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Re: How do you deal with having scary genetic diseases

Posted by kilo8 on September 9, 2015, at 12:42:29

In reply to Re: How do you deal with having scary genetic diseases » kilo8, posted by phidippus on August 11, 2015, at 17:29:39

All kinds of things. Over the years more and more health problems started coming up. I have joint pains and can't do any more sports. My knee has been hurting for almost 1 year and I don't know why. I got a MRI which was normal, I went to rheumatologists and they found nothing. It simply sucks when doctors cant help you.

I also have visual disorders. I have visual snow and also see white blood cells in the eyes which I didn't have when I was younger. Doctors simply say it's harmless or don't know what causes it.

Then I also have lipomas. They also sucks and drag me down.

And then there's also the genetic syndrome which I found out about years ago. This has made me feel even more depressed and hopeless. I mean all those years I was treated like a hypochondriac. Doctors told me I am healthy and then out of the blue I get such a diagnosis and am told that I have a rare genetic syndrome. Can you imagine what this felt like?

I just don't understand how can 1 person have so many different diseases at once? It just makes no sense. Other people in my age are healthy and have no issues at all and I have so many things. I cant deal with this.


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