Posted by Zandy on July 18, 2010, at 19:47:04
In reply to Re: Serontonin Syndrome, posted by ed_uk2010 on July 18, 2010, at 12:24:14
> >Can't have surgery until one year after that cause my body needs to recover to handle the stress of the surgery.
>
> Couldn't you have surgery earlier with hydrocortisone treatment prior to and during surgery...and then tapered after?
>
>I am scared to death to ever have any type of cortocosteroid put in my body again. When I had the adrenal crisis the attending physician put me on 30 mg of Hydrocortisone (20 mg in the morning and 10 mg in the evening) and referred me to a Endocrinologist after I was discharged. I saw the Endocrinologist a month later and he weaned me off the Hydrocortisone over 7 weeks. The pain I felt body wide day in and day out was so intense I didn't want to go on living.
I still experience the body wide pain to a lesser extent, I sometimes wonder if my HPA axis will ever get back to normal.
After this experience I am literally scared to death to have any type of corticosteroid put in my body again. I was also told that it could shut down the whole thing again if I do.
All my levels, the things your adrenals make; Cortisol, DHEAS, Estrogen, Testosterone are low. At first we tried to replace the estrogen but that made me more nauseated. Then we tried DHEA which made the body wide pain better, but gave me severe insomnia and heart palpitations. It seems like anything they try to do to fix the situation makes it worse. It is very frustrating.
So I am toughing it out, hoping my adrenals will start up, and my pituitary gland also had stopped making vassopressin (aka the ant-diuretic hormone) and I can't hold any water, I pee constantly, even after one sip of water.
I am scared if I go for the surgery now and take Hydrocortosone my HPA axis might never come back.
It has been a total nightmare. Thank you so much for your advice and concern. This has been hard on my whole family and everyone, including the doctors, are at a loss as of what to do for me.
poster:Zandy
thread:954819
URL: http://www.dr-bob.org/babble/20100709/msgs/954960.html