Psycho-Babble Medication Thread 52294

Shown: posts 1 to 25 of 44. This is the beginning of the thread.

 

Sources of Ritalin/Dexedrine/Adderall

Posted by Leonardo on January 23, 2001, at 8:37:46

I'm looking for online pharmacy sources of Ritalin, dexedrine or adderall for ADHD... little joy so far, especially with the Ritalin which would be my first choice ( I tried some of my son's and it worked well...)

Any ideas where I can order any of these?

Thanks
Leonardo

 

Re: Sources of Ritalin. » Leonardo

Posted by JahL on January 23, 2001, at 10:38:10

In reply to Sources of Ritalin/Dexedrine/Adderall, posted by Leonardo on January 23, 2001, at 8:37:46

> I'm looking for online pharmacy sources of Ritalin, dexedrine or adderall for ADHD... little joy so far, especially with the Ritalin which would be my first choice ( I tried some of my son's and it worked well...)
>
> Any ideas where I can order any of these?
>
> Thanks
> Leonardo

Hi Leonardo.

You have quite a job in hand.

A couple of months ago I searched the net exhaustively for stimulants (IMPOSSIBLE to get prescribed in England) and all I could find was Ritalin under the antidepressant section of < payless4rx.com >. Unfortunately their website seems to be under reconstruction at the mo (keep trying?).

Eventually, out of desperation, I jumped on a plane 2 America where a pdoc had little hesitation in prescribing 4 different samples of stimulant 4 trialing.

Good luck,
Jah.

 

Re: Sources of Ritalin - Adderall easier? » JahL

Posted by Leonardo on January 23, 2001, at 11:46:28

In reply to Re: Sources of Ritalin. » Leonardo, posted by JahL on January 23, 2001, at 10:38:10

> > I'm looking for online pharmacy sources of Ritalin, dexedrine or adderall for ADHD... little joy so far, especially with the Ritalin which would be my first choice ( I tried some of my son's and it worked well...)
> >
> > Any ideas where I can order any of these?
> >
> > Thanks
> > Leonardo
>
> Hi Leonardo.
>
> You have quite a job in hand.
>
> A couple of months ago I searched the net exhaustively for stimulants (IMPOSSIBLE to get prescribed in England) and all I could find was Ritalin under the antidepressant section of < payless4rx.com >. Unfortunately their website seems to be under reconstruction at the mo (keep trying?).
>
> Eventually, out of desperation, I jumped on a plane 2 America where a pdoc had little hesitation in prescribing 4 different samples of stimulant 4 trialing.
>
> Good luck,
> Jah.

Thanks Jah

I think I came across a source of Adderall, but as I was mainly looking for Ritalin I didn't make a note of it! Bummer...

I managed to get my son prescribed Ritalin for ADHD within 1 week by going to a private consultant in the UK. Like you say, for adults it's not so easy. I have quite a good Pdoc who hasn't ruled out stimulants, but wants to try conventional things first, to see if my concentration/attention problems are just due to depression (I don't think so, I've always had them). I'm going on sertraline (Zoloft) next, but have to wait 4 weeks for selegeline to wash out (my fault - I got that from the internet w/o prescription...)

I take it you're in the UK too?? How did you get on with your trial of stimulants?

Best wishes
Leonardo

 

Re: Sources of Ritalin - Adderall easier?

Posted by Shell on January 23, 2001, at 22:25:23

In reply to Re: Sources of Ritalin - Adderall easier? » JahL, posted by Leonardo on January 23, 2001, at 11:46:28

> > > I'm looking for online pharmacy sources of Ritalin, dexedrine or adderall for ADHD... little joy so far, especially with the Ritalin which would be my first choice ( I tried some of my son's and it worked well...)
> > >
> > > Any ideas where I can order any of these?
> > >
> > > Thanks
> > > Leonardo
> >
> > Hi Leonardo.
> >
> > You have quite a job in hand.
> >
> > A couple of months ago I searched the net exhaustively for stimulants (IMPOSSIBLE to get prescribed in England) and all I could find was Ritalin under the antidepressant section of < payless4rx.com >. Unfortunately their website seems to be under reconstruction at the mo (keep trying?).
> >
> > Eventually, out of desperation, I jumped on a plane 2 America where a pdoc had little hesitation in prescribing 4 different samples of stimulant 4 trialing.
> >
> > Good luck,
> > Jah.
>
> Thanks Jah
>
> I think I came across a source of Adderall, but as I was mainly looking for Ritalin I didn't make a note of it! Bummer...
>
> I managed to get my son prescribed Ritalin for ADHD within 1 week by going to a private consultant in the UK. Like you say, for adults it's not so easy. I have quite a good Pdoc who hasn't ruled out stimulants, but wants to try conventional things first, to see if my concentration/attention problems are just due to depression (I don't think so, I've always had them). I'm going on sertraline (Zoloft) next, but have to wait 4 weeks for selegeline to wash out (my fault - I got that from the internet w/o prescription...)
>
> I take it you're in the UK too?? How did you get on with your trial of stimulants?
>
> Best wishes
> Leonardo

I'm in the States and the law requires Schedule II drugs (Ritalin, Adderall, Dexedrine and Concerta are all Schedule II) to have a written prescription (a doctor can not call it into the pharmacy). The prescription can also not have refills; you must pick up a new prescription from your doctor every month. This would make it difficult to order any of these drugs online from a US-based pharmacy, though I suppose it is possible to mail in your original prescription to the online pharmacy each month.

Even under the best circumstances, it isn't a convenient system. My doctor and pharmacy are both quite helpful and close to my home and I still find it to be a pain getting my prescription filled each month.

Good luck in your search. I really hope you can find a physician that will prescribe the drugs you need. I'm not sure what the applicable British law is, but it I would be leery of ordering a Schedule II drug without a prescription as I'm not sure how legal that is. I have also heard too many stories of problems with overseas online pharmacies (lost orders, no phone number, unanswered emails, etc).

Shell

PS - Is it really impossible for adults to be prescribed stimulants for ADHD in England? Is there a law prohibiting it or is there some other reason (just curious)? It really isn't a big deal here. A psychologist diagnosed me with ADHD and mentioned that I might want to try medication. She also sent a written report to my family doctor (probably equivalent to a British GP). The next time I saw my doctor, I asked her about it and she wrote me a prescription for Concerta (which I really like). I had no idea it was so much more difficult elsewhere.

 

Prescriptions for ADHD stimulants, Ritalin etc » Shell

Posted by Leonardo on January 24, 2001, at 5:42:05

In reply to Re: Sources of Ritalin - Adderall easier?, posted by Shell on January 23, 2001, at 22:25:23

>I'm in the States and the law requires Schedule II drugs (Ritalin, Adderall, Dexedrine and Concerta are all Schedule II) to have a written prescription (a doctor can not call it into the pharmacy). The prescription can also not have refills; you must pick up a new prescription from your doctor every month. This would make it difficult to order any of these drugs online from a US-based pharmacy, though I suppose it is possible to mail in your original prescription to the online pharmacy each month.
>
> Even under the best circumstances, it isn't a convenient system. My doctor and pharmacy are both quite helpful and close to my home and I still find it to be a pain getting my prescription filled each month.
>
> Good luck in your search. I really hope you can find a physician that will prescribe the drugs you need. I'm not sure what the applicable British law is, but it I would be leery of ordering a Schedule II drug without a prescription as I'm not sure how legal that is. I have also heard too many stories of problems with overseas online pharmacies (lost orders, no phone number, unanswered emails, etc).
>
> Shell
>
> PS - Is it really impossible for adults to be prescribed stimulants for ADHD in England? Is there a law prohibiting it or is there some other reason (just curious)? It really isn't a big deal here. A psychologist diagnosed me with ADHD and mentioned that I might want to try medication. She also sent a written report to my family doctor (probably equivalent to a British GP). The next time I saw my doctor, I asked her about it and she wrote me a prescription for Concerta (which I really like). I had no idea it was so much more difficult elsewhere.
-------

Hi Shell! Thanks for your help.

