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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 10 of 10. This is the beginning of the thread.
Posted by odon on March 6, 2009, at 8:59:50
Since lyme disease and other similair infections like Bartonella etc. contribute to mental issues like depression,anxiety etc.I was wondering does Samento really work or is it just a bunch of hype or nonsense?
Posted by bleauberry on March 6, 2009, at 9:42:31
In reply to Samento for lyme disease ,question?, posted by odon on March 6, 2009, at 8:59:50
I tell you what, I have tried Samento 3 times. Each time I got a massive Herx reaction.
I read on some site where they said "Is one drop that powerful? YES". I kind of laughed and thought how ridiculous that was. One drop. Give me a break.
I even saw somewhere that some people are so infected or so sensitive that they have to start with 1/4 drop and then work their way up. I thought how ridiculous that is, how do you divide a drop into quarters? Well, I have thought of some creative ways to do that since then, but still, it goes to show the power of Samento.
I don't remember where I saw it, but at a forum where some guy was talking about his long horrid undiagnosed journey through Lyme, he said the most helpful thing other than a particular prescription antibiotic (starts with the letter R) was Samento.
My first time I took 3 drops. Holy cow. Yeah, powerful stuff. I got all the classic Herx symptoms within hours. There was no doubt I was killing a lot of something. I had to wait a couple days to get brave enough to try again. Then it was just one drop, but again, quite powerful.
It is so strong actually that I figured I need to get stabilized in other ways before using it on a regular basis.
Today is my long awaited Lyme appointment and I'm sure Tetracycline begins tomorrow. I have no prediction where things are going, only that when I feel stable enough and have made some forward progress, I can't wait to turn Samento on those germs for some serious sneak attack warfare. They did a sneak attack on me, and I will return the favor, with Samento.
Posted by odon on March 6, 2009, at 10:16:21
In reply to Re: Samento for lyme disease ,question?, posted by bleauberry on March 6, 2009, at 9:42:31
bleauberry,Since you have your appointment today,please keep everyone updated on your experience with lyme disease etc.,and what treatment or approach you are going to take.Even though I recently stated posting here,I've been reading this forum on and off for some time,and I love reading your posts because you do not 'only' focus on the "traditional" approach of medications etc.--I mean there has to be a reason why medications that once worked well stop working.
Posted by Phillipa on March 6, 2009, at 11:04:15
In reply to Re: Samento for lyme disease ,question?, posted by odon on March 6, 2009, at 10:16:21
BB I'd thought you had already seen the lymes's doc. Good luck and please let us know what happens. And if still home could you ask if Western Blot is always positive? Thanks Love Phillipa
Posted by bleauberry on March 7, 2009, at 18:10:12
In reply to Re: Samento for lyme disease ,question?, posted by odon on March 6, 2009, at 10:16:21
Thanks for your nice reply. Good to hear from you.
I don't think anyone else here is all that interested in Lyme. I believe it is normal human nature to be "down on what one is not up on."
But I can understand that here. I mean, this is a psychiatric medication board, so the focus is primarily on that topic. The causes seeking those psychiatric medications, however, are rarely looked at with any seriousness.
Posted by Phillipa on March 7, 2009, at 20:14:54
In reply to Re: Samento for lyme disease ,question?, posted by bleauberry on March 7, 2009, at 18:10:12
With psch issues part of disease how did you make out at lyme docs? Love Phillipa
Posted by bleauberry on March 8, 2009, at 9:18:48
In reply to Re: Samento for lyme disease ,question? » bleauberry, posted by Phillipa on March 7, 2009, at 20:14:54
> With psch issues part of disease how did you make out at lyme docs? Love Phillipa
It was interesting. Labs are "suggestive" of Lyme with a couple bands. History and symptoms are "highly suggestive". In his experience, psych issues are more pronounced when yeast (Candida) is also involved. The guy is a walking library on infectious disease of all kinds. Amazing to watch him speak.
