Posted by Dinah on March 29, 2012, at 23:46:01
In reply to Re: Scared, posted by Solstice on March 29, 2012, at 21:20:56
Thanks everyone. I talked to the doctor who saw her episode in person. He also thought it was neurological, although I don't think he realized that she isn't like that most of the time. I got the impression that he was aiming his tests with the idea that this was a degeneration. Apparently she acted oddly at that appointment and I doubt she explained herself well. He was very nice and very concerned and said that it looked neurological to him but that he didn't have expertise in that area.
So he had me call her neurologist, who doesn't know her nearly as well. I think he hadn't quite grasped what was going on either, since she didn't have an episode in his office and I can vouch for the fact that she doesn't explain it anything like it looks in person.
So.... he of course said to go to the emergency room if she had any problems. But he'll move up her next appointment, he and her other doctor will get together to discuss what happened and to make sure they are covering all the tests in their own specialty, and then they might suggest that she have other consultations.
I guess specialists are a good thing, but it would be nice to have a doctor who coordinated all the specialists. They seem to keep sending her from one to the other without anyone keeping track.
I wouldn't say I'm positive or optimistic, but I do think both doctors have a better understanding of what's going on with her. And I will probably have to go with her to the doctor appointments since I don't think I can rely on second hand reports.
I'll mention the possibility of seizures when I go in with her. I'm familiar with seizures in dogs, and it didn't quite have that "feel". But I know there are different kinds and some might not have that feeling of hmmm.... static? I also want them to look at all her medications. Different doctors are prescribing different meds.
I am worried about her situation. I think this is a whole lot to ask of her brother. Maybe I should talk to him privately. Although what I'll do I have no idea. She's very... independent. And she has decided ideas of what she does and doesn't want for herself that don't always seem all that realistic. To put it very very politely.
The whole thing makes me very sleepy. I feel responsible without having any real power in the situation.
poster:Dinah
thread:1014359
URL: http://www.dr-bob.org/babble/20120328/msgs/1014489.html