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Re: New-No Progress in a Year- HELP!

Posted by JusALIlbit on March 3, 2011, at 10:54:06

In reply to Re: New-No Progress in a Year- HELP!, posted by bleauberry on March 3, 2011, at 4:49:18

Hi I have been tested for the following:
- Auto-immune tests- all conditions -NEGATIVE
- Neurologist, suspected MS (brain scan NEGATIVE) and did test of large, med and small nerve fibers, all OK (some suspicion of small fibers, but not drastic)
- GI tests, result in slight GERD, but I have tremendous acid reflux which I think causes or exacerbates acid/metallic taste
- Neurologist thought taste may be due to a condition called Burning Mouth Syndrome which can result from hormones (mine have been tested) and chronic anxiety and depression and or epileptic type condition, therefore Neurontin was prescribed (and does not help)
- Bowel motility problems, some from ED but new doc says mostly my anatomy and am being given meds that I am not sure yet about effectiveness
- Numbness is mostly right sided arms and legs, face (lips, tongue, jaw) and both hands
- Mood cycling has increased while on Neurontin, so I believe I need to wean off it and start lamictal

Regarding Lyme disease, what specific tests are required? I have been on large doses of antibiotics over the past 2 years due to bowel obstructions and a cat bite.

I am mostly concerned about the mood condition and getting this under control, as it seems to be getting worse. Main complaints are drastic high to low within 48 hours and complete lack of focus and concentration. It makes it impossible to get work done.

The problem with finding a good pdoc is locating one, seeing if the are accepting patients, then if they accept your insurance and then do they know your condition, are an excellent listener and cooperative

I am tempted to go to a major center like John Hopkins for a consultation.
What other major hospitals are known experts for mood disorders, bipolar and BPD?

Thanks for the feedback.


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poster:JusALIlbit thread:979878
URL: http://www.dr-bob.org/babble/20110220/msgs/980041.html