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Re: value of pain management specialist: experience? » Phillipa

Posted by floatingbridge on April 9, 2011, at 8:21:32

In reply to Re: value of pain management specialist: experience?, posted by Phillipa on April 8, 2011, at 19:01:27

Phillipa,

Low RA factor, 14 I think. Rheumy not too interested, orders a sleep study, says see me in six months. I haven't done the sleep study, but guess I should. Of course, I've been through the stress of quick med trials and tapers, so now O'm too exhausted to even sit up. Noise hurts. My clothes hurt--all my funky knee socks can trigger pain.

MRI eventually. I do have OA. For some, that's very painful. Seems RA is worse. I
don't know that much about it.

I'm trying to live each day without
letting my pain dictate my behavior. Like, I might feel like sh*t, the food that my husband cooks may smell intolerable,
noise is like sandpaper, and my discipline is to behave to the best of my ability with
equanimity. Really. To tell my husband, thank you for cooking; I appreciate that you are feeding us (our kid, too). The oil smell is bothering me, so I'm going to leave the room. He's really hanging in there with me, so I count that blessing, though you know me well enough to
have witnessed how grim and despairing I can be.

The experince of being so rageful on Lyrica really shook me up. If I am to remain human despite what feels like a verse from Job, I have to try to find some
dignity.

Root cause is probably the back. That happened last two months of pregnancy. Then the emergency c-section kicked me good. Never have completely recovered.

After that, hashimoto's found. Have read of pain syndromes that are triggered by surgery, menopause.... Depression :P which preexisted.

fb

P.S. did find BB's advice about adding a little motrin to the tylenol in norco to be true. Does boost effectiveness for me slightly.

I'm sorry to hear that about your future DIL.

DO (osteopath) said no physical therapy yet. Slow, flat walking, gentle stretching. And NO bicycle? If he ever divulges why, I'll let you know.


> You might get at the root cause with MRI? Have you have a rheumatoid factor blood test done? As autoimmune diseases do go together. My Son's fiancee got in her car one morning she said and couldn't turn the key due to pain. She went to the doc diagnosed early rheumaoid arthritis and is on shots of Humara and one oral med. She now experiences no pain. But that is in diagnosed rheumatoid arthristis. Regular osteo arthritis can be seen even via xray. I have that. As for antibiotics l00mg twice a day of doxy did nothing for my pain. The amazing thing was the 24 hours of motrin for inflammation that the dentist had me one. The next day no pain. They now do claim that it can cause heart disease motrin that is.
>
> I once years ago when had herniated disc when to a pain clinic and it was excercises. Love Phillipa


*a rose by any name

 

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