My situation is that I am being treated for depression (including seasonal affective disorder), but the possibility that I have ADHD too is a new one I've only recently started discussing with my psychiatrist. The drugs Ritalin and Dexedrine can be prescribed in the UK, haven't checked about Adderall and Concerta yet. According to the British National Formulary, Ritalin is only prescribed for childhood ADHD, similar for Dexedrine. They are specifically excluded for treating depression. So it looks like you need an ADHD diagnosis to get the prescription. Unfortunately, ADHD isn't officially recognised in adults yet in the UK, so adults getting stimulants prescribed is more difficult. I need to do more research to see if any adults in the UK are getting stimulants offically for ADHD, I don't know yet.

I think my Pdoc may eventually let me try stimulants, but only if he is convinced that my concentration/attention/memeory problems can't be explained just by the depression. I will need to try some different antidepressants and show that I can be free of depression, but still have ADHD symptoms..... Unfortunately, this process will take several months at least, as I have not yet found a really successful cure for my depression. A quick trial of Ritalin etc would give me a good idea of whether I really do have ADHD or not, though of course my Pdoc can't support this.

I have ordered drugs from 2 online pharmacies successfully so far, but they were recommended by people who had already used them. So I was hoping to get a recommendation from here!

Leonardo

 

Re: Prescriptions for ADHD stimulants, Ritalin etc

Posted by Shell on January 24, 2001, at 11:46:15

In reply to Prescriptions for ADHD stimulants, Ritalin etc » Shell, posted by Leonardo on January 24, 2001, at 5:42:05


> My situation is that I am being treated for depression (including seasonal affective disorder), but the possibility that I have ADHD too is a new one I've only recently started discussing with my psychiatrist. The drugs Ritalin and Dexedrine can be prescribed in the UK, haven't checked about Adderall and Concerta yet. According to the British National Formulary, Ritalin is only prescribed for childhood ADHD, similar for Dexedrine. They are specifically excluded for treating depression. So it looks like you need an ADHD diagnosis to get the prescription. Unfortunately, ADHD isn't officially recognised in adults yet in the UK, so adults getting stimulants prescribed is more difficult. I need to do more research to see if any adults in the UK are getting stimulants offically for ADHD, I don't know yet.

Hmm...sounds pretty complicated. I wonder what happens with ADHD children. Is their medication terminated on their 18th birthday? I would be surprised were there not more than a few who discontinued medication upon reaching adulthood and noticed a decrease in functioning. Do you think these patients are ever allowed to resume the medication, despite being adults? If so, that would set a precedent for adults being prescribed stimulants for ADHD.

> I think my Pdoc may eventually let me try stimulants, but only if he is convinced that my concentration/attention/memeory problems can't be explained just by the depression. I will need to try some different antidepressants and show that I can be free of depression, but still have ADHD symptoms..... Unfortunately, this process will take several months at least, as I have not yet found a really successful cure for my depression. A quick trial of Ritalin etc would give me a good idea of whether I really do have ADHD or not, though of course my Pdoc can't support this.

I'm not convinced that you should have to get the depression under control and then demonstrate that you still have ADHD symptoms. If your doctor isn't convinced that concentration/memory/attention problems are not caused by the depression, even if all your other depression symptoms disappear, he could still argue that those problems are simply remnants of the depression unrelieved by the medication (rather than caused by ADHD). Were that the case, would he still be willing to prescribe a stimulant to augment the antidepressant(s)?

It's not clear to me whether you feel you do have ADHD (since you have only recently began to discuss the possibility) or if you feel that the addition of a stimulant will help alleviate your depression. There are a number of online screening tests that could give you a good idea if ADHD is a possibility. I'm not sure if your doctor mentioned it, but one way to distinguish ADHD symptoms from depression symptoms is by comparing their time of onset. If your attention/concentration problems are due to depression, they would have started when the depression did. If they are due to ADHD, they would have always been there, even when you didn't have depression. One of the things that must exist in order to have an ADHD diagnosis (according to the DSM-IV - do they use that in the UK?) is that the symptoms were present before age 7 or 8. Unless you were a depressed child, I would think that if you had those problems for as long as you can remember, that would point to ADHD rather than depression as the causative factor.

For what it is worth, I can tell you that I was initially treated for depression. My doctor sent me to a psychologist for therapy in addition to the medication she was prescribing (Effexor and Wellbutrin). At the first session, the psychologist diagnosed ADHD-inattentive type and we started Concerta (which is just an extended release version of Ritalin). My attention problems did improve dramatically the first day, but the real surprise was that the depression seemed to respond to it as well. That could be coincidence however, since I added the Wellbutrin only a month or so before and it may have been that the Wellbutrin effects were just beginning to be noticable around the same time. I'm not asking too many questions, since the combination works for both the ADHD and the depression (dropped the Effexor, it didn't seem to help).

>
> I have ordered drugs from 2 online pharmacies successfully so far, but they were recommended by people who had already used them. So I was hoping to get a recommendation from here!
>
> Leonardo

Has your doctor indicated that he would prescribe a stimulant if you could prove that your symptoms improve when you take one (probably not, but thought I'd ask)? I have read that most people, even those without ADHD or depression seem to have some degree of improved concentration with stimulants, so I'm not sure that the fact that you respond favorably to them would convince him that you have ADHD (were that what you intended).

I'm sorry I can't be more helpful. I have no medical or psychological training, so my opinions are just my opinions..I could very well be way off base. I've just been there and done that. Perhaps it would help to bring the results of a self-administered ADHD test to his attention at your next appointment.

Shell

PS - I have heard that doctors in the UK feel that ADHD is overdiagnosed in the US (and it may well be). I read something recently that suggests an explanation of why the incidence of ADHD may actually be higher in US than in the UK. The assertion was that the type of people who would be willing to leave an established society to start over in an unknown country would be more likely to have a higher incidence of ADHD (due to the ADHD personality being both less resistant to change and more novelty seeking). They then explain that these were the type of people to immigrate to the US in large numbers and since ADHD has a genetic component, it would follow that this country started with a higher level of ADHD type genes in the gene pool, which is continued through their offspring.

 

Re: Sources of Ritalin - Adderall easier? » Shell

Posted by kazoo on January 25, 2001, at 2:13:10

In reply to Re: Sources of Ritalin - Adderall easier?, posted by Shell on January 23, 2001, at 22:25:23

> I'm in the States and the law requires Schedule II drugs (Ritalin, Adderall, Dexedrine and Concerta are all Schedule II) to have a written prescription (a doctor can not call it into the pharmacy).

