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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 23 of 23. This is the beginning of the thread.
Posted by sregan on November 7, 2006, at 15:04:38
I've recently weaned myself off my low dose of 5/8 of a .5 tablet of Klonopin. It doesn't sound like much but it's a lot for me (I'm very sensitive). Anyway my anxiety is actually better than when I was on it but I've got lots of strange aches and pains that seem to have been accentuated. I'm wondering if it is the GABA influence. I should be under-GABAniated after getting off the benzo waiting for my receptors to normalize. Is this pain somethign other people have experienced after stopping a GABAnergenic drug?
Posted by Phillipa on November 7, 2006, at 15:50:41
In reply to Klonopin/Benzo withdrawal, neuropathic pain, GABA, posted by sregan on November 7, 2006, at 15:04:38
When I was off them completely years ago no aches and pains. Back on them now. Love Phillipa Cymbalta is know to get rid of neuropathic pain and it did for me.
Posted by sregan on November 7, 2006, at 21:21:43
In reply to Re: Klonopin/Benzo withdrawal, neuropathic pain, GABA » sregan, posted by Phillipa on November 7, 2006, at 15:50:41
> Cymbalta is know to get rid of neuropathic pain and it did for me.
There seem to be 2 or three schools of thought for pain. The newest is GABA related, older is NE related and then there is dopamine which FMS docs are starting to explore. They all talk about the pain threshhold and a deficieny of a specific neurotransmitter. They'll probably find out there is some underlying cause like Glucocorticoids and depression/anxiety and they've been treating symptoms instead of addressing the problem.
Posted by Phillipa on November 7, 2006, at 21:43:26
In reply to Re: Klonopin/Benzo withdrawal, neuropathic pain, G » Phillipa, posted by sregan on November 7, 2006, at 21:21:43
I just saw an endocrinologist who did thyroid tests as mine has gone from hypo to hyper, and a cortisol test, and pituitary tests. Would this be of advantage to me in fibromyalgia. But that is trigger points isn't it and I don't have them so maybe chronic fatigue syndrome as I also had chronic lymes disease. Love Phillipa
Posted by sregan on November 8, 2006, at 9:40:44
In reply to Re: Klonopin/Benzo withdrawal, neuropathic pain, G » sregan, posted by Phillipa on November 7, 2006, at 21:43:26
> I just saw an endocrinologist who did thyroid tests as mine has gone from hypo to hyper, and a cortisol test, and pituitary tests. Would this be of advantage to me in fibromyalgia. But that is trigger points isn't it and I don't have them so maybe chronic fatigue syndrome as I also had chronic lymes disease. Love Phillipa
I don't have 11 out of 18 (or whatever) trigger points but do have a couple of points. What I have fits more neatly into Fibro than CFS or depression/Anxiety. I don't think the label matters as much. I think there are several types of CFS and Fibro. If you look at Tietlebaums site his type of CFS is firstly a sleep disorder. Other sites state it is a viral overload. Others think it's a immune issue. Different disorders treated differently with the same name.
Have you ever tried Flexeril? I can take .5 before bedtime and improves sleep tremendously and the next day is very good (less anxiety, symptoms). I'm taking it every third night. Otherwise if you take it every night it loses effectiveness. Why I ask is because Flexeril is on the "it helps those with Fibro" lists.
Shawn
Posted by Phillipa on November 8, 2006, at 19:20:46
In reply to Re: Klonopin/Benzo withdrawal, neuropathic pain, G » Phillipa, posted by sregan on November 8, 2006, at 9:40:44
No I've never been there. Is there a link or something? And I've never tried flexaril I don't think a doc would prescribe it as it's addictive right and I'm on benzos. Love Phillipa
Posted by sregan on November 8, 2006, at 21:19:14
In reply to Re: Klonopin/Benzo withdrawal, neuropathic pain, G » sregan, posted by Phillipa on November 8, 2006, at 19:20:46
> No I've never been there. Is there a link or something? And I've never tried flexaril I don't think a doc would prescribe it as it's addictive right and I'm on benzos. Love Phillipa
His site is: https://www.endfatigue.com/home.nsf
Flexeril is a "Muscle Relaxer" that is very closely related structurally to amitriptyline (Elavil). It's an AD described as a muscle relaxer. Your doc might give you some if you complain of back pain. You shouldn't have any addiction problems if you stick to the lowest dose that helps and stay with ETD (every third day) dosing. If you don't the stuff won't work but at least every three days you'll wake up feeling good (if it works for you like it does for me).
