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Re: Ilene » dazedandconfused

Posted by Ilene on August 21, 2004, at 13:19:21

In reply to Re: Ilene, posted by dazedandconfused on August 20, 2004, at 21:09:59

> Hi Ilene,
> Thanks again. I appreciate the links re NMH. I am on a waiting list to see Dr. Nancy Klimas at Miami who I believe does the tilt table test. My blood pressure ususally runs low - @60/100 or so. With my luck, I probably have it.
>

You don't need to have low blood pressure to have NMH, but I think it's more common than not. Good luck w/ the tilt table test.

> Sorry if I missed it, but did you say how your malaise and post-exertional fatigue manifest itself? Are you able to exercise?

I used to swim 2-3 miles/week, but it was making me sicker and sicker without my realizing that was the cause. Symptoms:
It took me much longer to get into condition than anyone else. I pretty much plateaued at a medium level of fitness.
I would climb out of the pool and immediately feel overheated. I could walk out into below-freezing weather with wet hair and feel comfortable.
I felt limp, exhausted, and light-headed. After swimming a mile I could hardly carry my swim bag up the stairs.
In the tropical summers of Washington DC I would sweat profusely, feel exhausted and light-headed. The same thing happens when I stay in a hot shower too long.

My old internist said I could probably exercise again, but I haven't gotten set up yet. I'll probably put my bike on a stand and get a heart rate monitor. In theory, if I keep my heart rate down I should be able to exercise. I would walk if I could, but I have bad feet.

Stress also triggers the CFS, and lately I've had bad days with no apparent trigger.
>


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