Posted by headachequeen on December 30, 2003, at 18:02:52
In reply to Re: bridgey » SLS, posted by Karen_kay on December 30, 2003, at 17:45:41
But, it has worked for me! I feel WONDERFUL!!!!!!! I'd do a commercial if they'd let me!!!!
>
Oh but I know the feeling LOL
I was put on Topomax, instead of an increased dosage of Tegretol (THANK HEAVEN) when I asked about migraine control... now that was an inspired move on my part... as I am epileptic...I am also diagnosed as being not depressed, but hypomanic, then why, she asks, do I go through these bouts of depression, but that is another board I guess...
I have had some side effects with the Topomax... weight loss and migraine control being two of them and I can certainly live with those...
60 plus pounds and no migraines for almost a year... now that is something -- migraine-free... oh what a thought... no trips to emergency on that count anyway... it is like being suddenly freed from a prison...there are other side effects that had to be dealt with and with the advice I found here, there were no warnings from doctors or pharmacist which really give me cause for annoyance to put it mildly, I have been able to handle them... vitamins and supplements, water, and so on...
the cognitive effect problems are gone and done with...
the blurred vision well that was a minor thing in comparison to the vision problems my own eyelids cause... and I was born with that but no one caught it until I complained about the Topomax side effects... and they discovered that I have myosthenia gravis and also an eyelid condition similar to one my dogs sometimes have which can be corrected with surgery... hmmm another redhead thing maybe ?? LOL
the blurred vision thing went its way in a short time...
and again, as long as one takes the increases in a slow order it is easy to adjust I found...
some people seem to be on a fast track... and that is going to increase the side effects...
I talked to one woman at the pharmacy the other day, we were picking up our Topomax refills and she was having an awful time... I suggested this site to her but she does not think she is staying on the drug...already kicked tegretol so I don't know what is left for her...
and the seizures she gets are really awful so I fear for her...
but she started at 100 mg and is increasing at three day intervals by 50 mg because she didn't see any sense in following that chart the doctor gave her...
guess he spent all that time in med school for nothing...
As I said earlier sometimes I feel like a cheerleader on the Topomax squad and I think cheerleaders are such , well let us not go there...<G> but I tried so hard to make her see that starting at 100 and heading to 400 a day in a few days was not the way to do it...
and if she is not taking anything she is headed for disaster...
and she has my neuro.. he is arrogant and with reason... he is good but he will simply dump her for non-compliance and then where is she???
She sees no reason for joining psychobabble because none of us knows anything...
it's all right, friends, I thanked her for all of you and told her that she needed to re-think her attitude toward herself and her safety and toward other people...
<evil grin>but Topomax is not as bad as people seem to think... they just have to take it slowly and give it a chance...
it really helps...
oh I was rather down on things after a seizure the other day when i had been without any for so long... but things happen... it could have been so much worse without Topomax....
now if it would kick this depression that comes and lives with me too.......
kat
poster:headachequeen
thread:50878
URL: http://www.dr-bob.org/babble/20031225/msgs/294813.html