Phillipa, I would also be interested to know if you get increased anxiety from 5HTP or Whey protein. Have you tried eother of these? I'm looking into Serotonin as a cause of anxiety. A possibility very much overlooked by the medical community.
Shawn
Posted by Phillipa on November 8, 2006, at 23:23:47
In reply to Re: Klonopin/Benzo withdrawal, neuropathic pain, G » Phillipa, posted by sregan on November 8, 2006, at 21:19:14
Shawn I've been drinking Whey protein each night before bed. Do you think this is contributing to anxiety? I thought it would help my hair the extra protein as it's thinning I think from the thyroid problem. Should I stop drinking it? Love Phillipa
Posted by sregan on November 9, 2006, at 9:20:49
In reply to Re: Klonopin/Benzo withdrawal, neuropathic pain, G » sregan, posted by Phillipa on November 8, 2006, at 23:23:47
> Shawn I've been drinking Whey protein each night before bed. Do you think this is contributing to anxiety? I thought it would help my hair the extra protein as it's thinning I think from the thyroid problem. Should I stop drinking it? Love Phillipa
I KNOW for a fact that the two different types of Whey protein I have (expensive undenatured and bodybuilders (BB) whey) cause me anxiety. The undenatured stuff at lower dose will cause just as much anxiety for me as the BB whey.
Undenatured I've taken ($30 for about 1 lb)
https://www.immunesupport.com/shop/product.cfm/product__code/PH143BB Whey I also take ($27 for 5 lbs)
http://www.bulknutrition.com/?products_id=62The Alpha-Lactalbumin in the whey protein is reported to increase 5HT and Serotonin levels in the brain. If you believe yourself to be sensitive to elevated serotonin you might consider stopping it for a week and seeing how you feel. You might also check your container to see if it specifies the AL content.
There are lots of reasons to take whey protein as it has many immune boosting and other health benefits.
I'm still taking mine but cutting back to only the morning after my workouts the previous evening. I'm going to buy some egg or soy protein and try that instead.
Posted by Phillipa on November 9, 2006, at 18:19:48
In reply to Re: Klonopin/Benzo withdrawal, neuropathic pain, G » Phillipa, posted by sregan on November 9, 2006, at 9:20:49
I wonder if you have just answered a mystery for me. As I have autoimmune problems. And hasimotos thyroiditis and since I've been living here I've been taking it and my thyroid is now hyper and just saw an endo. And anxiety is worse. Could the whey have made my immune system even more alert? Love Phillipa
Posted by sregan on November 9, 2006, at 21:45:03
In reply to Re: Klonopin/Benzo withdrawal, neuropathic pain, G » sregan, posted by Phillipa on November 9, 2006, at 18:19:48
> I wonder if you have just answered a mystery for me. As I have autoimmune problems. And hasimotos thyroiditis and since I've been living here I've been taking it and my thyroid is now hyper and just saw an endo. And anxiety is worse. Could the whey have made my immune system even more alert?
If you have auto immune problems it could. The reason CFS paitents are taking whey is because it raises glutathione levels a very important part of the immune system.
One of the reasons I keep a journal. I can pinpoint changes and when symptoms changed with changes in supplements, drugs, diet, exercise, etc.
Let me know if you find out anything. If you stop the whey for a week and it helps let me know.
Shawn
Posted by Phillipa on November 9, 2006, at 22:08:18
In reply to Re: Klonopin/Benzo withdrawal, neuropathic pain, G » Phillipa, posted by sregan on November 9, 2006, at 21:45:03
I didn't take the whey last night and no longer. I do need to get some soy though. Is that alright? Wow to think I may have messed up my thyroid on my own. Oh and I started it when I moved here last November and since then the anxiety has been getting worse. Love Phillipa
Posted by sregan on November 10, 2006, at 10:36:11
In reply to Re: Klonopin/Benzo withdrawal, neuropathic pain, G » sregan, posted by Phillipa on November 9, 2006, at 22:08:18
> I didn't take the whey last night and no longer. I do need to get some soy though. Is that alright? Wow to think I may have messed up my thyroid on my own. Oh and I started it when I moved here last November and since then the anxiety has been getting worse.
I wouldn't write off the whey completely until you give it a week or so. It's important to make only one change at a time so you know what works and what doesn't so don't make any other changes during this week .