^^^^^^^^^^^
Greetz to Shell:

CORRECTION: A doctor *can* call in Control II substances but he MUST follow up with a written prescription within 48 hours (or the DEA will get mad, Tsk! Tsk! Tsk!).

kazoo

 

Adult ADHD - getting stimulants prescribed (UK) » Shell

Posted by Leonardo on January 25, 2001, at 7:53:34

In reply to Re: Prescriptions for ADHD stimulants, Ritalin etc, posted by Shell on January 24, 2001, at 11:46:15

Hi Shell

Many thanks for your thoughtful responses. I'm not sure if many adults in the UK are getting Ritalin etc for ADHD. I personally know of one adult who gets dexedrine for ADHD (one of my son's teachers, who helped pinpoint that he had ADHD!) I need to do more research on the ADHD web sites, I guess, and try to contact my son's teacher aboout her experience.

But I think it is common for children in the UK to stop getting Ritalin when they reach adolescence, never mind reaching 18! So the question of continuing it into adulthoodprobably doesn't arise much in the UK so far.

I scored 18/20 on one adult ADHD checklist I saw, I don't think it was a proper diagnosis form though. Do you have the URLs of any good sites where I can follow up?

I did have the concentration/attention problems way back into my school days, but mostly I was bright enough to get around them. I didn't have the hyperactivity component, but I did have many of the other symptoms. Proving it back to age 7/8 would be tricky though. In retrospect I think my first run-ins with depression were due to an inability to cope with university/work demands due to concentration problems when I lost the familiar support of my school days.

I don't think DSM-IV is applicable in the UK, and like I said, I don't think adult ADHD is yet recognised as a real condition in the UK. My Pdoc seems sufficiently switched on to accept it in principle and bend the rules - he has already let me continue taking deprenyl as trial AD, even though that also is not approved in the UK for depression (I bought that on the net).

I am worried that I might nevr get to try stimulants for the reasons you describe (ie he might always argue its related to the depresion). Which is why I wanted to do trial of Ritalin to see if it is worth stepping up the pressure!

I am personally convinced that I always have had ADHD-inattentive, but I guess I will never be sure unless I get to trial the drugs. It is possible as you say that the positive boost I had to the few tablets I took was just the same buzz anyone gets out of taking a stimulant. But the fact that it works so well for my son, and that ADHD would explain so many of my problems, makes me think it was a real response.

I love your theory about why ADHD is more common in the US than the UK (apparently), that it was proportionately more ADHD people who emigrated because of novelty seeking! I don't imagine it accounts for the whole difference, but it could well be a real effect. I read somewhere that ADD would not necessarily have been a disadvantage to ancient man - sitting round the fire otside your cave etc, it would be an advantage to be distracted by the noises of fierce beasts prowling nearby. So its not surprising that the tendency has been passed down the generations.

If your theory is true, it may account for another puzzle I have - my real surname is much more common in the US than it is in the UK! So if ADHD runs in my family line, maybe a lot of us emigrated to the US when we had the chance!

Best wishes
Leonardo

 

Re: Adult ADHD - getting stimulants prescribed (UK)

Posted by Adele on January 25, 2001, at 16:35:04

In reply to Adult ADHD - getting stimulants prescribed (UK) » Shell, posted by Leonardo on January 25, 2001, at 7:53:34

> Hi Shell
>
> Many thanks for your thoughtful responses. I'm not sure if many adults in the UK are getting Ritalin etc for ADHD. I personally know of one adult who gets dexedrine for ADHD (one of my son's teachers, who helped pinpoint that he had ADHD!) I need to do more research on the ADHD web sites, I guess, and try to contact my son's teacher aboout her experience.
>
> But I think it is common for children in the UK to stop getting Ritalin when they reach adolescence, never mind reaching 18! So the question of continuing it into adulthoodprobably doesn't arise much in the UK so far.
>
> I scored 18/20 on one adult ADHD checklist I saw, I don't think it was a proper diagnosis form though. Do you have the URLs of any good sites where I can follow up?
>
> I did have the concentration/attention problems way back into my school days, but mostly I was bright enough to get around them. I didn't have the hyperactivity component, but I did have many of the other symptoms. Proving it back to age 7/8 would be tricky though. In retrospect I think my first run-ins with depression were due to an inability to cope with university/work demands due to concentration problems when I lost the familiar support of my school days.
>
> I don't think DSM-IV is applicable in the UK, and like I said, I don't think adult ADHD is yet recognised as a real condition in the UK. My Pdoc seems sufficiently switched on to accept it in principle and bend the rules - he has already let me continue taking deprenyl as trial AD, even though that also is not approved in the UK for depression (I bought that on the net).
>
> I am worried that I might nevr get to try stimulants for the reasons you describe (ie he might always argue its related to the depresion). Which is why I wanted to do trial of Ritalin to see if it is worth stepping up the pressure!
>
> I am personally convinced that I always have had ADHD-inattentive, but I guess I will never be sure unless I get to trial the drugs. It is possible as you say that the positive boost I had to the few tablets I took was just the same buzz anyone gets out of taking a stimulant. But the fact that it works so well for my son, and that ADHD would explain so many of my problems, makes me think it was a real response.
>
> I love your theory about why ADHD is more common in the US than the UK (apparently), that it was proportionately more ADHD people who emigrated because of novelty seeking! I don't imagine it accounts for the whole difference, but it could well be a real effect. I read somewhere that ADD would not necessarily have been a disadvantage to ancient man - sitting round the fire otside your cave etc, it would be an advantage to be distracted by the noises of fierce beasts prowling nearby. So its not surprising that the tendency has been passed down the generations.
>
> If your theory is true, it may account for another puzzle I have - my real surname is much more common in the US than it is in the UK! So if ADHD runs in my family line, maybe a lot of us emigrated to the US when we had the chance!
>
> Best wishes
> Leonardo

Interesting, My husband has ADHD, and possibly I have ADD. We moved to the states from the UK in 1987. Our daughter was diagnosed with ADHD 2 years ago....Interesting how we ended up here though...MY husbands and artist...Definitely lots and lots of ADHD/ADD in the States! Maybe its all the TV ads/sound bites!

ADELE

 

Re: Sources of Ritalin. » Leonardo

Posted by JahL on January 25, 2001, at 17:48:15

In reply to Re: Sources of Ritalin - Adderall easier? » JahL, posted by Leonardo on January 23, 2001, at 11:46:28


> I have quite a good Pdoc who hasn't ruled out stimulants, but wants to try conventional things first, to see if my concentration/attention problems are just due to depression (I don't think so, I've always had them). I'm going on sertraline (Zoloft) next, but have to wait 4 weeks for selegeline to wash out (my fault - I got that from the internet w/o prescription...)
>
> I take it you're in the UK too??

YEAH.

How did you get on with your trial of stimulants?
>
> Best wishes
> Leonardo

Hi Leonardo. The stims did nothing for me but the point is it took just 2 weeks (& 2x 11hr flights!) to rule out an entire class of medicine (=peace of mind). I really can't see what the fuss is about; if you're going to 'abuse' ('their' term) drugs there are so many better ones on offer. They actually made me a bit edgy & I couldn't wait to get off them.

It sounds to me like you're unnecessarily denying yourself a treatment that holds obvious benefit. And the fact that yr son's been diagnosed ADHD increases the likelihood that you have some co-morbid ADD/HD.

Why not ask yr pdoc 4 a 2 week trial of Ritalin (@ a conservative dose), working on the basis that yr depression may begin to remit upon resolution of yr cognitive difficulties. My current (US) pdoc had no hesitation in prescribing stims because he has witnessed this happening before in his surgery. Besides, like you, I've *always* had attn difficulties & scored highly on the 'ADD-o-meter'.

