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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 25 of 29. This is the beginning of the thread.
Posted by willyeee on August 30, 2009, at 11:50:43
Wow look at the threads on these two meds,and these docs laugh at us as if no on uses them at all.
Well my progress is im still on parnate,it was removed from me by my doc,and i did easly with some elbow grease find a doc to restore it and all my meds back.So maoi docs are out there if u know or want to learn how to find them.
My progress is wobbly as i search for a new augmentor to my combo,remember ive been on this drug six years and grew in weight and heigt a LOT so the med doesent work the same.But i still am glad i have it back as i dont feel like going on anymore ssri or ssnri rollercoasters.God bless people ill keep in touch.
Posted by SLS on August 30, 2009, at 12:11:22
In reply to Wow parnate/nardil, posted by willyeee on August 30, 2009, at 11:50:43
> Wow look at the threads on these two meds,and these docs laugh at us as if no on uses them at all.
>
> Well my progress is im still on parnate,it was removed from me by my doc,and i did easly with some elbow grease find a doc to restore it and all my meds back.So maoi docs are out there if u know or want to learn how to find them.
>
>
> My progress is wobbly as i search for a new augmentor to my combo,remember ive been on this drug six years and grew in weight and heigt a LOT so the med doesent work the same.But i still am glad i have it back as i dont feel like going on anymore ssri or ssnri rollercoasters.God bless people ill keep in touch.I was fascitated to learn that one poster has a doctor who makes it his practice to add nortriptyline to Parnate whenever he decides to use Parnate. I, myself, do better on this combination than on Parnate monotherapy.
It is my educated guess that you will soon find your magic combination. Keep moving forward.
Good luck.
- Scott
Posted by willyeee on August 30, 2009, at 12:24:52
In reply to Re: Wow parnate/nardil » willyeee, posted by SLS on August 30, 2009, at 12:11:22
Much appreciated !However i have to say the doc giving the combo was not what happened,COUGH but you know im a big advocate at going to the frontlines with this war of ours with like a solider taking with me whatever i might need,its my life,i will do the research,i will weigh the risks and well now i will obtain the materials.
But yess there is a trick everyone should know about getting parnate from a local area pdoc.
Posted by Phillipa on August 30, 2009, at 12:42:40
In reply to Re: Wow parnate/nardil, posted by willyeee on August 30, 2009, at 12:24:52
Will not meant to be unkind but what about those who have gone on both nardil and parnate and are now back on the ssri's or snri's due to medical side effects. I know a few on this site. Phillipa
Posted by willyeee on August 30, 2009, at 15:07:29
In reply to Re: Wow parnate/nardil » willyeee, posted by Phillipa on August 30, 2009, at 12:42:40
Not sure exactly what you mean,The fact i am posting out to maoi users not ssri?
Well i have strong strong feelings on them of a negative nature so to spend time posting on them would not give a fair perspective to possable new commers,also maois is what i know,so i post to them.
If its the roller coaster comment it just refers to my life to which i was on a collection of ssris back to back to back with no change of class which brough havoc on my life.
Posted by bulldog2 on August 30, 2009, at 18:33:48
In reply to Re: Wow parnate/nardil » willyeee, posted by Phillipa on August 30, 2009, at 12:42:40
> Will not meant to be unkind but what about those who have gone on both nardil and parnate and are now back on the ssri's or snri's due to medical side effects. I know a few on this site. Phillipa
So what are you trying to say? I'm confused by your statement.
I'm assuming that some patients tried nardil or parnate due to their ssris or snri's not working. So they're stopping their maoi because of some side effect. Happens with all meds.
So they're going back to meds that didn't work the first time. Sounds like a winner to me!Here's a link written by a scientist Dr.Ken Gillman that has treated thousands of patients
http://www.psychotropical.com/maois_full.shtml
Posted by Phillipa on August 30, 2009, at 19:41:36
In reply to Re: Wow parnate/nardil, posted by bulldog2 on August 30, 2009, at 18:33:48
To both Will and Bulldog. Certain people vomited in their sleep, one broke her back, and one with surgery gained so much weight had to give it up all doctors orders. Is that much clearer? Hope so. Phillipa
Posted by Phillipa on August 30, 2009, at 19:42:53
In reply to Re: huh?Wow parnate/nardil, posted by willyeee on August 30, 2009, at 15:07:29
Wiil yes I know your struggles and how well the Mao's work for you. Phillipa
Posted by willyeee on August 30, 2009, at 20:32:58
In reply to Re: Wow parnate/nardil, posted by Phillipa on August 30, 2009, at 19:41:36
> To both Will and Bulldog. Certain people vomited in their sleep, one broke her back, and one with surgery gained so much weight had to give it up all doctors orders. Is that much clearer? Hope so. Phillipa
No they dont,terrable things yes,BUT WHAT in the world do they have to do with my postings,i even called a friend over here to read and were both gonna need a beer to figure out if this entire thread of yours makes any sense at all?
