Posted by Enigma on October 11, 2010, at 10:50:49
In reply to Re: Are there any new AD's out?, posted by stargazer2 on October 10, 2010, at 18:56:16
> Have you tried Abilify in combination with another AD, like Nardil. What are you currently taking med wise?
I took almost every single atypical antipsycotic, abilify too, and almost all of them gave me dyskinesia. I didn't want it to turn into tardive dyskinesia, so I had to quit taking them. Only 1 or 2 made me feel better. One made me gain 15-20 pounds in a week that I was only able to lose once I quit Nardil. I couldn't lose a single pound on Nardil, only gain... it didn't matter what I did.. diet, workout (which was impossible with the overheating/sweating), etc. One I quit, I lost the weight just by dieting. Not I look like my thin self again, but miserable, and lonely, so... I had other side-effects too, but I forgot what they were. It took a month or two, or even longer for the dyskinesia to finally go away. I twitches so bad, mostly neck, head, etc, it was almost impossible to sleep.
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> You have similar issues as I do with the not wanting to leave the house etc. My TRD has been on a pretty dismal course for the past 20 years with an occasional break through every now and then.TRD is what again?
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> I just started on Seroquel XR 150 mg with Lithium 600 mg as a new combination and it seems to be doing something. I was suicidal for a few weeks on Nardil so I had to come off it and went to a combo that worked a few years ago, Celexa, Wellbutrin and adderall, but failed this time.Seroquel made me gain mad weight. I'll never touch that stuff again. Same with Celexa if I'm not mistaken. Took Wellbutrin ages ago for energy, but it never had an AD effect. Tried adderall too.. don't recall anything about that one.
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> My doc says there are always things I can try even though I think I have exhausted most meds that I am familar with. I am extremely disappointed with my lack of progress too.I hear that. I knew my last visit was going to be a waste of time, but I didn't think he was going to be THAT negative.. I think I'm going to try to see someone else again, but I'm pretty much out of doctors in my area. I've either been to them already, or them don't take my insurance.
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> Have you given any thought to transcranial magentic therapy. That is something I would try if I was at the end of the med roller coaster.The hospital that I had ECT at (one of them) called me and said they were offering it. But, after talking to them about it, they said that most people that fail completely with ECT don't respond too well to this treatment either, and I'd have to take out a loan and do all this paperwork, and pray I get re-imbursed by this company that works with your insurance carrier (medicare) and so on, so I said, no thanks. I knew one person that tried it and it did nothing for them.. that doesn't mean it wouldn't work for me, but like I said, ECT had no effect on me whatsoever, sooo.. I'm not shelling out any money for this treatment.
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> Is your doctor working with you to get you out of the place you are at...if not , perhaps another more skilled psychiatrist can be consulted. Just a thought...
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> StargazerThis doctor was a complete waste of time. I'm come to expect very little from doctors, as I've had terrible experiences with most of them, not just psychiatrists. All they do is point me somewhere else, not help me at all, not solve my problems, cannot provide me with ANY answers, etc... it's pathetic. I waited a month and a 1/2 for this appt., just to have him ask me why I even made the appt. Yes, he actually asked me that. I was in shock. There's another doctor there, at the same office, but when he left his original practice, forcing me to find the last idiot I saw for a year, he was out of ideas too, I may still try to see him anyway, if he's accepting new patients.
I tried going to Boston, Mass General, and the waiting lists are insane. No one I tried was taking new patients. They couldn't even spend five minutes on the phone with me to recommend someone who is. They just wanted to hang up on me. There's only so much of this doctor-chasing BS one can handle. I made 10-15 calls. Most I had to call 3 times, and still never got a response.
The system is BROKEN.
poster:Enigma
thread:965266
URL: http://www.dr-bob.org/babble/20101009/msgs/965357.html