Posted by sunkistcat79 on February 3, 2009, at 16:37:41
In reply to Re: new and VERY VERY VERY depressed » Sunkistcat79, posted by Garnet71 on February 2, 2009, at 10:38:45
> Sunkist - wow, I thought I had it bad.
>
> Since you have had this since childhood, I think you and your doctors really need to keep this in mind with your treatment.Yeah, I agree. Although, my doctor won't even respond to my desperate and polite requests to have an appointment with him. It's been over a month and I had to start treating myself again (I know everyone will say how horrible that is...but really, when you have been through what i have, my doctors don't know cr*p, the only effects their prescriptions have had was side effects and withdrawal symptoms and if i kept waiting, i would literally die)
I did write a few sentences about how I went 100 percent, completely gluten free for 2 years. Actually, when at home, I found it very easy to stay strictly gluten free. I found many good brands (Tinkyada pasta for example) and alternatives at health food stores and found I was able to make basically anything I wanted to - at home. I may be able to give you some other suggestions.
*****I went 100 PERCENT clean from gluten (and yes, I didn't eat at restaurants or eat any packaged food that didnt' specifically state GLUTEN FREE as I know all the hidden sources) dairy and eggs after a test showed some sensitivity to those items. However, I was still hospitalized during those times. In total, I did this for 2 years. It sucked. Especially when I was at the hospital.******I've really tried it all. The only thing left is some sort of a lobotomy ....if such a thing exists. (I know about the deep brain massage thing or whatever it's called but will not go through with a procedure and wait up to 18 months and it may not even work.
I recently restarted buprenorphine and am having severe withdrawals cuz i wasn't on any other opioid prior (I was unable to get any....i REALLY tried too...)
thanks,
sunkistcat79
poster:sunkistcat79
thread:871909
URL: http://www.dr-bob.org/babble/alter/20081006/msgs/877842.html