Posted by Phillipa on August 30, 2009, at 20:43:00
In reply to Re: Wow parnate/nardil, posted by willyeee on August 30, 2009, at 20:32:58
Got a beer for me too? Kidding gave up drinking. Phillipa Jan whatever doesn't matter as I'm myself on Facebook.
Posted by Justherself54 on August 30, 2009, at 22:18:27
In reply to Re: Wow parnate/nardil, posted by bulldog2 on August 30, 2009, at 18:33:48
>>>I'm assuming that some patients tried nardil or parnate due to their ssris or snri's not working. So they're stopping their maoi because of some side effect. Happens with all meds.
So they're going back to meds that didn't work the first time. Sounds like a winner to me!
Sorry willyeee for hijacking your thread but I feel I have to say something in response to part of Bulldog2's post.I'm the person who vomited nightly in my sleep while taking Nardil. I crawled around on my hands and knees a good part of the time on Parnate plus I was monitored for part of a night in the ER as my blood pressure elevated and stayed elevated. I ingested nothing that would have caused it.
I gave both Parnate and Nardil a long trial. I just want to say that MAOI's are not for everyone. Someone once said to me, tongue in cheek, that MAOI's work 90 percent of the time but 80 percent of patients have to stop, as they can't take the side effects.
When I read the above comment I have to admit I felt disrespected for my (and my pdoc's) decision to discontinue these meds "due to some side effect". Unfortunately, I am now retrying meds, not because they "didn't work the first time"..they just all poop out on me.
So if anyone can tell me how to manage my MAOI side effects..let me know..my dog would appreciate it also, as she didn't really like being splattered by vomit in the middle of the night. It also would be nice not to have a pee pot downstairs, as I couldn't control my bladder, and my bathroom was upstairs.
Weight gain with Nardil.,.help me with that one too. I must admit SSRI's have made me gain weight but nothing compared to Nardil. I ate a whole apple pie once for breakfast..imagine that..
Oh, and let's not forget hypotension. I'm sorry, but I'm too old and fat to enjoy dropping to my hands and knees and crawling to the door to let my vomit covered dog out.
I normally don't post about my side effects in case I may sway someone from starting a MAOI, but this really struck a nerve with me. In fact, I rarely post anymore. I wonder why? I guess I'm just not a winner.
Sorry about the rant (not really).
Just sayin..
Posted by Phillipa on August 30, 2009, at 23:49:22
In reply to Re: Wow parnate/nardil » bulldog2, posted by Justherself54 on August 30, 2009, at 22:18:27
No they are not for everyone. It's okay to rant. You have reason to in my opinion. But what do I know not a thing. Phillipa
Posted by SLS on August 31, 2009, at 4:23:05
In reply to Re: Wow parnate/nardil » bulldog2, posted by Justherself54 on August 30, 2009, at 22:18:27
How absolutely miserable. It would seem that Parnate/Nardil are not good drugs for you (to put it mildly). I don't have a clue as to what the vomiting is all about. Was it in any way attributable to low blood pressure? I guess you would have to be extremely desperate to retry either drug. If you ever do venture to try these drugs again, I would recommend that you use Florinef (fludrocortisone) to treat the hypotension.
What are the drugs that you responded to favorably, but that later pooped-out? For how long did you remain improved before they pooped-out?
- Scott
Posted by bulldog2 on August 31, 2009, at 9:11:43
In reply to Re: Wow parnate/nardil » bulldog2, posted by Justherself54 on August 30, 2009, at 22:18:27
> >>>I'm assuming that some patients tried nardil or parnate due to their ssris or snri's not working. So they're stopping their maoi because of some side effect. Happens with all meds.