Alternatively you could ask to augment one of yr partially-effective SSRIs with a stimulant, a reasonably common/acceptable practise in refractory depression.

4 week wash-out followed by a, what, 8wk trial of Zoloft sounds an awful long time to me...

Rgds,
Jah.

 

Re: Sources of Ritalin. » JahL

Posted by Leonardo on January 26, 2001, at 5:34:44

In reply to Re: Sources of Ritalin. » Leonardo, posted by JahL on January 25, 2001, at 17:48:15

Thanks Jah

I agree with all you say, which is why I am desperate to do the Ritalin trial even if it is unofficial! So far I've just tried a few tablets from my son's supply, but he needs them of course so I can't keep doing that. Very promising. I haven't been able to get hold of any more yet. My Pdoc is actually more progressive than most in the UK I think, and getting referrals from your doctor is not so easy as in the US I think. I will keep up the pressure, but O don't want to piss him off in case he digs his heels in completely.

Leonardo

>
> > I have quite a good Pdoc who hasn't ruled out stimulants, but wants to try conventional things first, to see if my concentration/attention problems are just due to depression (I don't think so, I've always had them). I'm going on sertraline (Zoloft) next, but have to wait 4 weeks for selegeline to wash out (my fault - I got that from the internet w/o prescription...)
> >
> > I take it you're in the UK too??
>
> YEAH.
>
> How did you get on with your trial of stimulants?
> >
> > Best wishes
> > Leonardo
>
> Hi Leonardo. The stims did nothing for me but the point is it took just 2 weeks (& 2x 11hr flights!) to rule out an entire class of medicine (=peace of mind). I really can't see what the fuss is about; if you're going to 'abuse' ('their' term) drugs there are so many better ones on offer. They actually made me a bit edgy & I couldn't wait to get off them.
>
> It sounds to me like you're unnecessarily denying yourself a treatment that holds obvious benefit. And the fact that yr son's been diagnosed ADHD increases the likelihood that you have some co-morbid ADD/HD.
>
> Why not ask yr pdoc 4 a 2 week trial of Ritalin (@ a conservative dose), working on the basis that yr depression may begin to remit upon resolution of yr cognitive difficulties. My current (US) pdoc had no hesitation in prescribing stims because he has witnessed this happening before in his surgery. Besides, like you, I've *always* had attn difficulties & scored highly on the 'ADD-o-meter'.
>
> Alternatively you could ask to augment one of yr partially-effective SSRIs with a stimulant, a reasonably common/acceptable practise in refractory depression.
>
> 4 week wash-out followed by a, what, 8wk trial of Zoloft sounds an awful long time to me...
>
> Rgds,
> Jah.

 

Re: Sources of Ritalin - Adderall easier? » kazoo

Posted by Shell on January 28, 2001, at 21:32:45

In reply to Re: Sources of Ritalin - Adderall easier? » Shell, posted by kazoo on January 25, 2001, at 2:13:10

> ^^^^^^^^^^^
> Greetz to Shell:
>
> CORRECTION: A doctor *can* call in Control II substances but he MUST follow up with a written prescription within 48 hours (or the DEA will get mad, Tsk! Tsk! Tsk!).
>
> kazoo

Thanks for the clarification! Maybe it's just MY doctor that won't call one one in...she probably doesn't want to take the risk of not following up within 48 hours (though I'd guess she'd call one in were it an emergency).

Shell

 

Re: Adult ADHD - getting stimulants prescribed (UK) » Leonardo

Posted by Shell on January 28, 2001, at 22:38:58

In reply to Adult ADHD - getting stimulants prescribed (UK) » Shell, posted by Leonardo on January 25, 2001, at 7:53:34

> Hi Shell
>
> Many thanks for your thoughtful responses. I'm not sure if many adults in the UK are getting Ritalin etc for ADHD. I personally know of one adult who gets dexedrine for ADHD (one of my son's teachers, who helped pinpoint that he had ADHD!) I need to do more research on the ADHD web sites, I guess, and try to contact my son's teacher aboout her experience.
>
> But I think it is common for children in the UK to stop getting Ritalin when they reach adolescence, never mind reaching 18! So the question of continuing it into adulthoodprobably doesn't arise much in the UK so far.
>
> I scored 18/20 on one adult ADHD checklist I saw, I don't think it was a proper diagnosis form though. Do you have the URLs of any good sites where I can follow up?

I will look. I know I have found a few sites with different rating scales (but all the tests gave me similar results). I will send you the URLs when I find them.


>
> I did have the concentration/attention problems way back into my school days, but mostly I was bright enough to get around them. I didn't have the hyperactivity component, but I did have many of the other symptoms. Proving it back to age 7/8 would be tricky though. In retrospect I think my first run-ins with depression were due to an inability to cope with university/work demands due to concentration problems when I lost the familiar support of my school days.

It would be hard to "prove" it. I know that it is recommended that the therapist interview parents, other older relatives, teachers, etc., though the older one gets the more difficult this becomes. Parental interviews were not a part of my diagnosis; it was based on my own recollection of my childhood. I did tell my psychologist about things that had been said about me as a child (my mother has called me the "absent-minded professor" since I was in Kindergarten (age 5) and has also told me I couldn't survive without a "keeper". Pehaps you may be able to recall similar remarks.

School records are another thing often used in diagnosis. They look for comments like "Johnny seems to be a bright boy, but really needs to apply himself, pay more attention, etc". They also look for IQ scores and achievement test scores that are significantly different from grades, i.e., a high IQ with mediocre grades.

However, as you know, the inattentive type of ADD often goes unnoticed. I sent for my school records when I was diagnosed and they were full of comments like "very well-behaved young lady", "model student", "pleasure to have in class", ad nauseum. I suppose I should have been pleased, but I was concerned that the comments would perhaps negate my other symptoms. The only times I received a B (are you familiar with the American grading system?)in school was in penmanship in the 3rd-5th grades and in typing in high school. I was sure that I would be told that I could not possibly have ADD. Instead, I was told that it is not uncommon for for people with above average intelligence to have good grades and no history of behavior problems because of the structured environment of school. I didn't fall apart (academically) until my sophomore year in college (Should I say university? It's strange that it is common for higher education to be referred to as "college" in the US, whether one attends a university (as I did) or a college. Oops, I am way off topic!).

One thing that may (or may not depending on your circumstances) point towards ADD is a history of frequent changes of major while in college (there it is again!) or frequent job changes. People with ADD often find they have lower levels of academic and/or workplace achievement than would be expected by someone with their level of ability.

>
> I don't think DSM-IV is applicable in the UK, and like I said, I don't think adult ADHD is yet recognised as a real condition in the UK. My Pdoc seems sufficiently switched on to accept it in principle and bend the rules - he has already let me continue taking deprenyl as trial AD, even though that also is not approved in the UK for depression (I bought that on the net).

If he is willing to try new things, he's a keeper! Have you considered asking your son's teacher about the possibility of a consultation with his/her doctor?

>
> I am worried that I might nevr get to try stimulants for the reasons you describe (ie he might always argue its related to the depresion). Which is why I wanted to do trial of Ritalin to see if it is worth stepping up the pressure!

The more I read about ADD, the more I think it is likely that the depression symptoms are a result of living with untreated ADD.

>
> I am personally convinced that I always have had ADHD-inattentive, but I guess I will never be sure unless I get to trial the drugs. It is possible as you say that the positive boost I had to the few tablets I took was just the same buzz anyone gets out of taking a stimulant. But the fact that it works so well for my son, and that ADHD would explain so many of my problems, makes me think it was a real response.