Anyway, the only concrete diagnostic tool is a trial of antibiotic to see what happens. He had to balance a few things...being very cautious with me being sensitive, being very cautious with a psych history, not wanting to use too wimpy of an antiobiotic, not wanting to use too wimpy of a dose.
The starting point is Tetracycline 500mg once every two days, instead of the usual 500mg 3 times per day. He says 2/3 of patients start to feel better fairly quickly, 1/3 get a lot worse. Either way, it is diagnostic. He knows how to read the reactions and knows what they mean, whether it is Lyme or whether it is one of the other 20 pathogens in a Lyme bite, or whether it is a co-infection of more than one, and if Candida is involved also. He said if all I get is some heartburn but nothing else, I do not have an infection.
The Tetracycline is potentially productive, but the primary purpose at this point is diagnostic. He has to see what will happen to know where we stand and where to go. He had me stop all supplements of any kind two weeks prior, so that we can see clearly what Tetracycline on its own does without anything else clouding the picture.
40% of people have false negatives or false positives on Lyme tests, so they are failry useless by themselves. It is the history, tick exposure, symptoms, and response to blind antibiotic trial that do the diagnosis. A good response or a bad response is diagnostic. A neutral response means to look somewhere else for the cause of the symptoms.
He said to start with, being cautious, we'll kill some Lyme, take a day rest, kill some more, take a day rest, and build up over time. The pulsing strategy itself is actually a very effective technique. Lyme likes to go in hiding when it is on the defense. It can be tricked into coming out of hiding, and then wham. Just when it thinks it is safe to come out again, wham.
First dose last night. I didn't feel anything from it until about 2 hours later when I got very sleepy. It reminded me of how Zyprexa used to knock me out. I slept almost 10 hours and could have slept longer. Very sleepy. Very tired. The usual morning anxiety was nearly gone. Not quite as depressed as the last few days.
Very cool doctor. He told me what to do in an emergency, and had me repeat it to him three times. He told me to call him daily with updates...worse, better, nothing, whatever. He spends a lot of time on the phone with patients.
One thing I found interesting was that one of the more effective meds he uses, when a med is needed, is Gabapentin. For depression, anxiety, pain, and sleep. Most people don't seem to talk much about Gabapentin and I don't think it has a great reputation generally, but this doctor finds it a very useful med.
Posted by Phillipa on March 8, 2009, at 19:45:12
In reply to Re: Samento for lyme disease ,question? » Phillipa, posted by bleauberry on March 8, 2009, at 9:18:48
BB guess pulsing was kind of what that infection control specialist did with me three months on biaxin LA and then three off for two years. I felt good on the antibiotics though not worse???? Saw the pic of my bands and all were positive at different levels. Love Phillipa ps you will update Me?
Posted by bleauberry on March 9, 2009, at 19:28:00
In reply to Re: Samento for lyme disease ,question? » bleauberry, posted by Phillipa on March 8, 2009, at 19:45:12
> BB guess pulsing was kind of what that infection control specialist did with me three months on biaxin LA and then three off for two years. I felt good on the antibiotics though not worse???? Saw the pic of my bands and all were positive at different levels. Love Phillipa ps you will update Me?
Interesting. No one knows for sure why relapses can happen. Either the bug is very tricky at hiding, or it goes dormant where it can't be found by meds, or maybe it is impossible to kill every single last one of them. All it takes is for one stupid cell to survive and then later remultiply.That's why the best outcomes are usually minimum 9 months and up to 2 years on antibiotics. Some people take maintenance doses forever. Some people do fine for a long time and then return for retreatment when they feel a relapse coming on. Some people are cured forever.
The fact that you felt good on antibiotics says a lot. Feeling either bad or good is diagnostic. Someone who is not infected wouldn't feel much of anything except maybe get a little heartburn.
Posted by Phillipa on March 10, 2009, at 18:57:07
In reply to Re: Samento for lyme disease ,question? » Phillipa, posted by bleauberry on March 9, 2009, at 19:28:00
Maybe it's psychological always have felt better on antibiotics. Wierd Huh? Love Phillipa
This is the end of the thread.
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