> So they're going back to meds that didn't work the first time. Sounds like a winner to me!
>
>
> Sorry willyeee for hijacking your thread but I feel I have to say something in response to part of Bulldog2's post.
>
> I'm the person who vomited nightly in my sleep while taking Nardil. I crawled around on my hands and knees a good part of the time on Parnate plus I was monitored for part of a night in the ER as my blood pressure elevated and stayed elevated. I ingested nothing that would have caused it.
>
> I gave both Parnate and Nardil a long trial. I just want to say that MAOI's are not for everyone. Someone once said to me, tongue in cheek, that MAOI's work 90 percent of the time but 80 percent of patients have to stop, as they can't take the side effects.
>
> When I read the above comment I have to admit I felt disrespected for my (and my pdoc's) decision to discontinue these meds "due to some side effect". Unfortunately, I am now retrying meds, not because they "didn't work the first time"..they just all poop out on me.
>
> So if anyone can tell me how to manage my MAOI side effects..let me know..my dog would appreciate it also, as she didn't really like being splattered by vomit in the middle of the night. It also would be nice not to have a pee pot downstairs, as I couldn't control my bladder, and my bathroom was upstairs.
>
> Weight gain with Nardil.,.help me with that one too. I must admit SSRI's have made me gain weight but nothing compared to Nardil. I ate a whole apple pie once for breakfast..imagine that..
>
> Oh, and let's not forget hypotension. I'm sorry, but I'm too old and fat to enjoy dropping to my hands and knees and crawling to the door to let my vomit covered dog out.
>
> I normally don't post about my side effects in case I may sway someone from starting a MAOI, but this really struck a nerve with me. In fact, I rarely post anymore. I wonder why? I guess I'm just not a winner.
>
> Sorry about the rant (not really).
>
> Just sayin..
>
>
>
>
>Was not meant to be disrepspectful as I did not know the circumstances or what had happened until after the fact. You're sides were certainly extreme and doubt were typical of maoi users.
Also 80% have to stop maois because of sides? Please find that stat for me. I have read 40% have to stop.
I have read a lot about maoi and sides and people who have been on them. Yours are certainly the most extreme I have heard of.Sorry for the misery you must have gone thru.
Posted by willyeee on August 31, 2009, at 14:11:24
In reply to Re: Wow parnate/nardil » bulldog2, posted by Justherself54 on August 30, 2009, at 22:18:27
You dident hijack it,it was me stating i was hear to ask and learn more about moias,it would have fit in nicely.This is the reason i got so wound up when phillipa inserted it as if i were doing something wrong.Along with your story i had a REAL INTERACTION and it like your story was horrid.
> >>>I'm assuming that some patients tried nardil or parnate due to their ssris or snri's not working. So they're stopping their maoi because of some side effect. Happens with all meds.
> So they're going back to meds that didn't work the first time. Sounds like a winner to me!
>
>
> Sorry willyeee for hijacking your thread but I feel I have to say something in response to part of Bulldog2's post.
>
> I'm the person who vomited nightly in my sleep while taking Nardil. I crawled around on my hands and knees a good part of the time on Parnate plus I was monitored for part of a night in the ER as my blood pressure elevated and stayed elevated. I ingested nothing that would have caused it.
>
> I gave both Parnate and Nardil a long trial. I just want to say that MAOI's are not for everyone. Someone once said to me, tongue in cheek, that MAOI's work 90 percent of the time but 80 percent of patients have to stop, as they can't take the side effects.
>
> When I read the above comment I have to admit I felt disrespected for my (and my pdoc's) decision to discontinue these meds "due to some side effect". Unfortunately, I am now retrying meds, not because they "didn't work the first time"..they just all poop out on me.
>
> So if anyone can tell me how to manage my MAOI side effects..let me know..my dog would appreciate it also, as she didn't really like being splattered by vomit in the middle of the night. It also would be nice not to have a pee pot downstairs, as I couldn't control my bladder, and my bathroom was upstairs.
>
> Weight gain with Nardil.,.help me with that one too. I must admit SSRI's have made me gain weight but nothing compared to Nardil. I ate a whole apple pie once for breakfast..imagine that..
>
> Oh, and let's not forget hypotension. I'm sorry, but I'm too old and fat to enjoy dropping to my hands and knees and crawling to the door to let my vomit covered dog out.