I have read somewhere (I will REALLY have to go back and find theses references) what percentage of the parents of ADD children have ADD themselves, but I can't remember it. I think it was something likee 25-50%, but don't hold me to that...I will check to be sure.

I would agree that a family history of ADD (your son) and definite ADD-type symptoms would make it seem that your response to stimulants was indeed a good response (reduction of your symptoms). I only meant to anticipate (you know, devil's advocate kind of thing) any negative response you might receive.
>


> I love your theory about why ADHD is more common in the US than the UK (apparently), that it was proportionately more ADHD people who emigrated because of novelty seeking! I don't imagine it accounts for the whole difference, but it could well be a real effect. I read somewhere that ADD would not necessarily have been a disadvantage to ancient man - sitting round the fire otside your cave etc, it would be an advantage to be distracted by the noises of fierce beasts prowling nearby. So its not surprising that the tendency has been passed down the generations.
>
> If your theory is true, it may account for another puzzle I have - my real surname is much more common in the US than it is in the UK! So if ADHD runs in my family line, maybe a lot of us emigrated to the US when we had the chance!

I wish I could take credit for the theory about why there is a higher rate of ADD in the US, but I read that somewhere...I just can't remember where (this is getting to be a pattern)! I suppose it is probably just one possible factor among many...though it is intriguing. Perhaps my ancestors had some ADD-type symptoms which made it more difficult for them to adapt to whatever social system was in place, so they left. Knowing my family, that would not be unlikely!

 

Re: Adult ADHD - getting stimulants prescribed (UK) » Shell

Posted by Leonardo on January 29, 2001, at 10:53:49

In reply to Re: Adult ADHD - getting stimulants prescribed (UK) » Leonardo, posted by Shell on January 28, 2001, at 22:38:58

> > I scored 18/20 on one adult ADHD checklist I saw, I don't think it was a proper diagnosis form though. Do you have the URLs of any good sites where I can follow up?
>
> I will look. I know I have found a few sites with different rating scales (but all the tests gave me similar results). I will send you the URLs when I find them.
>
>
Thanks for the good info. I too went to pieces as soon as I started University... I'm having a really bad day today, so hope to reply more when I feel better.

Leonardo

 

Re: Adult ADHD - getting stimulants prescribed (UK)

Posted by Leonardo on February 27, 2001, at 6:16:16

In reply to Re: Adult ADHD - getting stimulants prescribed (UK) » Leonardo, posted by Shell on January 28, 2001, at 22:38:58

Hi Shell

I can identify with a lot of what you said about early experiences probably due to undiagnosed ADHD, I too did OK at school, but fell apart in my first year at university (sophomore, right?)

Good news - I now have a private appointment to see a specialist in the UK who can diagnose adult ADHD and prescribe stimulants. Wish me luck! I feel like I need it at the moment..

Best wishes
Leonardo

PS I thought that a university in the US was often called 'school', which seems really bizarre from the UK perspective (school is for kids...) We do have colleges in the UK, they are either less academic type of universities, or even '6th form colleges' (ie age 16-18). That is high school in the US? Yes? No? Now I'm rambling...

> I didn't fall apart (academically) until my sophomore year in college (Should I say university? It's strange that it is common for higher education to be referred to as "college" in the US, whether one attends a university (as I did) or a college. Oops, I am way off topic!).
>

 

Re: Adult ADHD - getting stimulants prescribed (UK)

Posted by Shell on February 28, 2001, at 10:01:13

In reply to Re: Adult ADHD - getting stimulants prescribed (UK), posted by Leonardo on February 27, 2001, at 6:16:16

> Hi Shell
>
> I can identify with a lot of what you said about early experiences probably due to undiagnosed ADHD, I too did OK at school, but fell apart in my first year at university (sophomore, right?)

First year is freshman, second is sophomore, third is junior, fourth is senior. If you don't finish "on-time", we have fifth-year senior, sixth-year senior...etc, but that is another issue! Acutally, the class designation is determined by the amount of work successfully completed. They work that way on the recommended schedule, but it can vary. I once had a roommate in her third year who was still technically a freshman (but that was a sore point...no one ever mentioned it!).


> Good news - I now have a private appointment to see a specialist in the UK who can diagnose adult ADHD and prescribe stimulants. Wish me luck! I feel like I need it at the moment..

I DO wish you luck! I hope you have finally found the person who can help you. Let me know how it goes.

>
> Best wishes
> Leonardo
>
> PS I thought that a university in the US was often called 'school', which seems really bizarre from the UK perspective (school is for kids...) We do have colleges in the UK, they are either less academic type of universities, or even '6th form colleges' (ie age 16-18). That is high school in the US? Yes? No? Now I'm rambling...

University is often called school or college. I guess that one is supposed to be able to tell by context (maybe the person's age?) whether the school is high school or university.

High school in the US is usually 9th-12th grades (sometimes 10th-12th), which correspond roughly to the ages 14-18. This is free (though you can pay for a private school)and compulsory until 16. One can drop out after 16, but it is hard to get a job without a high school diploma.

After high school graduation, the options are usually: get a job, join the military, or attend higher education. We have technical and community colleges (two-year programs that are job oriented or can be transferred to a four year school) which award an Associate (AA,AS) degree. Colleges and universities both award bachelor's (BA, BS) degrees (four-year). The difference is that universities also offer graduate and/or professional degrees, i.e., masters (MA MS), doctorate (PhD), medical (MD, DO), law (JD), business (MBA), etc. Unfortunately for clarity's sake, all institutions of higher education are referred to as "college" or "school".

Talk about digression...I'm really sorry! Maybe that is why it is called Psycho BABBLE.

 

Re: Adult ADHD - getting stimulants prescribed (UK) » Leonardo

Posted by Katz on February 28, 2001, at 15:18:13

In reply to Re: Adult ADHD - getting stimulants prescribed (UK), posted by Leonardo on February 27, 2001, at 6:16:16

>Leonardo,

I'm keeping my fingers crossed and wish you the best of luck in obtaining the stims. I've been wondering how you've been doing, the last time we talked you were about to embark on two new AD trials. Since you're still trying to get stims I guess they didn't work out. BTW, I have an appointment with a pdoc on Monday (thanks to a fellow babbler) in which I will be trying to obtain some ritilin. Here's hoping we will both be successful in our endeavor.

With prayers,

Kathy

Hi Shell
>
> I can identify with a lot of what you said about early experiences probably due to undiagnosed ADHD, I too did OK at school, but fell apart in my first year at university (sophomore, right?)
>
> Good news - I now have a private appointment to see a specialist in the UK who can diagnose adult ADHD and prescribe stimulants. Wish me luck! I feel like I need it at the moment..
>
> Best wishes
> Leonardo
>
> PS I thought that a university in the US was often called 'school', which seems really bizarre from the UK perspective (school is for kids...) We do have colleges in the UK, they are either less academic type of universities, or even '6th form colleges' (ie age 16-18). That is high school in the US? Yes? No? Now I'm rambling...
>
> > I didn't fall apart (academically) until my sophomore year in college (Should I say university? It's strange that it is common for higher education to be referred to as "college" in the US, whether one attends a university (as I did) or a college. Oops, I am way off topic!).
> >

 

Re: Adult ADHD - getting stimulants prescribed (UK) » Shell

Posted by Leonardo on March 4, 2001, at 8:46:54

In reply to Re: Adult ADHD - getting stimulants prescribed (UK), posted by Shell on February 28, 2001, at 10:01:13

> > Good news - I now have a private appointment to see a specialist in the UK who can diagnose adult ADHD and prescribe stimulants. Wish me luck! I feel like I need it at the moment..
>
> I DO wish you luck! I hope you have finally found the person who can help you. Let me know how it goes.
>
Hi Shell

Nice to hear from you again! I got a cancellation appointment at short notice, and saw my new ADHD specialist on Wednesday. He was great! I could have had either Ritalin or dexamphetamine, so I plumped for the dex. I had heard that it was often better for adults, though the doc thought there was no way of knowing which is best without trying them. I have to start at a low dose (2x a half tablet per day) for 5 days, and then go up. So far so good! I will try 2 tablets for the first time tomorrow.

