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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 11 of 11. This is the beginning of the thread.
Posted by rianna on March 9, 2004, at 20:16:58
Okay I have gotten a lot of info here and I need help! I've been on 2mg of Klonopin for 2 years have tapered down to .5mg and can't go any further. I have had dizziness, cloudy head and dazed feeling 24/7 for 1 year. Has anyone had these same feelings. I was put on Klonopin after having dizzy spells that could not be diagnosed. had MRI's, EKG, Blood work, Vertigo treatment you name it. The Klonopin helped but now it doesn't so I wanted to go off it. I feel awful all the time. Oh finally dr. said I must have anxiety, well yea of course I do after going through this. Has anyone had similar symptoms?
Posted by Rianna on March 16, 2004, at 16:29:52
In reply to klonopin side effects or what, posted by rianna on March 9, 2004, at 20:16:58
> Okay I have gotten a lot of info here and I need help! I've been on 2mg of Klonopin for 2 years have tapered down to .5mg and can't go any further. I have had dizziness, cloudy head and dazed feeling 24/7 for 1 year. Has anyone had these same feelings. I was put on Klonopin after having dizzy spells that could not be diagnosed. had MRI's, EKG, Blood work, Vertigo treatment you name it. The Klonopin helped but now it doesn't so I wanted to go off it. I feel awful all the time. Oh finally dr. said I must have anxiety, well yea of course I do after going through this. Has anyone had similar symptoms?
Please can somebody tell me if they have had similar symptoms?
Posted by dtsd on March 17, 2004, at 13:00:10
In reply to klonopin side effects or what, posted by rianna on March 9, 2004, at 20:16:58
there is over 120 known side effects from benzodiazipines. you can take all the medical tests in the world but this wont help you.solution deal with the withdrawl it will get better in due time.
Posted by man_oh_man1977 on March 21, 2004, at 2:57:49
In reply to Re: klonopin side effects or what, posted by Rianna on March 16, 2004, at 16:29:52
Hi Rianna,
I've been on klonopin (as needed, up to 3mg/day) for about 2.5 yrs... prior to that I was on Xanax. Are you using any other drugs/alcohol or mood stabilizers/AD's? What about sleep problems, eating disorders, anything? Please do share, and I hope you are feeling well. If you are taking other medications, Dr. Bob will probably redirect us.
man-oh-man
Posted by Rianna on March 22, 2004, at 16:00:43
In reply to Re: klonopin side effects or what » Rianna, posted by man_oh_man1977 on March 21, 2004, at 2:57:49
> Hi Rianna,
>
> I've been on klonopin (as needed, up to 3mg/day) for about 2.5 yrs... prior to that I was on Xanax. Are you using any other drugs/alcohol or mood stabilizers/AD's? What about sleep problems, eating disorders, anything? Please do share, and I hope you are feeling well. If you are taking other medications, Dr. Bob will probably redirect us.
>
> man-oh-manHi Man-oh-man
Yes, I do use any other medications. I did take Paxil for about 6 mos I think it may have been longer. I don't anymore. I am on 50 mgs of Topomax. But other than that I am straight an narrow. I am one of the lucky ones I guess I have heard that using benzos can lead to other stuff. It can make you depressed I just deal with it although it is tough sometimes. Thanks for the responce. And Hope you are okay. :)
Posted by greenwillow on May 3, 2004, at 22:33:05
In reply to klonopin side effects or what, posted by rianna on March 9, 2004, at 20:16:58
Do you have tinnitus or pressure headaches? If so, do either get worse if you hang you head over forwards, or when you lay down?
> Okay I have gotten a lot of info here and I need help! I've been on 2mg of Klonopin for 2 years have tapered down to .5mg and can't go any further. I have had dizziness, cloudy head and dazed feeling 24/7 for 1 year. Has anyone had these same feelings. I was put on Klonopin after having dizzy spells that could not be diagnosed. had MRI's, EKG, Blood work, Vertigo treatment you name it. The Klonopin helped but now it doesn't so I wanted to go off it. I feel awful all the time. Oh finally dr. said I must have anxiety, well yea of course I do after going through this. Has anyone had similar symptoms?
Posted by Rianna on May 4, 2004, at 14:11:38
In reply to Re: klonopin side effects or what, posted by greenwillow on May 3, 2004, at 22:33:05
> Do you have tinnitus or pressure headaches? If so, do either get worse if you hang you head over forwards, or when you lay down?
Yes, and also have lock jaw or something they do get worse when I lay down but also when I stand up for a while. Do you have a clue asto what it may be?