>
> I normally don't post about my side effects in case I may sway someone from starting a MAOI, but this really struck a nerve with me. In fact, I rarely post anymore. I wonder why? I guess I'm just not a winner.
>
> Sorry about the rant (not really).
>
> Just sayin..
>
>
>
>
>
Posted by bulldog2 on August 31, 2009, at 15:53:34
In reply to Re: Wow parnate/nardil, posted by willyeee on August 31, 2009, at 14:11:24
> You dident hijack it,it was me stating i was hear to ask and learn more about moias,it would have fit in nicely.This is the reason i got so wound up when phillipa inserted it as if i were doing something wrong.Along with your story i had a REAL INTERACTION and it like your story was horrid.
>
> > >>>I'm assuming that some patients tried nardil or parnate due to their ssris or snri's not working. So they're stopping their maoi because of some side effect. Happens with all meds.
> > So they're going back to meds that didn't work the first time. Sounds like a winner to me!
> >
> >
> > Sorry willyeee for hijacking your thread but I feel I have to say something in response to part of Bulldog2's post.
> >
> > I'm the person who vomited nightly in my sleep while taking Nardil. I crawled around on my hands and knees a good part of the time on Parnate plus I was monitored for part of a night in the ER as my blood pressure elevated and stayed elevated. I ingested nothing that would have caused it.
> >
> > I gave both Parnate and Nardil a long trial. I just want to say that MAOI's are not for everyone. Someone once said to me, tongue in cheek, that MAOI's work 90 percent of the time but 80 percent of patients have to stop, as they can't take the side effects.
> >
> > When I read the above comment I have to admit I felt disrespected for my (and my pdoc's) decision to discontinue these meds "due to some side effect". Unfortunately, I am now retrying meds, not because they "didn't work the first time"..they just all poop out on me.
> >
> > So if anyone can tell me how to manage my MAOI side effects..let me know..my dog would appreciate it also, as she didn't really like being splattered by vomit in the middle of the night. It also would be nice not to have a pee pot downstairs, as I couldn't control my bladder, and my bathroom was upstairs.
> >
> > Weight gain with Nardil.,.help me with that one too. I must admit SSRI's have made me gain weight but nothing compared to Nardil. I ate a whole apple pie once for breakfast..imagine that..
> >
> > Oh, and let's not forget hypotension. I'm sorry, but I'm too old and fat to enjoy dropping to my hands and knees and crawling to the door to let my vomit covered dog out.
> >
> > I normally don't post about my side effects in case I may sway someone from starting a MAOI, but this really struck a nerve with me. In fact, I rarely post anymore. I wonder why? I guess I'm just not a winner.
> >
> > Sorry about the rant (not really).
> >
> > Just sayin..
> >
> >
> >
> >
> >
>
>I normally don't post about my side effects in case I may sway someone from starting a MAOI, but this really struck a nerve with me. In fact, I rarely post anymore. I wonder why? I guess I'm just not a winner.
>My post was not pointed at you and it could have been worded better. My post had a different intention.There are those that have an anti med agenda and in particular maois. They saturate the forum with scare stories and treatment failures. You stated "I normally don't post about my side effects in case I may sway someone from starting a MAOI" and I was trying to counter a post that may in fact sway someone from starting an maoi. The statement that used the word winner was meant to imply a winning strategy.I think you took a post that had a very general intention and made it something personal.
Posted by Justherself54 on August 31, 2009, at 20:31:02
In reply to Re: Wow parnate/nardil » willyeee, posted by bulldog2 on August 31, 2009, at 15:53:34
I know your post was not directed at me and you are correct in saying that I did take it personally.
I know a good many regular posters here are struggling with TRD and I do believe that MAOI's give relief to many.
Perhaps at the root of my little rant is I feel this forum is saturated with MAOI threads (it seems to go in cycles) and very technical posts that go WAY over my head..and I often wonder how many people have checked out this website and have found it intimidating and leave without ever posting.
This is just my personal opinion and is not directed at anyone in particular. Who knows..maybe it's time for me to move on and try to find another support forum where I may "fit" a little better.
Peace out..
Posted by Phillipa on August 31, 2009, at 21:02:53
In reply to Re: Wow parnate/nardil » bulldog2, posted by Justherself54 on August 31, 2009, at 20:31:02
Hence my suggestion for a separate board for Mao's on admin which was ignorned. Phillipa let me know if you find one.