I got a very strong response to the first dose, but it has been tailing off since. The first day I managed to do as much work in 5 hours as I had done in the previous week through lack of concentration. Now I feel OK-ish, but reckon I'll need a much higher dose to really tell. For the last few weeks I was really struggling at work, the odd dose of my son's Ritalin helped, but when I tried the Ritalin alternative Equasym it made me worse and very anxious. Scary.

So I just hoping it will turn out OK as I crank up the dose. It is certainly much more effective than any of the antidepressants I tried before.

I can't remember now what you are taking and how well it is working?

Best wishes
Leonardo

PS the education system in the UK seems to be changing quite quickly at the moment, not sure what will be there when my kids get to university/college/school/whatever!

 

Re: Adult ADHD - getting stimulants prescribed (UK) » Katz

Posted by Leonardo on March 4, 2001, at 9:05:32

In reply to Re: Adult ADHD - getting stimulants prescribed (UK) » Leonardo, posted by Katz on February 28, 2001, at 15:18:13

> >Leonardo,
>
> I'm keeping my fingers crossed and wish you the best of luck in obtaining the stims. I've been wondering how you've been doing, the last time we talked you were about to embark on two new AD trials. Since you're still trying to get stims I guess they didn't work out. BTW, I have an appointment with a pdoc on Monday (thanks to a fellow babbler) in which I will be trying to obtain some ritilin. Here's hoping we will both be successful in our endeavor.
>
> With prayers,
>
> Kathy

Hi Kathy

Many thanks for your thoughts, I can see that you know what its like to go through this dreadful quest of finding someone who can help you! I told my new doc it was like trying to fiond the Holy Grail. He agreed and is annoyed because it shouldn't be so hard.

I was off meds altogether for about 3-4 weeks (quit selegeline), and had a very hard time coping at work, hence I haven't been posting much. I then tried the Zoloft which my SAD specialist recommended, but it was hopeless, made my head go into a real spin, worse than anxiety, just spinning racing thoughts that wouldn't settle down. My GP gave me diazepam (Valium) which calmed me down, but the zoloft obviously wasn't working for me so I quit after about 10 days.

As I just replied to Shell, I got my consult with the ADHD specialist quicker than I thought (my insurance agreed to pay for this guy, I took a cancellation appointment at 24 hours notice and drove half way across the country!) He was great, I'm on the 5th day of dexamphetamine. It is early days, but very promising.

I seem to remember that you didn't think you had ADHD? I found that the symptoms are not always that obvious, it took me 2 years to recognise it in myself after I recognised it in my son. Good luck with your new doc. Have you tried Ritalin before? My new doc is very stricy about the startup regime. For the dex it is a half tablet only, twice a day for 5 days, before going up to 1 tablet am, half at lunch, and half at 4pm. Then its reviewed after 2 weeks. He reckons that people who try to start up too quick can get a bad response which never settles down properly, and they have a lot of trouble later on. This may explain my variable response to the Ritalin I took. I went straight in at a full tablet, taken just occasionally. I got some very good responses, but some bad ones too, so I'm following orders from the doc this time. I think he has about 500 ADHD patients, so I take him seriously!

Best wishes
Leonardo

 

Re: Adult ADHD - getting stimulants prescribed (UK) » Leonardo

Posted by Katz on March 4, 2001, at 9:46:15

In reply to Re: Adult ADHD - getting stimulants prescribed (UK) » Katz, posted by Leonardo on March 4, 2001, at 9:05:32

Leonardo,

I'm sooooo happy for you! I'm thrilled that you have finally gotten the right diagnosis and are well on your way to a treatment stratery that will help. I'll be keeping my fingers crossed that all goes well.

As for me, I don't believe that I have ADHD but ADD is a possibility. I was on Ritilin approx. three years ago for 6 months. I was on 20 mg/day, never increased my dose and had amazing results. Dysthmia, Anhedonia and especially Social Phobia, all greatly improved. The med was discontinued when I was no longer able to travel 3 states away every month to obtain a prescription. My attempts to find a pdoc in my area to prescribe ritilin have been futile up until now.

A note about Dexedrine: The doc the prescribed the ritilin had me on dexedrine first. I eventually got up to 30mg/bid with absolutely no effect. I could take it, rollover and go back to sleep. I think the dex was possibly making me depressed also. But, as the saying goes, "everyone's mileage is different."

Unfortunately, my appt with the new pdoc is tomorrow and it appears it will be cancelled due to what is being hailed "the snowstorm of the century". Predictions are that it may dump 3' of snow here in New England before all is said and done. Looks like the gods are conspiring against me. Aughh! Anyway, I'm glad things worked out for one of us. Keep us posted on your progress.

Best wishes,

Kathy

> > >Leonardo,
> >
> > I'm keeping my fingers crossed and wish you the best of luck in obtaining the stims. I've been wondering how you've been doing, the last time we talked you were about to embark on two new AD trials. Since you're still trying to get stims I guess they didn't work out. BTW, I have an appointment with a pdoc on Monday (thanks to a fellow babbler) in which I will be trying to obtain some ritilin. Here's hoping we will both be successful in our endeavor.
> >
> > With prayers,
> >
> > Kathy
>
> Hi Kathy
>
> Many thanks for your thoughts, I can see that you know what its like to go through this dreadful quest of finding someone who can help you! I told my new doc it was like trying to fiond the Holy Grail. He agreed and is annoyed because it shouldn't be so hard.
>
> I was off meds altogether for about 3-4 weeks (quit selegeline), and had a very hard time coping at work, hence I haven't been posting much. I then tried the Zoloft which my SAD specialist recommended, but it was hopeless, made my head go into a real spin, worse than anxiety, just spinning racing thoughts that wouldn't settle down. My GP gave me diazepam (Valium) which calmed me down, but the zoloft obviously wasn't working for me so I quit after about 10 days.
>
> As I just replied to Shell, I got my consult with the ADHD specialist quicker than I thought (my insurance agreed to pay for this guy, I took a cancellation appointment at 24 hours notice and drove half way across the country!) He was great, I'm on the 5th day of dexamphetamine. It is early days, but very promising.
>
> I seem to remember that you didn't think you had ADHD? I found that the symptoms are not always that obvious, it took me 2 years to recognise it in myself after I recognised it in my son. Good luck with your new doc. Have you tried Ritalin before? My new doc is very stricy about the startup regime. For the dex it is a half tablet only, twice a day for 5 days, before going up to 1 tablet am, half at lunch, and half at 4pm. Then its reviewed after 2 weeks. He reckons that people who try to start up too quick can get a bad response which never settles down properly, and they have a lot of trouble later on. This may explain my variable response to the Ritalin I took. I went straight in at a full tablet, taken just occasionally. I got some very good responses, but some bad ones too, so I'm following orders from the doc this time. I think he has about 500 ADHD patients, so I take him seriously!
>
> Best wishes
> Leonardo

 

Re: Adult ADHD - getting stimulants prescribed (UK » Leonardo

Posted by JahL on March 4, 2001, at 13:38:33

In reply to Re: Adult ADHD - getting stimulants prescribed (UK) » Shell, posted by Leonardo on March 4, 2001, at 8:46:54


> >I got a cancellation appointment at short notice, and saw my new ADHD specialist on Wednesday. He was great! I could have had either Ritalin or dexamphetamine, so I plumped for the dex. I had heard that it was often better for adults, though the doc thought there was no way of knowing which is best without trying them. I have to start at a low dose (2x a half tablet per day) for 5 days, and then go up. So far so good! I will try 2 tablets for the first time tomorrow.

