Posted by floatingbridge on October 13, 2010, at 21:51:51
In reply to stanford » Phillipa, posted by floatingbridge on October 13, 2010, at 10:49:14
Yeah, well. I can do three weeks. Thanks, though, for the concern.
I did get a bonus med from the rheumatologist that could help. Do you recall the transdermal patch I responded to called 'flector'? He prescribed it in pill form for the osteoarthritis beginning in my hands big toes and already entrenched in my hips.
So maybe less tramadol plus this naisad (sp) will work well enough and I can avoid cymbalta and neuropletics (sp?).
There's more he said, but basically no diagnosis. I don't fit any category.
Ordered no new tests.I think I'm gonna start telling people that I have fibromyalgia when I have to. You
know, having to cancel activities. I can have one good day followed by one, two, or more 'bad' days. After awhile, people think I'm a real flake.He said I have fibromyalgia symptoms, but my overall pain level is not that high. (My pdoc would say I misrepresented myself probably. I don't know.) Fatigue is the greater problem (true) but no sore throat or temps.
When I said what do I say to people, his counsel seemed unwise. That it was none of their business, and I can pick and cancel as I see fit. Most of us here know that is a s*cky way to live.
He ordered a sleep test. When I pressed him by suggesting what is cfs treatment protocol and can we just follow that--graded exercise, lifestyle counciling--he finally agreed to write a scrip for it.
Maybe I need to accept this. No one dies of fatigue he said. Jeez, I refrained from saying any one of a 100 sarcastic or despairing thoughts that came to mind
Oh well. How to live.
I'll probably have another consult at Stanford to explore treatment options for depression accompanied by fatigue.
This time around, with a different doctor, too, I don't expect a fiasco. My inquiry skills have improved, and let's say 'exposure therapy' has reduced my awe and fear of doctors.
MDD currently controlled. C-ptsd and comorbid health concerns. Chronic fatigue.
poster:floatingbridge
thread:965363
URL: http://www.dr-bob.org/babble/20101009/msgs/965675.html