Posted by bulldog2 on September 1, 2009, at 10:31:27
In reply to Re: Wow parnate/nardil » bulldog2, posted by Justherself54 on August 31, 2009, at 20:31:02
> I know your post was not directed at me and you are correct in saying that I did take it personally.
>
> I know a good many regular posters here are struggling with TRD and I do believe that MAOI's give relief to many.
>
> Perhaps at the root of my little rant is I feel this forum is saturated with MAOI threads (it seems to go in cycles) and very technical posts that go WAY over my head..and I often wonder how many people have checked out this website and have found it intimidating and leave without ever posting.
>
> This is just my personal opinion and is not directed at anyone in particular. Who knows..maybe it's time for me to move on and try to find another support forum where I may "fit" a little better.
>
> Peace out..
>This board goes through cycles of what is discussed.Also by the time most have come here they have experienced treatment failure on ssris which are now the first line ads being prescribed. Also ssris now have a reputation of not being effective against major depression. So it is not unusual that maois and tcas are being discussed quite a bit.
Posted by bulldog2 on September 1, 2009, at 12:28:31
In reply to Re: Wow parnate/nardil » Justherself54, posted by Phillipa on August 31, 2009, at 21:02:53
> Hence my suggestion for a separate board for Mao's on admin which was ignorned. Phillipa let me know if you find one.
There is no need for a separate board for maois. There is little enough traffic here as it is without separate boards for each drug. I'm just happy to see anything being discussed. By the way anyone can post about any drug they're interested in. Even if there is interest in parnate you can post about ssris.
Posted by SLS on September 1, 2009, at 13:23:20
In reply to Re: Wow parnate/nardil » Justherself54, posted by Phillipa on August 31, 2009, at 21:02:53
> Hence my suggestion for a separate board for Mao's on admin which was ignorned. Phillipa let me know if you find one.
What do you feel that you are missing when there is an increase in the posting related to one drug or another?
- Scott
Posted by willyeee on September 1, 2009, at 14:21:43
In reply to Re: Wow parnate/nardil, posted by bulldog2 on September 1, 2009, at 12:28:31
> > Hence my suggestion for a separate board for Mao's on admin which was ignorned. Phillipa let me know if you find one.
>
> There is no need for a separate board for maois. There is little enough traffic here as it is without separate boards for each drug. I'm just happy to see anything being discussed. By the way anyone can post about any drug they're interested in. Even if there is interest in parnate you can post about ssris.I agree and could not have said it better myself,hell we already outsted in the real medicine world.
Posted by Phillipa on September 1, 2009, at 21:29:09
In reply to Re: Wow parnate/nardil » Phillipa, posted by SLS on September 1, 2009, at 13:23:20
Scott it's simple to me anyway. Since the neurotransmitter board didn't make it why not one targeted at treatment resistant depression that then leads into MAO's If that's the poster's choice. And the med board for more traditional meds and combos. The way the top of the board reads now it's targeted for medications only. The names listed up at the top also are meds such are serzone simple meds. See what I mean? Love Phillipa ps gets too technical here at times for a newbie who wants to start on meds or is doing well or having side effects on their SSRI or other and just want discussion on others experiences on same meds.
Posted by SLS on September 2, 2009, at 5:33:40
In reply to Re: Wow parnate/nardil » SLS, posted by Phillipa on September 1, 2009, at 21:29:09
> And the med board for more traditional meds and combos. The way the top of the board reads now it's targeted for medications only.
MAOIs are more traditional than the SSRIs. They have been around for much longer and have probably represented the most effective treatment yet available. If MAOIs didn't have diet and drug interaction issues, they would very likely be the psychiatrist's first choice of treatment for depression and probably the second choice for anxiety disorders. There is nothing traditional about treatment resistance. Treatment resistance predominates here, and so should any drug that effectively treats it.
I guess we have different perspectives on this one.
Be well.
- Scott
Posted by Phillipa on September 2, 2009, at 20:01:09
In reply to Re: Wow parnate/nardil » Phillipa, posted by SLS on September 2, 2009, at 5:33:40
Scott yes in that so many patients are offered SSRI's SNRI's have inflexible docs and some do quite well. Love Phillipa
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