> > I got a very strong response to the first dose, but it has been tailing off since. The first day I managed to do as much work in 5 hours as I had done in the previous week through lack of concentration. Now I feel OK-ish, but reckon I'll need a much higher dose to really tell. For the last few weeks I was really struggling at work, the odd dose of my son's Ritalin helped, but when I tried the Ritalin alternative Equasym it made me worse and very anxious. Scary.

> >So I just hoping it will turn out OK as I crank up the dose. It is certainly much more effective than any of the antidepressants I tried before.

> Best wishes
> Leonardo

Hi Leonardo.

Glad to see you're finally getting the treatment you're due. I'm amazed it was that easy. B4 I flew 2 the US to get stims, my UK pdoc referred me 2 an adult ADD clinic (in Cambridge). The letter I received from them (after *6* weeks) was accompanied by a 15 page questionare. I was told I would also be expected to undergo extensive psychometric testing & various interviews. If after all this, it was decided that I was ADD, I would be given a *single* dose of 1 med, the implication being that a non-reaction means you don't have ADD (!?!). I declined.

My US pdoc recommends test-driving as many stims as possible, to find the one that gives the best results. Why settle for good when you can have great? Something 2 think about.

Anyway, sounds like you've found a good'un-keepahold of him! Good luck with the trial,

Jah.

 

Re: Adult ADHD/ADD - getting stimulants prescribed » Katz

Posted by Leonardo on March 5, 2001, at 8:12:27

In reply to Re: Adult ADHD - getting stimulants prescribed (UK) » Leonardo, posted by Katz on March 4, 2001, at 9:46:15

Hi again Kathy!

Sorry to hear about the snow in New England, hope you managed to get to the appointment. If so how did it go, will he prescribe the stuff? We have been having some snowstorms here in Olde England too, but where I am in the south we get off pretty lightly.

I was interested to hear you say you don't think you have ADHD, but may have ADD. I don't have much of a hyperactivity component, so reckoned I have the DSM-IV category of "ADHD - primarily inattentive type". DSM-IV no longer uses the old term 'ADD' which means the same, but I now notice that most people on PB still talk about ADD rather than ADHD. I think I'll start saying ADHD/ADD to make sure I'm covered!

Anyway, it is certainly possible to have ADHD under the new criteria without ever having been hyperactive. The clincher for me was reading an adult ADD/ADHD checkilist at http://adders.org/info7.htm - give it a go! I scored a good 19 out of 20 and felt sure I was onto something. There are many other checklists around, some bring out problems with relationships and dealing with other people which might be relevant to your social phobia. I too have had low level depression always, and difficulty getting any fun out of life. ADD and depression seem to be closely linked, for me I think the ADD caused the depression because I could never get round to getting my life under control and solving my problems.

There is even an unofficial definition of 6 subtypes of ADD/ADHD including Depressive Subtype, which fits me closest I think. See:

http://user.cybrzn.com/~kenyonck/add/add_legal_public.htm

and also:

http://www.amenclinic.com/ac/addtests/default.asp

Interesting that you didn't respond to dex, but it doesn't mean that you definitely don't have ADD/ADHD. As you say, everyones different in response to meds. The book I read said that about 50% of people respond equally well to Ritalin and dex, but 50% have a markedly better response to one or the other. I hope that Ritalin works again for you this time!

I have found from my limited expereince so far a very similar response to Ritalin and dex, though the dex does seem to be smoother and gentler acting than the Ritalin as others have said. It may be worth keeping an open mind, as I have found different response to taking the same drug at different times, also some different brands of the same stuff seem to be unreliable. I found the Equasym version of Ritalin made we decidedly worse. The dex I have is Dexedrine by Medeva Pharma Ltd.

Well I took a whole 5mg dex pill this morning for the first time, I'm feeling a bit woozy and tight-headed, but it's not much compared to most AD side effects. Otherwise I'm feeling pretty good, despite work crises!

Best Wishes
Leonardo

> Leonardo,
>
> I'm sooooo happy for you! I'm thrilled that you have finally gotten the right diagnosis and are well on your way to a treatment stratery that will help. I'll be keeping my fingers crossed that all goes well.
>
> As for me, I don't believe that I have ADHD but ADD is a possibility. I was on Ritilin approx. three years ago for 6 months. I was on 20 mg/day, never increased my dose and had amazing results. Dysthmia, Anhedonia and especially Social Phobia, all greatly improved. The med was discontinued when I was no longer able to travel 3 states away every month to obtain a prescription. My attempts to find a pdoc in my area to prescribe ritilin have been futile up until now.
>
> A note about Dexedrine: The doc the prescribed the ritilin had me on dexedrine first. I eventually got up to 30mg/bid with absolutely no effect. I could take it, rollover and go back to sleep. I think the dex was possibly making me depressed also. But, as the saying goes, "everyone's mileage is different."
>
> Unfortunately, my appt with the new pdoc is tomorrow and it appears it will be cancelled due to what is being hailed "the snowstorm of the century". Predictions are that it may dump 3' of snow here in New England before all is said and done. Looks like the gods are conspiring against me. Aughh! Anyway, I'm glad things worked out for one of us. Keep us posted on your progress.
>
> Best wishes,
>
> Kathy
>

 

Re: Adult ADHD/ADD - getting stimulants (UK) » JahL

Posted by Leonardo on March 5, 2001, at 8:27:29

In reply to Re: Adult ADHD - getting stimulants prescribed (UK » Leonardo, posted by JahL on March 4, 2001, at 13:38:33

Hi Jah

Well finding out how to get the appointment was not that easy! As you may recall my previos Pdoc was trying everything else first, and I'm not sure that he would have prescribed stims in the end anyway. My GP refused to prescibe without a specialist diagnosis, not surprising I guess. I found the NHS waiting list at the Maudesley hospital in London was 14 months! There is a London clinic called Integrated Neurocare (Dr G Hosking), which charges £775 for a comprehensive diagnosis, but my insurance wouldn't pay. So eventually I found the Bristol Priority Clinic (Dr P Cosgrove) who charges £250 for a diagnosis in a 1.5 hour consultation, and no problem with prescibing stims if diagnosed. Follow ups are by phone.

I had the choice of Ritalin or dex, I'm trying dex, but I think I can switch if it doesn't pan out. He is trying to get Adderall imported, but hasn't got it yet. He is keen on starting at a low dose and working up gradually, and also knows that a 'good' response is not necessarily the best achievable. I think he prefers to exhaust the possibilities of the first trial by upping the dose as far as possible before switching though.

What did you try, did you find a winner? Do you think you have ADD/ADHD or something else?

