12, 2001, at 13:08:02
Hi Noa,
Thanks for responding, I wasn't familiar with the machine you use, I'm really glad it helps you. I don't know what the future holds for my nephew, I think they are hoping that once they remove the tubes he will be able to breathe on his own. If not, it's comforting to know that the technolgy you use is available. Take care, Judy
This is the end of the thread.
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