Posted by Elroy on January 8, 2010, at 17:32:13
In reply to Re: LDN Low Dose Naltrexone Questions » Elroy, posted by tea on January 6, 2010, at 16:46:58
> Sorry I can't suggest anything to help. Thanks for sharing your "story". So sad, the mistakes part ("mutters under breath"- so frustrating that it occurs so often its almost typical and expected. Never heard your story, before (so I agree your unique!) but many others also with neg. consequences. Sigh. Too high cortisol is something I really no nothing about! I guess that doc tried to do something to help, but still!
> I'm surprised your body had that inflammation with the already high cortisol, I'd though it would have helped the inflammation!- see I know nothing about it...:)
> I had below optimal cortisol for a couple of years(after starting on thyoid meds, it's fairly common(at least it seems to occur with a minority of previous longer term hypothydoids.. those where it has developed over many years or decades) due to the sudden workload created by thryoid hormones in a weakened state)..
> http://www.dr-bob.org/babble/alter/20031104/msgs/277255.html
> I even used asthma puffers for the cortisol boost (as one way of boosting my levels quickly) at that stage.
> http://www.dr-bob.org/babble/alter/20031003/msgs/270754.html
> It is very easy to get overhigh on cortisol though, at least for me, even tapering down (once got those lumps of fatpads on upper back at that stage - using hyrdrocortione for slightly too long)
>
> That was back on 2002-2003 ish, now I'm fairly right there I think, but I can't push myself to a full day's work and tire quickly. I'm pleased to hear your levels are now Normalised.
> I've had so many people(way too many) I know being given unsuitable meds- both type and amounts by docs, I think it's worn me out in the past 6 years! (my parents included), and its difficult for them to learn to question what the doc prescribes. At last I have my Mum checking with her heart specialist before adding meds, similar to you maybe having to check with the NIH I guess. It's wrong that the patient should have to be reponsible and its difficult for the patient to do.. you'd expect the doc to check! Good pharmacists are also helpful(I have used them for support with my parents scripts), but again you have to find that rare? excellent one who also has the time to care.
> I agree that adjusting to the lowered cortisol will take many months too.
> Don't know if it may help, but one of my favourite supps over the years was milk thistle?(OK- I usually post on alter)*************************************************
You have it wrong.
I no longer HAVE the highly elevated cortisol levels, in fact I don't even have "high normal cortisol levels" ... I have (since around July or August) "regular cortisol" levels.... but after att least seven years - that we know of - of having highly elevated cortisol, well returning to normal ranges causes problems of its own--- problems that can last anywhere 9 - 10 months to up to two years.
I have the high inflammation levels NOW because my hypercortisol highly elevated levels of cortisol have came steadily down since my "visit" to NIH Hospital in 12/2005 (15 days of around the clock, every day testing of one type or another... my first day there they hooked me up with three IVs and just left them in - replacing them at the start of the 2nd week - as they were going to be doing so many injection and blood sample draws that it was easier to do it this way!).
I started the NIH Therapy Regimen in early 1/2006 as soon as I got my scripts filled. Other than when doctors screwed up my regimen with some contraindicated medications for a fungal infection in my lungs - and my cortisol levels went UP for about three months - other than that my cortisol levels steadily dropped test after test after test.
Finally around July - August of 2009 I hit "normal range" of cortisol levelws. But over seven years, my body had become acclimatized to the highly elevated levels being "normal" (as far as countering inflammations, aches, pains, etc.). So until my body re-adjusts to this normal level being the correct level AND until my Immune System gets re-built (Cortisol is an extremely powerful Immunosystem depletor and compromisor... and highly elevated cortisol if of course that much worse) - but until those two things happen, inflammations, joint and muscle aches and pains (severe aches and pains) will be common.
Which is WHY that I am taking the LDN Therapy.
poster:Elroy
thread:919880
URL: http://www.dr-bob.org/babble/20100103/msgs/932946.html