Posted by Tony C. on June 11, 2004, at 12:47:31
In reply to Re: About SERZONE/NEFAZODONE for us users PLEASE READ, posted by HappyGirl on June 11, 2004, at 9:30:19
Hi Happy Girl, we CAN'T give up, and I do NOT plan to. PLEASE do all that you can to ask the FDA and whoever makes your Nefazodone, to see if they can always continue to make it. I have worked relentlessly calling, and emailing people, FDA Teva etc. I believe Teva makes mine, and YES the Generic is POSITIVELY as Good and Effictive as the SERZONE was. As I said, if someone announced that this drug will always be available, I would DEFINITELY stay on it for life. My Plan is to PROVE to myself that I can work down on this medicine, not necessarily get off of it, but I have FAILED several times in the past going 50mg down per day, 25mg per day, even 10mg per day. I have filed roughly 5 to 10 mg per day for last 10 days, and am doing fine, for myself I want to PROVE I can get down on the dosage and survive, it will be a BIG Psychological boost for me, so if I ever am FORCED to get off I can assure myself I survived coming down slow. PLEASE NOBODY ELSE TRY WHAT I AM DOING !!! I do not want to be completely off of this ever, I am shooting for at least 1/2 strength compared to what I have done for the last 7 years. But I am doing it slow and low enough to allow my brain to produce Seratonin on its own and adapt to not having the drug, as I said I did alot of research on this, and I am following the recommendation of EXPERTS who are 100% aware of the Nasty Side effects for alot of people who come down to quickly. One Doctor told me he doesn't think they will ever get rid of Nefazodone cause besides being an EXCELLENT med for Anxiety and Depression, it has helped way to many people to abandon. I hope in the long term he is right, I will repeat over and over 1,000,000 times if I have to, the long term users as myself, do NOT deserve to have there stability or their life messed up, by forcing them to switch after so many years, I believe that can be LIFE THREATENING to mess with stabilized people like that. Suicidal feeling could return, etc. As I said to the FDA I think they need to do a follow up on how many Canadiens had there life turned upside down BIGTIME, Relapse, Suicide etc. by forcing them off this medicine. I do have some uncomfortable feelings here and there, but they are not to bad so far, thankfully, and I hope I can keep going, no anxiety or depression returning yet. Just the aches that come and go. Stay in touch Happy Girl and all, we all need each others support.
Sincerely - Tony C.
poster:Tony C.
thread:355368
URL: http://www.dr-bob.org/babble/20040608/msgs/355764.html