Posted by djmmm on May 13, 2003, at 15:58:33
In reply to Help gained 87+ lbs. on Meds I barely Eat =o(, posted by chickadee on May 12, 2003, at 23:14:52
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> Hi! I'm new & I'll try to make this short,but I need HELP Desperately. I'm a 33yr old Mother of 5 little children under 10. I got hit by a car in 2001 and 9 months later they found out I had some sort of Partial complex Brain Seizure Disorder. I don't recall a lot of things and I can't cook anymore. I also don't like many of the foods and drinks I used to which is weird! I'm a Mom who loved to cook. Now I vomit if I smell food or see it the majority of the time. To be honest we really still don't know what the deal is, except I am NOTHING like I was before. Anyway They put me on Effexor xr (which helped a lot) I still get Brain Snaps & a few mild side effects,but nothing like if I try to take myself off the medicine.
> I'm Currently on:
> Effexor XR (375mg/day) - Started about 2½ years ago
> Seroquel (100mg/day) - Started about 1 year ago
> Topamax (125mg/day) - Started about 3 months ago
> Neurontin (400mg/day) - Started about 6 months ago
> Have tried:
> Paxil, Klonopin, Xanax, Risperdal, Trileptal,
> Embarrassingly I am also pulling my hair out & I have even caught myself doing this when I sleep.
> I am having some break through Panic attacks, but I am trying to deal with those. I took xanax and had no problem with that. It didn't make me groggy or anything weird. Now I wish I were back on it and maybe totally off Nuerontin. I just don't know.. Who can help me figure this out?
> Can someone Help me Please? Is it a combination of medicines I am taking or just one of the pills? Has any one had any of these symptons or feelings? I just can't live this way anymore.
> It is killing me. I used to go out of my house and Now I barely will. My children and husband miss me. I miss me. Thanks for your Time!Wow...I'm sorry...I too was in a car accident and got epilepsy as a result (specifically a left frontal dysrhythmia; absence seizures) although this was a few years ago, and my EEGs are now fine, I took (at one time or another) Neurontin, topamax, tegretol, zonegran, klonopin.
Anyway, It sounds to me like you are still having seizures, as Im sure you know, depending on what part of the brain your injury is in, your seizures can be manifested in just about anyway...smells, sounds, etc. OR strange smells and sounds, etc can actually precede or be the result of the seizures...Im sure the hair pulling and compulsive eating have something to do with it. Remember, you have injured your brain.
You may be over-medicating, or on the wrong anti-epileptic. Please be sure that you are seeing BOTH a Psychiatrist AND a Neurologist and that they know exactly what eachother prescribe.
There are literally dozens on anti-epileptic meds and like antidepressants, you often have to find the right combo and dose. so don't give up.
poster:djmmm
thread:226233
URL: http://www.dr-bob.org/babble/20030505/msgs/226388.html