> Hi Leonardo.
>
> Glad to see you're finally getting the treatment you're due. I'm amazed it was that easy. B4 I flew 2 the US to get stims, my UK pdoc referred me 2 an adult ADD clinic (in Cambridge). The letter I received from them (after *6* weeks) was accompanied by a 15 page questionare. I was told I would also be expected to undergo extensive psychometric testing & various interviews. If after all this, it was decided that I was ADD, I would be given a *single* dose of 1 med, the implication being that a non-reaction means you don't have ADD (!?!). I declined.
>
> My US pdoc recommends test-driving as many stims as possible, to find the one that gives the best results. Why settle for good when you can have great? Something 2 think about.
>
> Anyway, sounds like you've found a good'un-keepahold of him! Good luck with the trial,
>
> Jah.

 

Re: Adult ADHD/ADD - getting stimulants prescribed

Posted by Katz on March 5, 2001, at 11:18:14

In reply to Re: Adult ADHD/ADD - getting stimulants prescribed » Katz, posted by Leonardo on March 5, 2001, at 8:12:27

Hi Leonardo,

Thanks for all the info. I took the test and scored 13 out of the twenty. Seems to still leave me up in the air about the right diagnosis. The crux of the problem (as I see it) which is hindering a diagnosis of ADD is that I don't have *disorganizational* problems even though I do *tune out* and have many other ADD symptoms. The medical establishment seems firmly entrenched in the belief that ADD/ADHD *must* be accompanied by "an inability to get organized" and a propensity toward *multi-tasking*, as their main criteria for an ADD/ADHD diagnosis. Since I have neither one, an ADD diagnosis is automatically thrown out. I believe it's time for the "experts" to reevaluate the current ADD criteria. I truly believe that I am ADD w/o the current gold standard components. In any event, it is theorized that ADD/ADHD may be caused by hypoactivity in the frontal lobe region of the brain. I believe whatever label is put on my condition, it is also probably caused by the same inactivity of the frontal lobe and that is why I had such a robust reaction to the ritilin. I know for a fact that my brain needs to be stimulated and not sedated! The fact that we have to struggle in vain to get a stim is ludicrous! While addiction is cause for some concern, this simple little pill has far less serious side effects than any of the tradtional AD's on the market.

My appt with the pdoc was cancelled and rescheduled for next week. I'll let you know what happens.

Best wishes,

Kathy

Hi again Kathy!
>
> Sorry to hear about the snow in New England, hope you managed to get to the appointment. If so how did it go, will he prescribe the stuff? We have been having some snowstorms here in Olde England too, but where I am in the south we get off pretty lightly.
>
> I was interested to hear you say you don't think you have ADHD, but may have ADD. I don't have much of a hyperactivity component, so reckoned I have the DSM-IV category of "ADHD - primarily inattentive type". DSM-IV no longer uses the old term 'ADD' which means the same, but I now notice that most people on PB still talk about ADD rather than ADHD. I think I'll start saying ADHD/ADD to make sure I'm covered!
>
> Anyway, it is certainly possible to have ADHD under the new criteria without ever having been hyperactive. The clincher for me was reading an adult ADD/ADHD checkilist at http://adders.org/info7.htm - give it a go! I scored a good 19 out of 20 and felt sure I was onto something. There are many other checklists around, some bring out problems with relationships and dealing with other people which might be relevant to your social phobia. I too have had low level depression always, and difficulty getting any fun out of life. ADD and depression seem to be closely linked, for me I think the ADD caused the depression because I could never get round to getting my life under control and solving my problems.
>
> There is even an unofficial definition of 6 subtypes of ADD/ADHD including Depressive Subtype, which fits me closest I think. See:
>
> http://user.cybrzn.com/~kenyonck/add/add_legal_public.htm
>
> and also:
>
> http://www.amenclinic.com/ac/addtests/default.asp
>
> Interesting that you didn't respond to dex, but it doesn't mean that you definitely don't have ADD/ADHD. As you say, everyones different in response to meds. The book I read said that about 50% of people respond equally well to Ritalin and dex, but 50% have a markedly better response to one or the other. I hope that Ritalin works again for you this time!
>
> I have found from my limited expereince so far a very similar response to Ritalin and dex, though the dex does seem to be smoother and gentler acting than the Ritalin as others have said. It may be worth keeping an open mind, as I have found different response to taking the same drug at different times, also some different brands of the same stuff seem to be unreliable. I found the Equasym version of Ritalin made we decidedly worse. The dex I have is Dexedrine by Medeva Pharma Ltd.
>
> Well I took a whole 5mg dex pill this morning for the first time, I'm feeling a bit woozy and tight-headed, but it's not much compared to most AD side effects. Otherwise I'm feeling pretty good, despite work crises!
>
> Best Wishes
> Leonardo
>
>
>
> > Leonardo,
> >
> > I'm sooooo happy for you! I'm thrilled that you have finally gotten the right diagnosis and are well on your way to a treatment stratery that will help. I'll be keeping my fingers crossed that all goes well.
> >
> > As for me, I don't believe that I have ADHD but ADD is a possibility. I was on Ritilin approx. three years ago for 6 months. I was on 20 mg/day, never increased my dose and had amazing results. Dysthmia, Anhedonia and especially Social Phobia, all greatly improved. The med was discontinued when I was no longer able to travel 3 states away every month to obtain a prescription. My attempts to find a pdoc in my area to prescribe ritilin have been futile up until now.
> >
> > A note about Dexedrine: The doc the prescribed the ritilin had me on dexedrine first. I eventually got up to 30mg/bid with absolutely no effect. I could take it, rollover and go back to sleep. I think the dex was possibly making me depressed also. But, as the saying goes, "everyone's mileage is different."
> >
> > Unfortunately, my appt with the new pdoc is tomorrow and it appears it will be cancelled due to what is being hailed "the snowstorm of the century". Predictions are that it may dump 3' of snow here in New England before all is said and done. Looks like the gods are conspiring against me. Aughh! Anyway, I'm glad things worked out for one of us. Keep us posted on your progress.
> >
> > Best wishes,
> >
> > Kathy
> >

 

Re: Adult ADHD/ADD - getting stimulants prescribed » Leonardo

Posted by Shell on March 5, 2001, at 12:54:08

In reply to Re: Adult ADHD/ADD - getting stimulants prescribed » Katz, posted by Leonardo on March 5, 2001, at 8:12:27

That's fantastic! I'm so glad you FINALLY found someone who can help you. It's just a shame it took so long to do so. Someone less determined to find a solution would have given up long ago and as for the unfortunate person with ADHD who didn't even know to look for a diagnosis....

It's not quite that difficult in the US, but from what I've read here, it is more difficult than I'd realized. I had no problem at all being diagnosed and medication prescribed at my first appointment with my regular family doctor. I wish it could be that simple for everyone.

So how is it going with the Dexedrine? I have a cousin who prefers it to the Ritalin because of the smoothness you described. I am taking Concerta (54 mg in combination with 300 mg Wellbutrin) and I really can't compare it to any of the others since it is the only medication I have tried. I noticed that the first few weeks the effect was much more noticeable, now it is very subtle. I wonder if that is normal?

I am really glad you finally received the diagnosis and treatment you needed. Can your records now be transferred to someone closer to home or do you need to continue your cross-country treks for treatment? I don't know what your laws are, but here we must pick up the written prescription in person every month; I hope that's not the case for you.

Keep me updated!

Shell


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