Posted by utopizen on April 29, 2003, at 16:47:38
In reply to Sleep and sleep test, posted by Willow on April 29, 2003, at 9:30:26
Just saw my sleep neuro for the first time today. He said he wanted me to do an all-night sleep study. It'll be in a couple of weeks.
I asked the nurse practioner if they ruled out apnea, RLS (who could have RLS without knowing it??) and others, if they would continue to see me for what's called "idiosyncratic excessive daytime sleepiness" (fatigue during the day that sleep tests can't account for).
She said no, I'd be referred to the sleep hygienist in the same sleep disorders clinic I go to now. I'm actually hoping they rule out apnea and everything, because they said they don't favor surgery and instead suggest CPAP machines. No way.
But if I just have unexplained EDS, I can try for some Xyrem. I've heard GHB users claim they use to get tired after 9 1/2 hours of sleep, but after taking GHB at night they can continously feel refreshed after 5-6 hours. GHB induces deeper delta (?) wave sleep, which is the most restorative part and necessary for vital functions like insulin regulation, immunity, etc. and secretes more growth hormone in this phase that makes these things happen.
It's good I'm in the phase of getting tested and all that, because it's likely they'll rule a bunch of stuff out (I'm guessing) and send me over to a sleep hygienist in the clinic. And she can just rely on tests already done.
They said the sleep study would be all night, and then if I had apnea they'd give me another one to adjust the machine. Um, I'm in college though, really would hope to avoid looking like I'm an 80 year old smoker in the hospital everytime I go to sleep. I'm guessing they don't make CPAP machines that are designed by Porsche or someone, but I've never seen one.
170 lbs., 6'3'', scrony, but it's still possible they said. My roommate said he never has heard me gasp in my sleep, but I do snore a few times a week. I'm actually seeing an ENT who specializes in snoring in a week too, just to get that ball rolling. Don't want to be snoring when I have a girlfriend.
I feel VERY energetic, refreshed for an hour to two hours when I wake up after 9 hours of sleep, or a 2 hour nap. But then one minute later I'm tired for the rest of the day. WIsh I could feel refreshed all day long. Napping for 2 hours a day is almost mandatory, but it's also impossible while I'm on a stimulant for ADD.
I'd rather feel refreshed from sleeping well than masking things with a higher dose than what I take now of Desoxyn. It's not the same feeling. I also don't feel like I want to eat, but feel crappy over this at the same time. It justs masks needs my body has, and I don't feel comfortable with that. Feeling refreshed after a 2 hour nap is incredible to wake up to, I love it. If I felt refreshed like that all day, I'd do so much more, be so much more happy (although I never get depressed).
Looks like even if I do get Xyrem, it won't be for probably 6 months by the time studies are done, re--requested (possible) and then having to eventually switch to the sleep hygienist there, which may or may not favor Xyrem.
The weird thing is to me is that they told me to take my meds just as I would normally the day of the test. So that means my beta blocker and Klonopin for anxiety, my Desoxyn (methamphetamine) for ADHD, and Evoxac for dry mouth.
Unfortunately this won't help me find out what my patterns are like naturally, but I guess they know best. The good news is I shouldn't have trouble falling asleep on Klonopin. I've gotten much of the fatigue I use to get from it done with now that I take 1mg 3x/day, but simply not having anxiety can help me sleep I suppose.
The Sleep neuro said not sleeping during my EEG isn't too odd, since the stress of the scanning and all can do that, plus because I'm 19 he said I would be more resillent and able to fight sleep easier. One of those docs who knew what he was doing attitude, talked fasted, straight-forward, and was basically like "so you'll get this test and we'll see you later"
poster:utopizen
thread:223043
URL: http://www.dr-bob.org/babble/20030429/msgs/223212.html