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Tardive Dyskinesia... And I thought it had gone :(

Posted by alienatari on June 11, 2005, at 22:44:16

Hey all. My TD is back!!!!

I have no idea why. And what a time for it to come back too, with my jaw being infected from the surgery I just had. The infection seems to be easing a little bit thankfully.

I first got TD from Solian. I stopped it, it went away totally after a few months. Then I got it again with Zyprexa, same type of TD. And it has been a very long time since I've stopped it. I thought it had gone but all of a sudden over the last few days it has come back :(

But yea, my TD is basically just my jaw uncontrollably biting down really hard, sometimes not so hard but other people notice when it happens plus most of the time I end up biting my tongue or cheak or sometimes both. It hurts and I get ulcers and sores in my mouth from it. Atleast its not as bad as when I first got it and this was happening every second or so the first time I had it, i dont know if it was that much really but it was a lot, it was really often and quite embarrassing for me.

I'm just upset that my old pdoc put me on so many antipsychotics when I didnt need to be on them. I am doing SOO MUCH BETTER now on valium than I ever was on any of the 6 or so antipsychotics I was put on. And I hate to think what they have done to me because I was on them long-term, for about 3 years or so. He was so benzo-phobic it was stupid. Thank God my new pdoc isnt.

I think its disgusting that doctors are perscribing AP's for things like sleep problems, anxiety and other things like that instead of perscribing them for what they are meant for, illnesses like Schizophrenia and Bipolar. Anyway I know that for some people AP's are needed, and if they have tried all the benzo's and so on and their anxiety is still bad they may do better on an AP but I really think AP's should only be used if they really have to be, and other drugs should be tried first. Ive had akathisia, tardive akathisia (that went away Thankfully), dystonia, gosh what else, the list goes on and on from all the problems I have had with antipsychotics.

I would always ask my doctor about the safety of them, and he would always say "dont worry the Atypicals are safe" and all this other bs.

Anyway, im NOT anti AP but I do think they are over-perscribed and I think doctors should get over their benzo phobia's atleast until we have better drugs to treat anxiety.

I went through 3 years thinking I had psychotic paranoia and to find out that its only social phobia and GAD really makes me upset because I have been having the wrong treatment for so long and now I'm finally getting the right treatment.

So I guess my diagnosis is Bipolar I (I know they use AP's for bipolar but I am on Depakote which handles my mania and hypomania 100%, I was only on the AP's for sleep and my supposed "psychotic paranoia"), OCD and Anxiety (But i dont think i fit the catagory for GAD or Social Phobia, but I have at one stage been dx'd as GAD). I can finally walk outside my home without that much fear. I feel like I have been living in a cave for years and have just finally come out. It feels strange but, even though I'm depressed at the moment, I'm happy that I can get out of the house for a change.

Anyway, thanks for reading and take care. I'm just really upset that my TD is back :(
I guess I will start taking vitamin E again, I think thats the only thing I have read that helps. Anyone know anything else I could take?
The current medication im on now is 125mg (going up to 150mg in the next few days) of Clomipramine, 10mg of Diazapam and 1000mg of Valproate.


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poster:alienatari thread:511276
URL: http://www.dr-bob.org/babble/20050611/msgs/511276.html