![[dr. bob]](/dr-bob-sm.gif)
Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 9 of 9. This is the beginning of the thread.
Posted by creepy on December 13, 2011, at 13:03:03
Ive been reading a lot about it but sometimes its hard to sift through the quack info out there.
Anyone tried this for chronic fatigue and fibro? There seems to be some immune system involvement the more I think about it. Makes me wonder if this is worth a try.
Posted by Phillipa on December 13, 2011, at 17:17:01
In reply to Low-dose naltrexone, anyone tried it for CFS/FM?, posted by creepy on December 13, 2011, at 13:03:03
I think there is but latest studies suggest excercise?
Posted by creepy on December 14, 2011, at 14:17:50
In reply to Re: Low-dose naltrexone, anyone tried it for CFS/FM? » creepy, posted by Phillipa on December 13, 2011, at 17:17:01
exercise didnt help for long. Another episode of fatigue/pain would come along and keep me out for weeks, back to square one.
Posted by roversreturn on December 14, 2011, at 14:34:23
In reply to Re: Low-dose naltrexone, anyone tried it for CFS/FM?, posted by creepy on December 14, 2011, at 14:17:50
> exercise didnt help for long. Another episode of fatigue/pain would come along and keep me out for weeks, back to square one.
>I have tried LDN, it made me feel irratible, but i don't do great generally on meds and i have more depression and anxiety issues than are common. I probably wouldn't recommend aerobic exercise for most people.
The things that seem to work for some are :- magnesium and b12 (both by injection preferably)
coq10
d-ribose (instead of sugar in tea)
l-carnitine (not recommended if you have mood issues!!)
allergy treatment (epd, neutralisation)
artensuate (anti-viral)The thing that has actually worked for me is a low carb diet i.e. foods with low glycemic loads.
If i go zero carb my mood gets worse and i get depressed.cheers
Rover
Posted by Phillipa on December 14, 2011, at 20:37:23
In reply to Re: Low-dose naltrexone, anyone tried it for CFS/FM?, posted by roversreturn on December 14, 2011, at 14:34:23
I did zero carbs when the Atkins Diet was strutured that way and came out positive for diabetes on a 4 hour glucose tolerance test. Was told to go home eat carbs and then repeat test in two weeks. It was normal then. Phillipa
Posted by Phidippus on December 14, 2011, at 20:38:20
In reply to Low-dose naltrexone, anyone tried it for CFS/FM?, posted by creepy on December 13, 2011, at 13:03:03
http://www.webmd.com/fibromyalgia/news/20090417/naltrexone-may-ease-fibromyalgia-symptoms - Stanford study.
Naltrexone promotes endorphine release:
http://aboutmecfs.org.violet.arvixe.com/Trt/LDN.aspx
Eric
Posted by creepy on December 15, 2011, at 22:05:05
In reply to Re: Low-dose naltrexone, anyone tried it for CFS/FM? » creepy, posted by Phidippus on December 14, 2011, at 20:38:20
Interesting that you had irritability on it, roversreturn. Wonder if the effects were persisting through the day and making you feel more pain? There is a long-acting version of it. Wonder if you were on that?
That can also be a symptom of depression or mixed stuff, so its hard to say.My doctor probably wont want to try it. It may be hard to find one that will.
Posted by bleauberry on December 18, 2011, at 7:59:26
In reply to Low-dose naltrexone, anyone tried it for CFS/FM?, posted by creepy on December 13, 2011, at 13:03:03
LDN is a no brainer for anyone with any sort of chronic disease or psychiatric symptoms or both. It seems especially well suited for the mystery diseases....lyme, cfs, ms, fibro, etc. More often than not it ends up not being a cure, but is helpful enough in a way that people want to stay with it because it improves life quality in a meaningful way. They commonly relapse back to where they started when they stop it.
As with everything, mileage varies. New discoveries show that much tinier doses are effective for some people, and necessary since many of these mystery disease people have exquisite sensitivities and need exquisitely small doses. LDN is usually 1.5mg to 4.5mg but now some people are finding even just 1/10th of that is good. It has also been seen that some people do better with daytime dosing rather than bedtime dosing. So we have seen some new things since LDn first cam out.
I've tried it several times and I guess I am one of the rare people that doesn't do well with ldn. Makes me much more depressed and very high anxiety, which is very unusual for that med at those doses. I think the longest I stayed with it was about 3 weeks. Have tried doses from 0 .1mg to 3mg and various dosing times.
The immune system is tied into every other system in our body more than we know, including the nervous system where psychiatric or neuromuscular symptoms originate. It is my theory that many if not most CFS/FM patients actually have an infection of some sort....bacterial as in lyme or lyme-like, or viral, sometimes fungal such as candida. Assume for a moment that is true, then anything that is going to modulate the immune system....that is, turn it up where it is weak, and turn it down where it is too strong (autoimmune) jas the potential to be helpful. LDN falls into that class. Antibiotic herbs also. My Lyme doctor was a pain/fatigue specialist before that, until he discovered by accident that his patients got better on antibiotics than they did on his routinie pain/fatigue meds. LDN is sort of like that.
Along those same lines, you HAVE to take a look at rhodiola rosea if you haven't already.
Posted by creepy on December 24, 2011, at 15:52:47
In reply to Re: Low-dose naltrexone, anyone tried it for CFS/FM?, posted by bleauberry on December 18, 2011, at 7:59:26
Ive taken rhodiola.. The first few days I was on it were miraculous. doesnt seem to help for long though. Maybe a couple days then it feels like Im taking nothing.
Also I get this weird sensation sort of like smoking pot.. where you have this weird time perception and can recall what you were doing a few seconds ago quite well, but not what came in between. Very strange.
This is the end of the thread.
Psycho-Babble Medication | Extras | FAQ
Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.org
Script revised: February 4, 2008
URL: http://www.dr-bob.org/cgi-bin/pb/mget.pl
Copyright 2006-17 Robert Hsiung.
Owned and operated by Dr. Bob LLC and not the University of Chicago.