Here are some protein alternatives:
Iso-Rich Soy (the first with green vegtables)
http://www.iherb.com/store/ProductDetails.aspx?c=Herbs&pid=JRW-21016
http://www.iherb.com/store/ProductDetails.aspx?c=Herbs&pid=JRW-21017Rice Protein that is "allergen" free
http://www.iherb.com/store/ProductDetails.aspx?c=Herbs&pid=NBC-00165Egg-White Protein
http://www.iherb.com/store/ProductDetails.aspx?c=Herbs&pid=NOW-02040Again, keeping a journal is an excellent idea. Let me know how it goes after a week.
Shawn
Posted by Phillipa on November 10, 2006, at 18:34:31
In reply to Re: Klonopin/Benzo withdrawal, neuropathic pain, G » Phillipa, posted by sregan on November 10, 2006, at 10:36:11
Thanks Shawn. Love Phillipa
Posted by sregan on November 19, 2006, at 20:04:44
In reply to Re: Klonopin/Benzo withdrawal, neuropathic pain, G » sregan, posted by Phillipa on November 10, 2006, at 18:34:31
Phillipa,
How are you doing without the whey protein? I was wondering of your anxiety was any better.
Here's an interesting article you might be interested in. A CFS doctor found an "injury" to the brain that causes anxiety ("focal brain injury").
Shawn
Posted by Phillipa on November 19, 2006, at 20:11:56
In reply to Re: Klonopin/Benzo withdrawal, neuropathic pain, G » Phillipa, posted by sregan on November 19, 2006, at 20:04:44
Shawn you forgot the article. And I found out my thyroid has become hyper from hypo so even though the doseage has been changed I've been a lunatic. Love Phillipa glad to know you didn't forget thanks but I do need the article?
Posted by sregan on November 19, 2006, at 20:13:55
In reply to Re: Klonopin/Benzo withdrawal, neuropathic pain, G » sregan, posted by Phillipa on November 19, 2006, at 20:11:56
> Shawn you forgot the article. And I found out my thyroid has become hyper from hypo so even though the doseage has been changed I've been a lunatic. Love Phillipa glad to know you didn't forget thanks but I do need the article?
I did, please see this post. I thought it might interest others also. (You're quick, I just posted this a minute ago.). How is your anxiety without the whey?
Shawn
Posted by sregan on November 19, 2006, at 20:15:04
In reply to Re: Klonopin/Benzo withdrawal, neuropathic pain, G, posted by sregan on November 19, 2006, at 20:13:55
Posted by Phillipa on November 19, 2006, at 20:17:33
In reply to Re: Klonopin/Benzo withdrawal, neuropathic pain, G » Phillipa, posted by sregan on November 10, 2006, at 10:36:11
Oh the links above. I just got my disability check and have to buy some soy as it may be good for old hormones too. Anxiety is the same but it's thethyroid not the whey at this point. But I am changing. Love Phillipa
Posted by MjrTude on April 21, 2007, at 14:05:27
In reply to Re: Klonopin/Benzo withdrawal, neuropathic pain, G » sregan, posted by Phillipa on November 19, 2006, at 20:17:33
Hi Philipa,
Be carecul of the soy. I think you mentioned that you had thyroid problems. Soy isn't a friend of the thyroid.
Posted by Phillipa on April 21, 2007, at 19:46:27
In reply to Re: Klonopin/Benzo withdrawal, neuropathic pain, G » Phillipa, posted by MjrTude on April 21, 2007, at 14:05:27
Yes thanks for the warning. Seems Lar has said the whey is okay. Love Phillipa don't think we've met glad to meet you.
Posted by MjrTude on April 21, 2007, at 23:54:26
In reply to Re: Klonopin/Benzo withdrawal, neuropathic pain, G » MjrTude, posted by Phillipa on April 21, 2007, at 19:46:27
I'm pleased to meet you. I am the DH of Florence (I think that's the screen name she uses here)
She's having a very hard time right now.. she stopped Klonopin/Xanex cold turkey. I think this may have been a huge mistake. It's difficult watching someone you love go through such horrible withdrawal.
Good Night
Frank> Yes thanks for the warning. Seems Lar has said the whey is okay. Love Phillipa don't think we've met glad to meet you.
Posted by Phillipa on April 22, 2007, at 18:11:08
In reply to Re: Klonopin/Benzo withdrawal, neuropathic pain, G » Phillipa, posted by MjrTude on April 21, 2007, at 23:54:26
Oh so sorry yes that was not a good idea did she post on the withdrawal board? Does her doc know what she's doing as it is not a good thing to do. Love Phillipa
This is the end of the thread.
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