Posted by tantalos on September 11, 2004, at 23:45:28
In reply to Re: diagnosed with pyroluria - need help! » tendency, posted by Larry Hoover on September 5, 2004, at 10:42:02
I too have recently been diagnosed with pyroluria, and though I have been told to take 100mg of zinc until the time where my lab results come in. I believe that was in the form of zinc gluconate. Does anyone know how that number would convert to say other forms like OptiZinc (zinc monomethionine) or Zinc Picolinate? Thanks.
And interestingly I find that I respond better to some pyridoxal 5' phosphate brands than others. I particularly like Douglas' Laboraties Pyridoxal 5' phosphate and since I typically need less than their 50mg capsule, I break open the capsule and use it that way.
For those of you who want to learn more on pyroluria going to http://www.alternativementalhealth.com/articles/pyroluria.htm as well as checking into other articles on that site, SafeHarbor. It's really a wonderful site.
-Tantalos> > >
> > > I think you should see a real doctor, and ensure that a diagnosis of porphyria is not valid.
> >
> > I'm about to start seeing a holistic osteopath who comes highly recommended in this area. I'll make sure to get his $.02 on the subject.
> > >
> > > In porphyria, it is possible to see a dramatic increase in urinary PBG (a pyrrole). Porphyria can manifest as psychiatric symptoms, and go undiagnosed for many years.
> > >
> > Porphyria?! Never heard of that..how would I go about getting tested for it? For that matter it may be a challenge to even find a doctor that's familar with it..
> >
> > Thanks for tips and articles. More food for thought.
>
> Food for thought. Exactly.
>
> See: http://www.porphyriafoundation.com/about_por/testing/testing01e.html
>
> Lar
poster:tantalos
thread:385742
URL: http://www.dr-bob.org/babble/alter/20040901/msgs/389895.html