Posted by headachequeen on August 28, 2005, at 10:33:16
In reply to Re: Topamax increase - stupifying! » Nickengland, posted by sunsplashinwaves on August 28, 2005, at 9:57:34
> Hi, I know the question below was not directed to me but I take my Topamax at night, once a day. And take Flintstone Vitamins. I can't swallow those big horse pills...
I never thought of that sort of vitamin...
my orthopaedist has this health equation blood test he believes in very strongly. He orders it periodically (and now has the meds I am on factored in as well as he does not trust my regular physician, a new guy replacing the one I trusted so totally who has moved to a larger centre.. who can blame him I want to do that too.. and the neurologist to monitor things properly)
According to the equation test I am lacking in certain trace elements and certain other minerals and vitamins...
so I am ordered to take a multi-vitamin with minerals added or something or other, it has a name and one buys it at the pharmacy and it is not a 'horse pill', it is the size of the flaming horse!!! swallowing one requires advanced planning, especially for a person who has trouble swallowing an aspirin.. the wretched things dissolve before I manage to swallow them and the taste lingers for hours...
these multi-vitamin and mineral things which are so vital to my continuing existence apparently, are absolutely awful... bought the first and only bottle the same day I bought the selenium, Stresser <s>... and I am not doing very well with them at all...
shall have to see if I can get a chewable version or a flavoured version at the very least...he also found out that I am lacking in salt...
according to him many people have too little of it in their systems... and need it so he recommends Celtic salt..
now that I think is appropriate given my ethnic persuasion...with the Topamax to eliminate the migraines and control the seizures so very effectively, the elimination of grains from my life eliminating so many of my breathing and digestive problems, and the addition of the salt, I am dangerously close to becoming a healthy person...
One wonders if the world is ready for this?????
Now if this surgeon chap can but settle the crushed nerve situation on Thursday I shall be over the moon and back again for dinner...
Oh, by the way, those of you who, comme moi, are using Topamax to try and regain control of your lives because of the invasive behaviours of epilepsy:::::
I have all but cast aside the rule book I was given when I was released from hospital last November...
indeed it is becoming difficult to remember that person and to equate her with myself.
At this point the only limitations on me are the ones the crushed nerves in my back create. (Should have let that wretched boat go and get wrecked in the storm on the lake; that is what insurance is for!)While I have not tried hang-gliding, I must admit, I never really wanted to try it anyway. I DO scramble out into the middle of the rocks in the river to get the shot I want when I am out and chasing elusive birds and other photos.
I DO trek out into the woodlands that surround our small town, up hill and down dale, through rocky areas and heavily treed areas, well away from human habitation after shots that I hope will be treasures.
I have taken up target shooting again, purely for pleasure, and because our government is being so anal about people who like to use weapons for hunting (could never shoot at an animal but any paper target at which I take aim is in deep trouble) or sport and because I am good at it.
I am working hard at the music again and planning to record a CD in the very near future.
I am out on the agility practice field and I am working really hard at tracking with dogs and even harder training other people and their dogs.
The list of DOs is very long.
In short, I have quit sitting around waiting for life and watching life, I am doing it and having a great time.
Life is meant to be lived and it is more fun when one is doing it...
Tegretol was increasing the seizures in number and in intensity...
the topamax did moderate the effect of the tegretol and to some extent moderated the seizures, but it could not be expected to do both...
at this point it is giving me back my life...So, those of you who are working along the same road, it will happen...
Bon voyage!
and happy landings!
kat
poster:headachequeen
thread:542426
URL: http://www.dr-bob.org/babble/20050827/msgs/547579.html