Posted by Willow on June 9, 2003, at 9:35:16
In reply to Re: Anyone heard of a blood-test for RLS?, posted by Simcha on June 8, 2003, at 11:42:10
SIMCHA
Nice to see you again. Hope all has been going well for you!!
> I've had Bruxism and RLS my entire life without knowing that these were things that could be treated.
Have you tried anything besides drugs for this with any positive results? My latest is exhaling through my mouth.>it took months for my tongue to heal properly.
I've been trying to think what I do to help speed this process. Guess the only good advice I can give is don't bite it in the first place!! (bad joke) The only thing that comes to mind is mouthwash, but I think this is just a temporary ten second relief.
> These days I take 600mg of Neurontin at night. This alleviates my symptoms completely. Before this I took Klonopin 1mg at night. This worked too. Yet I believe I have a better quality sleep on Neurontin than I did on Klonopin. I also wake in the morning more clear headed.
Goes to show how meds affect us each differently. I could have wrote the above but just reversed the meds. I'm best when I take a combination of baclofen, codeine, and clonazepam. Whenever I try to cut one out I'm either more tired or sore the following day. Mirapex did wonders for my muscle pain and stiffness, but it undid all good the effexor was doing.
>
> The current pdoc asked me if I ever had been officially diagnosed with RLS. The truth is, I've never had any tests. All I can do is tell the doctors that at night for most of my life I've been unable to keep my legs still.
My diagnosis is moderate to severe periodic limb movements, through a sleep study. After the sleep doc talked to me, he also dx rls and explained even though I don't have the urge to move the other muscular sensations can be symptom. My understanding is the rls dx is made through clinical history. And yes my ferritin is low too, which I've was quite disgusted with the doctors that had treated me previously for not discovering this, especially since it should have been tested given my family history of having an iron overload disorder. Which brings the point to mind that people shouldn't take iron supplements without having been dx with low iron.
> I wonder if RLS and Bruxism are related?
I do have both. I think the movements are a caused by the same triggers. With rls and plms the legs are mostly involved, for myself my upper limbs, mouth, shoulders, and neck are just as involved. My fatigue is brought on quite easily and when it affects me during the day, even before I'm aware of it I will get the twitches the same as when I sleep.The best thing I've found for treating the symptoms is not to get overtired and codeine. Ugh, thinking about this is discouraging.
WILLOW
poster:Willow
thread:232107
URL: http://www.dr-bob.org/babble/20030609/msgs/232584.html