>
>
>
>
> > Okay I have gotten a lot of info here and I need help! I've been on 2mg of Klonopin for 2 years have tapered down to .5mg and can't go any further. I have had dizziness, cloudy head and dazed feeling 24/7 for 1 year. Has anyone had these same feelings. I was put on Klonopin after having dizzy spells that could not be diagnosed. had MRI's, EKG, Blood work, Vertigo treatment you name it. The Klonopin helped but now it doesn't so I wanted to go off it. I feel awful all the time. Oh finally dr. said I must have anxiety, well yea of course I do after going through this. Has anyone had similar symptoms?
>
>
Posted by Rianna on May 4, 2004, at 14:20:04
In reply to Re: klonopin side effects or what, posted by Rianna on May 4, 2004, at 14:11:38
> > Do you have tinnitus or pressure headaches? If so, do either get worse if you hang you head over forwards, or when you lay down?
>
> Yes, and also have lock jaw or something they do get worse when I lay down but also when I stand up for a while. Do you have a clue as to what it may be?
> >
> > Oh, and also my neck stays stiff. The pressure in my head stays all the time and the ringing sometimes. Help!!
> >
> >
> > > Okay I have gotten a lot of info here and I need help! I've been on 2mg of Klonopin for 2 years have tapered down to .5mg and can't go any further. I have had dizziness, cloudy head and dazed feeling 24/7 for 1 year. Has anyone had these same feelings. I was put on Klonopin after having dizzy spells that could not be diagnosed. had MRI's, EKG, Blood work, Vertigo treatment you name it. The Klonopin helped but now it doesn't so I wanted to go off it. I feel awful all the time. Oh finally dr. said I must have anxiety, well yea of course I do after going through this. Has anyone had similar symptoms?
> >
> >
>
>
Posted by greenwillow on May 6, 2004, at 22:29:31
In reply to Re: klonopin side effects or what, posted by Rianna on May 4, 2004, at 14:20:04
Perhaps you have increased intercranial pressure, also known as pseudo-tumor cerebre. It is a build-up of spinal fluid inside the skull and is worse with the positions I mentioned. The tinnitis seems to "zing" from side to side across the back of your head when you lie down. The symptoms are relieved by having a spinal tap which removes a little of the fluid and allows things to return to normal. The problem is finding a doctor to diagnosis it, as it is very rare (about 1/100,000 pop.). I had similar problems 2 yrs. ago when doctors were playing their idiot medication games. Finally got a neuro-otologist who made the diagnosis, but then I had to find a neurologist who would agree to order the tap. As far as I know, the only sure test is the spinal pressure measurement that they should take when they actually do the tap. In my case, the symptoms went away after one tap, except for the tinnitis which I still get when I lie down. The tap wasn't bad; by the time I had it I was soooo ready I couldn't wait. The same Yahoo site that hosts Psycho-Babble also hosts a pseudo-tumor cerebre site which was very helpful for me. If you are in the Dallas area, I can give you the name of the neuro-otologist. Good luck!
> > > Do you have tinnitus or pressure headaches? If so, do either get worse if you hang you head over forwards, or when you lay down?
> >
> > Yes, and also have lock jaw or something they do get worse when I lay down but also when I stand up for a while. Do you have a clue as to what it may be?
> > >
> > > Oh, and also my neck stays stiff. The pressure in my head stays all the time and the ringing sometimes. Help!!
> > >
> > >
> > > > Okay I have gotten a lot of info here and I need help! I've been on 2mg of Klonopin for 2 years have tapered down to .5mg and can't go any further. I have had dizziness, cloudy head and dazed feeling 24/7 for 1 year. Has anyone had these same feelings. I was put on Klonopin after having dizzy spells that could not be diagnosed. had MRI's, EKG, Blood work, Vertigo treatment you name it. The Klonopin helped but now it doesn't so I wanted to go off it. I feel awful all the time. Oh finally dr. said I must have anxiety, well yea of course I do after going through this. Has anyone had similar symptoms?
> > >
> > >
> >
> >
>
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Posted by rianna on May 8, 2004, at 20:38:51
In reply to Re: klonopin side effects or what, posted by greenwillow on May 6, 2004, at 22:29:31
Would't an MRI pick this up? Did you have this fog feeling and unbalance etc. 24/7? My Goodness how did the Dr. know to test you for It?
Posted by greenwillow on May 8, 2004, at 22:33:12
In reply to Re: klonopin side effects or what » greenwillow, posted by rianna on May 8, 2004, at 20:38:51
> Would't an MRI pick this up? Did you have this fog feeling and unbalance etc. 24/7? My Goodness how did the Dr. know to test you for It?
I did have the symptoms 24/7. Don't know if it would be what you have or not, maybe yours is from lowering the klonopin dose. I was lucky to get a doctor who thought of it. It was never proven that I had it because when the radiologist did the spinal tap, he did not take the opening pressure. I just know I got better after it. Here is the site with lots of info if you're interested. Good luck.
http://health.groups.yahoo.com/group/ptc-support-group/
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